Topic: How do you know if treatment worked?

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis —

Posted on: Jan 1, 2022 12:59PM - edited Jan 7, 2022 07:48AM by jeet

Posted on: Jan 1, 2022 12:59PM - edited Jan 7, 2022 07:48AM by jeet

jeet wrote:

This Post was deleted by jeet.
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Jan 1, 2022 07:31PM minustwo wrote:

I have sent a PM to the MODS to see if they can successfully move this to a new topic & asked that they let everyone here know.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jan 1, 2022 07:42PM calinana4 wrote:

Jeet,

My cousin pushed for treatment confirmation also so her oncologist had her take the Natera Signatera test, which showed no active cancer cells (she was triple negative). I’ve requested this test also but since I’m ER+, my oncologist isn’t receptive to the idea. She said test is fairly new and unclear what would be done if cancer cells were detected since my hormone blocker’s job is to kill any remaining cancer cells. Also, excessive chemo can lead to leukemia. I’m going to have faith that the Anastrozole is working

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Jan 1, 2022 07:46PM mountainmia wrote:

It looks like the Signatera test is being used primarily within trials. I'm surprised your cousin was able to access it.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Jan 1, 2022 08:10PM - edited Jan 1, 2022 08:11PM by parakeetsrule

And how would they know how accurate the test is without several decades of follow up and comparison to a test group?

Stage 2 at 37, Stage 4 at 41. Cancer is dumb. Cookies are good. Dx 3/21/2017, IDC, Left, Grade 2, ER+/PR-, HER2- Chemotherapy 5/15/2017 AC + T (Taxol) Hormonal Therapy 12/8/2021 Faslodex (fulvestrant) Targeted Therapy 12/13/2021 Piqray (alpelisib) Dx IDC, Other, Stage IV, ER+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal (Left); Mastectomy (Left) Radiation Therapy Whole breast: Lymph nodes, Chest wall
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Jan 1, 2022 10:10PM - edited Jan 2, 2022 10:54AM by calinana4

MountainMia,

I called the test company direct to ask some questions and it is available as long as doctor submits the request.

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Jan 1, 2022 10:27PM voraciousreader wrote:

several years ago, while doing mri imaging for my right knee replacement surgery, there was an incidental finding of a 5 cm tumor in my left thigh. So, there I was, worrying about a breast cancer recurrence and had this new tumor that I didn’t feel or see or know about until I needed hip surgery. So….off I went to an surgical oncology orthopedist. My right hip replacement was delayed until my left thigh tumor was removed and biopsied. Luckily, it was a benign myxoma.


bottom line….you can worry about one thing and then get hit by another. Living gives us no guarantees…..or warranties. That said, the wonder of life is that we are all born with the ability to be resilient. Tap into it and treat yourself gently and let life unfold…. you might pleasantly surprise yourself at what you might discover while living….


i am coming up on a dozen years since being diagnosed. What I have discovered in those years is that for the majority of us, breast cancer is a treatable disease. My best advise…buy a pair of comfortable shoes.


carpe diem!

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Jan 1, 2022 10:53PM serendipity09 wrote:

I felt the same as you after I finished chemo and had my BMX, I wanted to know how would we know if it came back. There was no reason to have any scans or MRI as I had just completed tx. I too felt it was unacceptable. Came here and was schooled on how it all worked. Unfortunately, I was one of those on the "wrong end of the random-shitty-luck stick" when I was diagnosed with a recurrence, thank goodness is it was local. Did radiation and shortly after had another scare, scans and biopsy; everything came back negative. Now I just try to take things one day at a time. There's not too much to enjoy socially with covid running amok here, but I dod what I can. I was in constant fear, every freckle, every blemish caused me anxiety. I'm currently on Xeloda and hoping it's doing it's job, but I won't allow the beast consume all of me anymore, that is my NY resolution.

We don't know what cards we are going to be dealt, but this beast and covid have taken two years of my life. I'm going to start living as best, and carefully, as I can to enjoy life as much as I can.

Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 11/3/2020 Xeloda (capecitabine) Surgery 7/9/2021 Reconstruction (Left); Reconstruction (Right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall
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Jan 2, 2022 04:22AM alicebastable wrote:

The downside of, for instance, CT scans to get a detailed look what's going on is that other things also show up! From one pre-op chest scan before my lumpectomy I found out I had kidney cancer (since removed) and an aneurysm (under surveillance). The kidney cancer means follow-up scans, so on those they've found another aneurysm, a swollen spleen, a fatty liver, nodes in my lungs that are followed by more scans... and I'm sure I'm forgetting a few items. Oh, and a few questionable scans led to needing PET scans, and one of those led to a biopsy (benign). It is NOT a fun way to live, wondering what the hell will show up next and trying to keep track of what's been found. And the contrast dye isn't all that great for our health. If you get additional testing, what if it leads to living scan to scan like some of us do? I don't recommend it as a lifestyle.

Ignore treatment info (below) which is a BCO glitch. Do not enter personal information on this site since they grossly mishandled a data breach. Surgery 7/11/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole breast: Breast, Lymph nodes
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Jan 2, 2022 11:00AM calinana4 wrote:

Voraciousreader,

Love your post! That’s how I plan to live post treatment life. Happy 2022

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Jan 2, 2022 02:06PM - edited Jan 3, 2022 12:23PM by mountainmia

Signatera blood tests, patient information link -- looks like this might be a good option in limited circumstances.

https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/

The rain comes and the rain goes, but the mountain remains. I am the mountain.

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