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Breaking Research News on Practical Matters and Breast Cancer
Breaking Research News on Practical, Day-to-Day Matters and Breast Cancer
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Side effects of coming off Tamoxifen?
I finished my course of Tamoxifen and few weeks ago (yay!) and just ended my first post-Tamoxifen period. Now I'm having some abnormal discharge, and also there's what looks like a pimple in my healthy breast. I have a doctor appointment to get it checked out, but while I'm waiting has anyone had weird stuff happen while…
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Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Hey Everyone, Here is a place to keep sharing between meetups. Warmly, The Mods
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Struggling
I was diagnosed in 8/2022. Not 100% sure of Stage, 1) because the whole Stage thing causes me additional anxiety and 2) I had Neoadjuvant chemo so I think the “official stage” is the one after chemotherapy. I think my final staging was IIA but not sure. Anyway, in left breast I had intermediate IDC ER/PR +; HER 2 negative…
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Life altering perception
Since I was diagnosed I have absolutely had my perceptions change. I see life completely different. Things I let slide by are now things I want to get rid of. I've noticed I've cut a lot of people out of my life since this. I feel like I love the people close to me more and am more accepting of their perceived "flaws".…
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My Update—6 years post diagnosis
Hi Friends: I thought I’d post a update on myself 6 1/2 years after my stage 1, grade 1 Invasive Ductal Carcinoma diagnosis. I chose to only have surgery. I did not go on hormone blocking drugs. I chose not to have radiation. I’m doing very well! What was my treatment plan post cancer? I try to eat as plant based as I can.…
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Medicare Brokers
Charlene, I spoke with my girlfriend and she IS licensed in Pennsylvania (it's where she is originally from). She'd love to help you out. Let me know if you're interested. I can give you her info. Jodi
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Moved: Caring for a loved one/friend
This discussion has been moved.
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Sudden left side numbness, negative for stroke
hi friends. I’m a three year cancer survivor trying to navigate life after my cancer and the death of my sister from ovarian cancer. Long story short I was driving my kids when I experienced left lip numbness, left thumb numbness then my entire left leg went numb. Like pins and needles. And it felt swollen but wasn’t.…
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Survivor of 4 separate cancers
Hi, all. I have had 4 separate cancers over 26 years. My "journey" began in 1997 when breast cancer (Stage 1 ER -) was found on my 2nd annual mammogram at the age of 42. I went through a lumpectomy that left me with an infection that lasted for 2+ years. I then had radiation and my 1st chemo. Five years later, I was…
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Great article in newsletter
Kate!!!! Your story was amazing in the newsletter. Thank you for putting your story into words. 💗
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Torso sensitivity
I posted about this 5 years ago, and never received a response from anyone who could relate. I hoped I'd "outgrow" this sensation, but that's not the case. So I'm circling back now, after discussing this at my annual check-up. Has anyone experienced hyper-sensitivity after a double mastectomy? Specifically, along the bra…
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How has your BC experience changed you
We want to hear about how your experience of BC has changed you and how/in what ways is your life different now. Have you made lifestyle, relationship, work changes?
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When To End Relationship with your Oncologist?
Hello friends. I was diagnosed in 2014 with early stage BC. I had a lumpectomy followed by 6 weeks radiation. I then received tamoxifen for a few years followed by letrozole, for a combined total of 8 years, completing therapy in 2021. I was wondering if I should continue to see my oncologist for annual visits even if I…
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Women Treated for Breast Cancer Seem To Age Faster
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The Ups and Downs of the Transition Phase
Someone wrote recently that she wished she still had breast cancer because her life now is more difficult than it was when she was going through chemo. Her job is more demanding and now she lacks the support she had while in active treatment. I want NOTHING to do with my reconstructed breasts or anything breast related,…
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Anyone else feel good, like they don't have cancer?
Don't get me wrong, I know I do, I felt the lump and saw the breast and bone biopsy results but I feel fine, always have. I've been very lucky to have completed my first year and treatments with minimal SE's but I often feel guilty that so many others of varying stages struggle, it isn't what I expected when diagnosed…
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Life during breast cancer.
