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All TopicsForum: Biographies and Inspiring Stories → Topic: Could lymph node positive survivors share their story?

Topic: Could lymph node positive survivors share their story?

Forum: Biographies and Inspiring Stories —

Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Apr 24, 2011 12:41AM

Rachel1 wrote:

I was dx in May 2010 with IDC stage 2, grade 3, BRCA2+, ER+ with 7 positive nodes. I would like to hear from long term survivors as this has been a very scary journey. Thank you so much!!!

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Posts 91 - 105 (105 total)

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Dec 5, 2012 11:27PM susan3 wrote:

finished first round of taxol yeahhhh, get a break next week :)

Live and love fully Dx 3/2001, IDC, Stage IV, Grade 3, 40/5 nodes, ER+/PR-, HER2- Surgery 3/11/2001 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Chemotherapy 3/28/2002 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Doxil (doxorubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Gemzar (gemcitabine), Halaven (eribulin), Methotrexate (Amethopterin, Mexate, Folex), Taxol (paclitaxel), Taxotere (docetaxel), Xeloda (capecitabine)
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Dec 6, 2012 01:53AM - edited Dec 6, 2012 02:02AM by Mimidi

Rachel I was dx 11-11-10.  Not a long term survivor but I am survivor.  Since I finished all my treatmments everything still looking good.  I got back in January for scans and some other tests.  I have to have a mammogram this Friday.

The picture was made at Orange Beach, Alabama Oct., 2011. A friend took me down to take part in the World of Wacky Women's Walk for Ovarian Cancer.  I was 4 months post chemo.  I did manage to walk a mile.  It was so cold with the wind blowing off the gulf.  Came home sick.   

Dx 11/11/2010, IDC, 4cm, Stage IIIA, Grade 3, 4/18 nodes, ER+/PR+, HER2- Surgery 11/17/2010 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 1/13/2011 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 7/6/2011 Breast, Lymph nodes Hormonal Therapy 8/1/2011 Femara (letrozole)
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Dec 18, 2012 11:18AM - edited Dec 18, 2012 11:41AM by Kheng

Hi Susan!
Most oncologists assured 10 years without recurrence for ER+
Paclitaxel don't really work on ER+ cancer cells, as I read from UK latest research in February 2012!
To prevent neuropathy from taxol, you should consult TCM Oncologist and take herbal medicines, 72 hours after chemotherapy!
A lady oncologist Yap Voon Sim had succeeded a new trial on her stage 4 patient in Singapore KKH!
Lingzhi cracked spores can stop the ER kappa signals !
You could do the research from NIH website
I had 12 weekly paclitaxel with Traditional Chinese Herbal drink, 3 days after chemotherapy!
My toenails turn purple and dropped off!
It takes nine months to renew the mother toe nail



Take care and God bless!
Merry Christmas!



DX 7/2011, ER+, stage 3, Grade 3, 8/18 nodes AC x 2 cycles ; paclitaxel x 12 weekly Radiation : 50 grays Arimidex - 1 mg
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Dec 18, 2012 11:34AM Hortense wrote:

Kheng - I'm sorry you had to lose your nails. It's a pity someone didn't tell you that icing toenails prevents nail damage or loss during chemotherapy. Same with finger nails. I iced both and have had no problems at all. It is said to prevent nerve damage as well.

Cold Cap user - kept my hair Dx 1/24/2012, IDC, 1cm, Stage II, Grade 2, 2/2 nodes, ER+/PR+, HER2- Surgery 2/29/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 5/8/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/24/2012 Breast Hormonal Therapy 10/16/2012 Arimidex (anastrozole)
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Apr 22, 2013 04:12AM Gai wrote:

Hi ladies

I thought I would come back again and follow up on your questions

Hmmmm I was 38 when I was diagnosed and I am now happily 51. Laughing 

I was on Tamoxifan for 4 years after the chemo finished.

Lifestyle changes

I really stepped into Meditation in a huge way.  I never thought I would be able to but I meditated every day and all the way through my chemo visits.  It was a huge support for me during that time and even more important to me now.

