A 7-year BC survivor, I've developed an autoimmune disease that so far has not been clearly diagnosed: different docs say different things: Rheumatic arthritis; psoriatric arthritis, testing positive for lupus without the typical symptoms ... My symptoms are a progressive eczema on my hands: skin thickening, itchy then peeling. Swollen & red knuckles, intermittently similar symptoms on my other joints.
My doctors are mostly useless - thus far. Onc / BS not interested: see someone else: PCP or dermatologist or rheumatologist or ...
PCP is helpless and big eyed: see dermatologist.
Dermatologist has now for 2 years tried every cortisone ointment to no avail and has no other suggestions.
My suggestion that this is systemic and perhaps related to the BC, and the two skin cancers (SCC & melanoma) I developed since then is pooh-pooed. Each is an isolated incidence they say.
I don't believe it.
4 questions (perhaps we can have a survey of sorts):
1. How many of you do have both: BC and an autoimmune disease? What kind of autoimmune disease? Which came first BC or AD?
2. Do you know of any good research on the topic?
3. What steps or tests to take?
4. Do you have a recommendation for a good doctor in Southern California to address this issue?
Oncotype score: 1; BRCA neg; bilat bc & bilat mx w recon;
5/30/2008, IDC, <1cm, Stage IB, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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