Australian health care, clinical trials, and life in general in the land down under.
Posted on: Dec 15, 2010 05:13PM
Calling all Australian Sisters!
I'm in Canberra and have just done my second chemo treatment. I'm have 3 cycles of FEC then will have 3 cycles of Taxotere and 12 months of Hercepten.
It might be nice to see how many of us are in Oz and if we aren't too far away from eachother try to organise a meeting.
Posts 12001 - 12030 (12,188 total)
Nov 13, 2018 08:11PM Kanga_Roo wrote:
Gentle hugs Chrissy,
Hope your specialist gets you onto something effective ASAP... you provide inspiration for so many I wish i could give some back, but here is a rose from my garden instead.
Trisha-Anne. - sounds like semi-retirement might suit you...hope everything works out with hubby’s eyes...men can be the worst patients!
Nov 14, 2018 02:30AM chrissyb wrote:
Thanks girl, your thoughts are much appreciated.
Update......Doc is referring me onto oncologist and I see him on the 27th this month. He seems to think that because I have not responded as hoped to the Femara that Aromasin may be not useful either hence the referal. So for now I wait to see in which direction I will be going........needless to say my girls are concerned but I keep telling them it's all part of the journey and that I have been seriously lucky so far.
Love n hugs. Chrissy
Nov 14, 2018 07:19AM helenlouise wrote:
beautiful rose kanga. It has been a wonderful spring for roses. Is that a just Joey kanga? :
Nov 14, 2018 06:38PM mandymoo wrote:
I haven't posted for a while but I do read your posts. I am still busy with the grandchildren and I keep giving myself a pat on the back every day as I am getting so tired and every little chore seems to sap my energy...Looks like the 3 of them might go to the same school next year so that will be a lot easier and I have also had a busy month with our local Cancer Support Group celebrating Breast Cancer Awareness Month in our regional area.
I had my Fulvestrant shots yesterday afternoon and when I got home I made myself a nice cuppa and sat down to rest, and I fell asleep sitting in my chair..... I have never done that. Hubby woke me up to have some dinner and then I went straight to bed. I slept through till 7 this morning. On the upside, my body isn't so sore this morning so that's alright. I have my scans in a couple of weeks and then I see my lung specialist on the 10th December and my oncologist on 12th December to see which way we are going. I have gone through 3 different types of treatment this year but overall I still feel pretty good, and my tiredness, and aches and pains I blame old age as I am now 67 haha.
Trish, yes,part time work would be the answer. hugs
Crhissie, you have done very well for so long, you are amazing. Let us know what the next plan will be after you have seen your oncologist and we will start making plans to get to Melbourne next year. It would be awesome to meet up with everyone.
Kanga, it is lovely to see a picture of that beautiful rose, thank you, it is gorgeous. Such a beautiful colour too. Makes you appreciate how beautiful and fragile life is.
Hugs to everyone
Nov 16, 2018 05:24AM Delvzy wrote:
Bugger Chrissy I was hoping it would do the trick. I wonder what u will get symptom wise from the new meds as u r going o/s soon
I have gone off my chemo tablets for 8weeks as they were making me worse . Just had blood tests to check hemoglobin which is low again after 4/12 weeks so blood transfusion for me next week. Fingers crossed tumour markers are lower. The hospital has just got me in medical Marijuana so I am legally abje to drive with this one with the oncologist script. He is very forward thinking and even wanted me to have Chinese medicine and acupuncture through the hospital . I told him I had been on both since my BC came back 2 years ago
Nov 16, 2018 07:18PM - edited Nov 21, 2018 07:49AM by Wildplaces
I read often but don't post much.
Chrissie - one trial put the doxycycline dose to 200mg and got side effects - predominantly Gi symptoms - the drop out was high, not sure why - because we use these drugs for acne and have little reported problems. It did not come from Lisanti and I think it was a bad trial. Waiting for more - it's combo with vitC around chemo is interesting.
I will be watching to see what your oncologist says and if they choose CDK4/6 - ibrance does not have the RARE but potential cardiac side effects of Kisqali (Ribociclib) but we only have Kisqali on PBS. I know zero about oncology....
I am 50 and I get tired - don't know how you do it but in awe.
Kangaroo - love the rose - I have vegetables and citrus but no roses - maybe I will plant some right in front of my kitchen sink window - that way when I do the dishes I dream away. 😊
Delvzy - glad you are getting a break over Christmas - love an onc with an open mind.
I am 2 years out from diagnosis, Christmas cleaning and decluttering and contemplating getting a cat. I still can't part with my wigs ( not sure why -?I know I should take them to the chemo centre especially as being hot I did not wear them, just wrapped and was ok about it), it's a shit rdisease and one needs a strong head. It's one of the reasons I love the thread - the strength and good sense is palpable.