When chemo finished I started practicing yoga and got up at 5.30am every morning to practice before heading off to work.   I still lurve yoga and generally do it everyday - although I have been a bit slack of late!

I was extremely fit prior to diagnosis but as a result worked to cut stress out of my life.  That included a divorce, stepping out of a senior corporate role a few years later and living my life for me instead of living it for others.  I found stepping into the right mindset enabled me to step past merely surviving cancer and into a life I love. 

One of the most fun thing I did was visit with a traditional healer in Bali a few years back (not Ketut Liyer).  He is an amazing man and I visit with him each time I am in Bali.  His advice the first time I visited was to look in the mirror, smile, grab my smile and swallow it - amazing how much difference it made.  

Food


Now I eat organic as much as possible.  I didn't so much back then as there wasn't that available.  I did juice a lot and researched and ate a balanced eating diet.  I did have wine though - not a huge amount and I barely drink anymore.  

Nowdays

I wanted to do more for survivors so now I am creating resources for others to help them thrive as well and I am drafting out a book at the moment! Stayed tuned

Stay well, 

Love Gai

Website gaicomans.com Providing An Avenue For Breast Cancer Survivors To Thrive And Grow Radiation Therapy 3/31/2000 Breast, Lymph nodes Dx 11/14/2000, 1cm, Grade 3, 18/21 nodes, ER+/PR-, HER2+ Surgery 11/15/2000 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 11/30/2000 Cytoxan (cyclophosphamide), Doxil (doxorubicin) Chemotherapy 11/30/2000 CMF Hormonal Therapy 9/30/2001
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Apr 30, 2013 02:43PM bluepearl wrote:

My friend was stage 2, one positive node and only had surgery....nothing else....and is in her 6th year of survivorship and NED!

Dx 1/6/2011, IDC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/12/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 2/2013, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/10/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Hormonal Therapy 3/18/2013
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Oct 18, 2014 01:14PM Tinkerbells wrote:

bump

Never bring a knife to a gunfight. Dx 2/25/2014, IDC, 1cm, Stage IIA, Grade 3, 1/2 nodes, ER-/PR-, HER2+ Dx 2/25/2014, DCIS, Grade 3, ER-/PR-, HER2+ Surgery 3/1/2014 Mastectomy: Left, Right Chemotherapy 4/10/2014 AC Targeted Therapy 6/1/2014 Herceptin (trastuzumab) Targeted Therapy 6/1/2014 Perjeta (pertuzumab) Chemotherapy 6/1/2014 Taxol (paclitaxel)
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Dec 30, 2014 11:25PM HomeMom wrote:

bump again

Dx 3/31/2014, IDC, 2cm, Stage IIB, Grade 1, 3/29 nodes, ER+/PR+, HER2- Surgery 4/14/2014 Lumpectomy: Left Surgery 5/5/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 5/29/2014 AC Chemotherapy 7/24/2014 Taxol (paclitaxel) Radiation Therapy 10/15/2014 Hormonal Therapy 12/14/2014 Arimidex (anastrozole)
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Jan 28, 2015 08:39AM Tinkerbells wrote:

bump

Never bring a knife to a gunfight. Dx 2/25/2014, IDC, 1cm, Stage IIA, Grade 3, 1/2 nodes, ER-/PR-, HER2+ Dx 2/25/2014, DCIS, Grade 3, ER-/PR-, HER2+ Surgery 3/1/2014 Mastectomy: Left, Right Chemotherapy 4/10/2014 AC Targeted Therapy 6/1/2014 Herceptin (trastuzumab) Targeted Therapy 6/1/2014 Perjeta (pertuzumab) Chemotherapy 6/1/2014 Taxol (paclitaxel)
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Jan 28, 2015 09:27PM - edited Jan 28, 2015 09:28PM by Curlylocks

I am a 9 year survivor of Er/pr+ bc, disgnosed at 41 in 2005. I had a 4 cm tumour, 3 positives nodes, grade 3 tumour. My treatment was a left breast lumpectomy, 23 lymph nodes removed, 6 months of chemo 4a/c and 4 taxol. I did radiation for 5 weeks, went on Zoladex injections for 1.5 years post chemo as oncologist wanted me on Armidex. I had my ovaries removed at age 44 in 2008.

