Struggled with where to make my first post as my diagnosis seems not to quite fit in any of these categories. I've not been able to find definitive answers out on the web. I'm 41, went in for my first mammogram, and then it all just snowballed from there. :(
Initially diagnosed with IDC, 8mm, on my left breast. Okay. Lumpectomy + radiation. I can do that. "Piece of cake," I said. BS sent me for an MRI (she must have suspected something) and it found additional areas of concern. The original 8 mm turned into a 9 cm stretch of multiple tumors (they didn't bother counting). Only the upper and lower portion of that stretch was biopsied -- the upper having already been diagnosed as IDC (the original 8mm tumor) and the lower being diagnosed as Ductal Carcinoma (in situ?) with comedo necrosis. Which I guess basically means an aggressive contained cancer that grew so fast it starved itself, thus the necrosis? I don't fully comprehend the progression of the cancer, or maybe it's all separate cancers, though I doubt it much matters at this point. We have no idea what's in the middle of that whole stretch, and again, at this point I doubt it matters. Yesterday the right breast biopsy came back positive as well (ductal carcinoma in situ, 4mm, no necrosis). I honestly thought the right would be fine, so it was a bit of a shock.
I guess I've decided on double mastectomy with some sort of reconstruction (PS consult next week) but am still struggling with that choice. I feel it's the "smart" choice given the change in my circumstances, the "only" choice. I'm having blood draws today, a portion of which will be sent off for genetic testing. Won't receive results until after surgery. I don't know that those results would affect my decision. If I come back BRCA+ (or positive for some other hereditary gene mutation) then I have reassurance that it's the right choice, but even if I come back negative I would still wonder.
I just wish there was more research to know for sure what my chances are, both of recurrance and living past 5, 10 years. Most of what I've been able to piece together is either old data or conflicting.
5/21/2015, IDC, Left, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2+ (FISH)
6/4/2015, DCIS, Left, Stage 0, Grade 3, ER-/PR-
6/8/2015, DCIS, Right, <1cm, Stage 0, Grade 3, ER+/PR+
6/30/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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