Hugs to all,
Nov 16, 2018 07:20PM - edited Nov 18, 2018 05:26AM by Wildplaces
And goesagainst the grain - I was told to stay away from VitC around chemo as there are interactions.
I take vitC now, and try and keep up citrus but did not during active treatment
Nov 20, 2018 08:19AM aussie12 wrote:
Chrissy best wishes for when you see the Oncologist, hopefully you'll get sorted out.
I'm going to the GP tomorrow as I've been having stabbing pain in my abdomen on and off over the past week. I might even ring up the chemo dept and see what they say about seeing the Oncologist as I don't have an appointment until January. I just hope that there is no blockage again like last time.
Nov 20, 2018 02:46PM Trisha-Anne wrote:
Roo - what a beautiful rose. We've grown Just Joey in all our gardens over time, they are gorgeous.
Mandy - I'm so glad to hear you are feeling ok, considering the treatments you have been on, that's pretty good!
Chrissy - we'll all be waiting to hear what your onc says.
Wildplaces - a cat is (usually) the most cuddly thing. We haven't had a cat for a long time, and I miss having a furry ball curled up in my lap. I understand about the wigs. I had one for my first go around with bc, and only wore it once then. I couldn't throw it out though. Then the second time, I only wore it once, and it's again wrapped up and put away.
Carol - I hope you go to see someone today about your pain. Don't wait - even if you have to turn up at the hospital. You can't muck around with this, especially with your history. Keep us posted please!
Well I'm now three years post surgery for the second bc. Not going to celebrate though - I did that at the five year mark for the first one and a month later found the other lump. I am going to cut my hours slightly leading up to Christmas, and then come back after the shutdown to four days a week, and see how that goes.
Nov 20, 2018 03:27PM Lucy55 wrote:
Trish ...my goodness ..how quick time flies..it doesn't seem ( to me ) three years since your second BC ..
Kanga ..yes gorgeous rose ..I can smell it from here !
Hugs to all
Nov 21, 2018 07:54AM Wildplaces wrote:
Thank you for understanding. ☺️🐣🌷
Nov 23, 2018 09:09AM aussie12 wrote:
I went to the GP and he said that since I had the CT not long ago that something would have shown up and that it could be scar tissue. I haven't had the pain the last few days, will see how I go over the next few days.
Trish that 3 years has gone quick.
Nov 25, 2018 03:44AM Delvzy wrote:
Good news Carol and Trish that has flown
Nov 27, 2018 05:36AM chrissyb wrote:
Hi girls, finally home after a long day. Well, the lowdown of todays visit with the onc. He is lovely first of all and doesn't shy away from going through all the options which made both my daughters very happy. There is a long list of options but for now we are going to stick with the Femara and add in Xgeva. I have a referal to get some bloods done and an appointment on Thursday with the dentist for a check up before beginning the Xgeva. He is meeting with the cancer conference tonight and will organize for the radio oncologist to contact me re some rads to the mets that is giving me the most pain and problems.
So, for now it's still pretty simple......thank goodness, but he has listed all the options for me to peruse.
I have a builder coming in the morning to workout a quote to redo my bathroom......yes, it's finally going to happen and I can't wait! Probably won't happen this side of Christmas but early in the new year but that is just fine for me.
Hope everyone is doing okay.
Love n hugs. Chrissy
Nov 27, 2018 03:06PM Trisha-Anne wrote:
Chrissy - you've been in my thoughts xoxo
Good to know you now have a plan. I'm hoping the rads will help you with the pain. I also hope the Xgeva will be gentle on you ((((hugs)))
New bathroom!!! Woohoo!!! You won't know yourself :-)
I will be going to four days a week as of now, and not waiting till after Xmas. Saw my GP for script refills last week, and mentioned the tiredness to him. I'm having a blood test to check a few things, but mainly my iron levels. They were low earlier in the year and I'd forgotten that, so it may be that they are low again. I'm assuming it's going to be something as simple as that!
Nov 28, 2018 04:04AM Delvzy wrote:
Chrissy no chemo
Nov 29, 2018 08:17PM Kanga_Roo wrote:
Phew..... saw my skin specialist today and all is good.
Trish, 4 days sounds good, hope your lack of energy is due to something simple...I feel like that all the time, but have put it down to the femara.
Chrissy, hope you are pain free soon.. and a new bathroom! We renoed ours years ago, and I loved picking out tiles, colours etc.
As we enter the silly season my life seems to have got much busier, so if I don't catch up before I'd like to send you all a BIG hug for Xmas
Dec 1, 2018 04:06AM - edited Dec 1, 2018 04:08AM by Delvzy
Girls the new chemo tablet has me so fatigued I slept 10 hours today!!! Hope it gets better xxx
Chrissy we have freshened our home up this year in June with subway tiles in Kitchen, white paint throughout most of the house and a bedroom revamp with new linen and a barn door. I love it x
Dec 1, 2018 04:24AM chrissyb wrote:
Hey Roo, good to hear that your visit with the skin specialist bought good results.
