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Topic: Invasive micropapillary carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: May 3, 2016 07:32PM

Memily9 wrote:

I haven't checked in for a while just wondering if there are any others with a similar diagnosis or if there are any resources or information you could share with me.

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Posts 31 - 38 (38 total)

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Dec 20, 2017 10:58PM beauz wrote:

Hi scaredbunny. Met with my MO this morning. He has been busy consulting other oncologists around country about my case and discussed my case in a multidisciplinary meeting. He said the treatment for invasive micropapillary carcinoma is the same as that of IDC. He said I can have standard treatment which is radiation followed by hormone therapy, or I can start oral chemo Xeloda next week and then radiation followed by hormone therapy. I happily accept the chemo option. But I can't start chemo next week because we already planned two weeks holiday. He is okay that I start chemo on 9th of January, which is still within the 8 week optimal period after surgery. I forgot to ask how long is the chemo course and I don't care about it now. I feel relieved and I can enjoy the holiday from tomorrow.

When will start your radiation therapy? How did you go with your last chemo, any side effects? I hope you are recovering well and ready for the next treatment. Take it easy.

Dx 01/Dec/2017, invasive carcinoma of mixed type. Mixed no special type(60%) and micropapillary type(40%). High grade DCIS present within and beyond invasive carcinoma. Right, 5cm, Stage IIIB, Grade 2, 3/15 nodes, ER+/PR-,Her2- Dx 5/2017, IDC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR-, HER2- Chemotherapy 6/27/2017 AC + T (Taxol) Surgery 11/28/2017 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 1/10/2018 Xeloda (capecitabine) Radiation Therapy 4/17/2018 Whole-breast: Breast Hormonal Therapy 9/18/2018 Femara (letrozole)
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Dec 30, 2017 09:05AM Scaredbunny wrote:

Hi Beauz, my last chemo was fine. Glad to have it behind me. I have got the markings for radiotherapy with verification on January 2nd and to start Thursday the 4th. 15 sessions plus 5 booster to the scar line. I must ask my oncologist about Xeloda..maybe it would be of benefit to me ! I don't see him again until the end of January. Talk soon and take care.

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Mar 10, 2018 01:58PM StellaStarr wrote:

Dear ScaredBunny:

Oh yes, my story is real. 10 years this coming fall & still alive with no signs or symptoms of a cancer recurrence. My health plan at the time (I switched to a new plan as of Jan 2018), sent me to this nationally known Oncologist, then affiliated with that plan. His idea. He thought I was some kind of freak of nature for still being alive after 4-5 years after initial diagnosis and treatment -- which I could not complete due to so many life-threatening reactions/side effects. Brutal time. However, the quality of my life is poor; mostly due to raging lymphedema that defies treatment. But cancer recurrence? Nope. 

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Mar 11, 2018 01:51AM beauz wrote:

Hi stellastarr, congratulations on making it to 9+years. I am sorry to hear about your ongoing struggle with raging lymphadema. I hope you will find the right specialist to help with your lymphadema soon. Could you tell me more about your new plan?

Dx 01/Dec/2017, invasive carcinoma of mixed type. Mixed no special type(60%) and micropapillary type(40%). High grade DCIS present within and beyond invasive carcinoma. Right, 5cm, Stage IIIB, Grade 2, 3/15 nodes, ER+/PR-,Her2- Dx 5/2017, IDC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR-, HER2- Chemotherapy 6/27/2017 AC + T (Taxol) Surgery 11/28/2017 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 1/10/2018 Xeloda (capecitabine) Radiation Therapy 4/17/2018 Whole-breast: Breast Hormonal Therapy 9/18/2018 Femara (letrozole)
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Mar 11, 2018 11:31AM StellaStarr wrote:

I should have clarified a little better: I switched from a Kaiser health plan to United Health Care -- so I could access Sutter Health in my area. Because! Unlike Kaiser, Sutter recently created a LE Clinic (brand new) at the hospital facility closest to where we live. Kaiser shoved LE treatment into their Phys Therapy department, meaning 1/2 hour appts. Effective LE treatment requires about an hour+, not a pitiful 1/2 hr. 

In terms of a treatment plan for the LE via Sutter's LE Clinic, right now it's causing new problems. My latest PT has only been doing LE treatment since last Sept. She has limited collective experience working on real bodies over time. Real bodies don't always respond like the books/class training say they should. Mine sure doesn't! The bandaging by this new PT causes severe  pain in my hand. The PT doesn't know why or what to do differently. Thanks to Binney4 from Breastcancer.org, I now have some info to share with my new PT about what to do differently. We'll see.

In terms of my breast cancer, ehh: I haven't seen an Onc for over a year. But! My new Sutter primary care doc ran a ton of blood tests in January and everything looked good. My ca 15.3 test result was even better than it was in 2016. My mammo was fine. You'd think I'd feel safe & secure & confident with such good news, but my initial diagnosis was pretty dire & several Kaiser doctors were sure I'd be dead in a few years. Ha! 

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Mar 13, 2018 06:52AM beauz wrote:


Hi stellastarr, thank you for your reply. I wonder what happened to the small spot on your right lung. Is it being monitored regularly? What kind of test did you have to detect it in your blood stream? Apart from your DD chemo, did your doctor do anything that targeting IMPC and the issue of no clear margins? I am taking Xeloda because I didn't have clear margins. I am surprised you haven't seen your oncologist for over a year. I hope your new primary care doctor will look after you well. I am very happy you survived the dismal diagnosis that still sounds scary even now.

Your lymphadema seems to be in an unusual position. Is it because of your tumor location and a lot of lymph nodes taken from that area? Mine was in between 9 o'clock and 10 o'clock position. I don't have lymphadema at the moment, but I have cording. I found my hospital physio therapist is very helpful. I hope you find the right help soon. I hope I am not asking you too many questions.

Dx 01/Dec/2017, invasive carcinoma of mixed type. Mixed no special type(60%) and micropapillary type(40%). High grade DCIS present within and beyond invasive carcinoma. Right, 5cm, Stage IIIB, Grade 2, 3/15 nodes, ER+/PR-,Her2- Dx 5/2017, IDC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR-, HER2- Chemotherapy 6/27/2017 AC + T (Taxol) Surgery 11/28/2017 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 1/10/2018 Xeloda (capecitabine) Radiation Therapy 4/17/2018 Whole-breast: Breast Hormonal Therapy 9/18/2018 Femara (letrozole)
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Mar 29, 2018 06:37PM Scaredb wrote:

Hi Stellastar,

Thank you for coming back to me and confirming that you are alive and well after such a diagnosis. You give me much hope that I will survive my own diagnosis and continue to be a mother to my two young children. Did you make any special dietary changes ? Any advice on how to beat this disease...??

Regards

Scaredbunny.

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Mar 31, 2018 08:56PM Scaredb wrote:

Hi Beauz,

How are you doing?

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