Hi. I was dx'd with metastatic lobular carcinoma in 2018. I had gone to a dermatologist because of a sore on my thigh. Turns out it was positive for MBC. I saw an Oncologist , and was informed it was stage 4 terminal. So I was on Ibrance for 4 years, and was doing well. But then my cancer markers started to go up. But not…
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Interesting conversation with RO concerning follow up
So had a 6 month appt with RO which honestly I’m not sure why but in the back of my head I thought she would just say looks good, have a nice life 🤪. So at the end as we were discussing when I was seeing the BS and MO again (in December), she told me the “plan” was her to follow me for the next two years but since the BS…
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Annoying health ads online
Does anyone else find those clickbait health-scare 'ads' on the internet upsetting? I just bumped into one on my Fac*bo*k feed -- 'Nine things not to say to Metastatic Breast Cancer patients'. It raised my stress level and annoyed me; last thing I felt like experiencing on a Sunday. I know the human brain is wired to look…
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Mara’s inspiring story.
Mara is a BCO champion with an inspiring story. She has graciously agreed to share her journey: https://advancedbreastcancer.net/living/mara-interview
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Well HEREs a freaky story...
Our new puppy gifted me with a flea bite on my right hand (my right arm being devoid of 20 lymph nodes, mind you) which within days turned into cellulitis. A couple of days later, my fake right hip started hurting. Since artificial joints are magnets for infection, I of course immediately assumed the worst. 10 days on…
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Beauty products: Hair Dye? Sunscreen? Face products/retinol?
I'm far from being done with treatment - waiting on 2nd set of scans (MRI, bilateral mammo) after consulting radiologist saw extra stuff on my original imaging, joy - but I'm trying to build a plan NOW for "after treatment" since I'm a big long-term planner and it calms my anxiety to be able to make little plans for the…
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Mammogram frequency after cancer
What have you heard or experienced about this... My oncologist will not allow me an 18 month after breast cancer mammogram , yet aren't you supposed to get mammos every six months for the first two years? If so, does anyone know a way to get one without an onco referral? thank you!
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Diagnosed/treated 2018 -- Sharing our "what's next"
As this year is drawing to a close, thought it would be helpful to have a place to keep in contact as we move forward. Personally I have found tremendous help here and am interested in how everyone is doing.
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Worried about everything! Feel guilty anyone else
Hello ladies. I am two weeks away from completing all my big treatments. I am happy about it and scared at the same time. Does anyone else besides me always have in the back of your mind : I have to eat different, I should not have had those three drinks ( I am not a huge drinker just usually a glass of wine here or there…
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Stop Smoking Support Thread
Some of us will, some of us won't, but it's an ugly beast to try to tackle alone. I think I'd rather have cancer than quit. Sadly, I can't quit cancer. Dunno if I can quit smoking or not, but I just read a study that says smoking (nicotine) interferes with and blocks chemo by 61%.…
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How do you know if treatment worked?
Hi Everyone, I was first diagnosed with DCIS in 11/2019. Had a lumpectomy 1/2020. First followup mammogram indicated cancer again and I had a second lumpectomy 5/2021 followed by chemo, radiation and IV treatment for HER2+ cancer (2nd lumpectomy indicated HER2+). I keep asking my oncologist how do I know if this is working…
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2014 DX at 31 checking in... ER+PR+ Her2+
June 19th 2014 I was DX with a 1.7cm Triple positive breast CA. I chose a bilateral MX and requested to keep my nipples, despite them being breast tissue. I chose this because I refuse to do radiation because it was on my L side directly near my heart. Nope..Also, RADS would affect my cosmetic outcome and I am vain. Was…
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2017 Diagnosed-- A Place To Share "Whats Next"
thought I would start this thread to give those who were diagnosed in 2017 or underwent treatments in 2017 a common place to share our lives and adventures Welcome to all. Together we can learn from each other, lean on each other, and celebrate the good moments in life