Trish, I'm sure you'll be feeling a lot better cutting your hours back.
Judy, I sure hope your new chemo tablets settle down so you are not so fatigued but I hear you on the sleeping 10 to 12 hours a night! Been doing that myself of late.
I had my dental checkup on Thursay and got the all clear to start the Xgeva. It's going to be a busy couple of days as I have an appointment with my GP on Monday then first Xgeva on Tuesday morning followed by my first consult with my new radiation oncologist at lunch time. I'll find out then what rads I will be getting. Yep, and Christmas coming up with the family deciding to come to me this year.......me thinks I will be handing over my kitchen to the girls for the duration.
Hope your coming week is not as busy as mine.
Love n hugs. Chrissy
Dec 20, 2018 07:31PM Trisha-Anne wrote:
How is everyone?
Chrissy how is Xgeva treating you?
I'm going well - will finish work this afternoon, then have 11 days off. And having Christmas at home, instead of travelling to Sydney, which will be nice.
Dec 20, 2018 07:54PM Lucy55 wrote:
Trish ...enjoy those days off !!!
Chrissy ..hope everything is O.K with you ...
Frantically trying to wrap Christmas present this morning...my least favourite job 🙄
Dec 20, 2018 09:48PM chrissyb wrote:
Thank goodness for a hot Christmas.......well, not really but it means that instead of everyone coming to me, we are all going to DD2. She has her studio which is airconned so will set up everything in there so we will be able to enjoy Christmas Day without melting.......it's supposed to be 35 in Adelaide with a 39 forecast for Boxing Day. Sure hope everyone can keep cool no matter what the temps are.
Sorry I've been a bit quiet, nothing drastic happening but a lot of running around. Turned up for the first Xgeva shot, got there tem minutes early, booked in and was told won't be long. An hour later I enquired as to what was happening....... told just waiting on the doc to sign off....won't be long......yeah right. I ended up having to leave without it as I had an appointment with the Radiation Oncologist which was a 40 min drive from where I was. Let's just say, I was a little pissed off. Anyway, I was about half way to my next appt when I got a phone call from the oncology nurse saying sorry blah, blah and could I come back after my rads appt.......nope, wrong direction and I was heading home after. Leave it with me, she says. About five minutes later the phone rings again.....yep, the nurse. Wonder of wonders she has organised for me to get my shot from their other clinic which just happens to be right next door to where my appt was. Really??!!
Needless to say when I was done with the rads onc I tootled myself next door, got the shot and headed home........talk about instant big D!! Had to stop multiple times before I got home.........you can all guess what part of me was super tender by bed time.......lol. I was super fatigued for a couple of days with a few aches in the bones but nothing that even needed a parasol for relief. If that's all that I get, I'm super happy with that. The next one is scheduled for 2nd Jan.
Last week I spent the whole week at my daughters while I was having rads to my ribs and shoulder........must admit that the pain has certainly eased of to the point I'm not taking any heavy pain meds very much.......and that's a good thing.
This Tuesday just past I saw the Opthamologist for my check up of the eyes.......he is super happy with the result as am I, the only glasses I need now are the 1.5 magnafiers from the chemist for reading.......woohoo!! He did say that he can sharpen them a bit more so the first one, the right, will be done on the 9th Jan.
So, as you can see it has been fun and games for a few weeks but hopefully it will begin to settle into a better routine from now on. We have completed the plans for our trip beginning March 1st and ending April 22nd when we touch down on Aussie ground again. Really looking forward to it and I promise, I will keep you all up to date as we go via FB. For those who are not friends with me there, if you want to, send me a friend request. My full name is Christine Bout, and I went to school at St Mark's in Port Pirie SA.
Trish I'm so glad you are getting that much needed break and you have no need to travel.
Lucy, wrapping presents is a right pain in the proverbial for sure.
Well, the book has been written and it's probably taken you ages to get through it......lol. I just want to say to each and every one of you, thank you for your friendship and thank you for being part of this group ........I value you all much more than words can ever express. I hope you all have a wonderful Christmas how ever you celebrate it.
Love n hugs as always. Chrissy
Dec 22, 2018 08:58PM chrissyb wrote:
Merry Christmas to all the Aussies on BCO. May this season bring you joy and happiness and allow you to forget about cancer for a day or two. May the New Year bring with it a promise of better days and better health for all.
Love n hugs. Chrissy
Dec 22, 2018 09:25PM Wildplaces wrote:
Wishing everyone of you a Merry Christmas - much joy and health in 2019!
Thank you dor all your support and kindness this year.
No,not mine but about to bake some ginger bread cookies!!
Hugs to all,
Dec 24, 2018 08:49AM aussie12 wrote:
Merry Christmas everyone and best wishes for the new year. Thankyou all for your support again this year.