Nov 20, 2021 04:32AM Sabbymama wrote:
I'm so sorry that you and your wife are facing this difficult decision. From my personal experience, it took about 5 weeks to get my Oncotype score back, which was super frustrating since I was initially told it would take 2 weeks. I also had IDC/DCIS, but with 4+ lymph nodes (3 micrometastases and one micrometastasis). My tumor was grade 2, KI-67 of 10%, and a low Oncotype of only 12. However, due to the 7cm size of my tumor, my age (50 at time of diagnosis), and the number of lymph nodes involved, my oncologist felt that chemotherapy was necessary and I reluctantly agreed at the time. I also had radiation therapy upon completion of the chemo based solely on the number of lymph nodes and the LVI/ENE involved. My rad oncologist said if I had less than 3, he wouldn't necessarily recommend it, but in my case, he thought it prudent.
If I'm being honest, I don't regret my decision to throw every possible treatment at this cancer. Chemo was tough, but I hope it worked. I'm on hormone blockers for the next 10 years. Ultimately I still worry that it has spread and I lose sleep most nights with worry, but at least I know that I have done everything medically possible to halt its progression and that is somewhat comforting. Given her intermediate Ki-67 scores and the fairly aggressive nature of her tumor, they may recommend chemo and that is a tough decision to make. If your wife is lucky enough to have a caring husband there to support her through the difficulties of chemotherapy, she will do well and recover better. Whatever happens, having you by her side through makes all these changes easier to deal with. Should she choose to pursue chemo, joining one of the chemo support groups on these community boards is a real lifesaver too. They are so informative and it is so helpful to have others at the same point of their journey to chat with. Best of luck to you both!