I unfortunately had a new Primary bc diagnosed in the same affected breast after being cancer free for 8 years. This cancer was discovered via the pathology from what was suppose to be a "prophylatic mascetomy" with DIEP reconstruction in Dec 2013. I had the surgery as my little voice was screaming to do it. I have/had 2 sisters diagnosed with bc in 201o and 2013. Sadly my youngest sister passed away from it in 2012.

I was Triple Negative with my 2nd diagnosis. Luckily my tumour was 8mm but I still had to do chemo again...4 rounds of Taxotere and Cytoxan.

Moving on again from this beast and enjoying life!

Hugs to all us survivors:)

Michele
Dx 10/23/2005, IDC, 4cm, Stage IIB, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 11/8/2005 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 12/4/2005 AC + T (Taxol) Hormonal Therapy 4/30/2006 Arimidex (anastrozole) Radiation Therapy 5/31/2006 Breast Surgery 5/2/2008 Prophylactic ovary removal Surgery 12/15/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 1/9/2014, IDC, <1cm, Grade 1, ER-/PR-, HER2- Chemotherapy 2/10/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 23, 2015 01:18PM - edited Feb 23, 2015 07:20PM by Moderators

thanks for sharing Michele

Dx 6/24/2011, IDC, 1cm, Stage IIIA, Grade 2, 11/18 nodes, ER+/PR-, HER2+ Surgery 7/4/2011 Lumpectomy: Right Surgery 8/4/2011 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 9/20/2011 Taxotere (docetaxel) Targeted Therapy 1/5/2012 Herceptin (trastuzumab) Surgery 3/9/2012 Mastectomy: Right Radiation Therapy 4/24/2012 Breast, Lymph nodes Surgery Mastectomy: Left; Prophylactic mastectomy: Left; Reconstruction (right): Latissimus dorsi flap, Tissue expander placement
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Feb 23, 2015 02:52PM happygran wrote:

Hi

I was dx in 2008 with 3 out of 24 nodes involved, grade 3 etc etc...........I'm still here enjoying life,,,,,,,no problems ( a few scares but nothing really)..........still waiting for the other shoe to drop.....hopefully it never does......

Off to Spain for 2 weeks tomorrow...............

Dx 5/2/2008, IDC, 3cm, Stage IIB, Grade 3, 3/24 nodes, ER+/PR+, HER2- Surgery 6/9/2008 Lumpectomy: Right Chemotherapy 7/20/2008 Ellence (epirubicin), Xeloda (capecitabine) Hormonal Therapy 1/1/2009 Femara (letrozole) Radiation Therapy 1/2/2009 Breast Dx 9/3/2015, Stage IV
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Dec 1, 2016 08:37AM stephilosphy00 wrote:

Bump!!!

Dx at 29. Original mass 2.5 cm. Biopsy MRI and PET/CT confirmed 1 node involved. Ki-67 score 7.5%. ER100% PR100%. Genetic testing negative. Restaged to stage IIA post surgery. Chose to do 6 cycles of Xeloda to prevent recurrence!! Dx 11/9/2016, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Chemotherapy 11/17/2016 AC + T (Taxol) Surgery 5/10/2017 Lymph node removal: Sentinel; Mastectomy: Left Hormonal Therapy 5/20/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/10/2017 Aromasin (exemestane) Radiation Therapy 7/11/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 4/3/2018 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Zoladex (goserelin)
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Jun 6, 2017 11:06PM Lissee wrote:

all , diagnosis icd IIA, one positive node. 2009.

To say I was shocked and devastated is the understatement of my life. Now here I am 8 years later, no re occurrence , and bc comes to mind on occasion. It's been a road of mountain and valleys, twist and turns, highs and lows.

I plan on being around to meet all of my grandkids and possible a few great grand babies.

My best advice - Take control and make recovery happen. Healthcare providers are just one tool available for you to achieve recovery. You're the driving force in getting it done. Be good to yourself first and everyone else next. 👍😎





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Apr 29, 2018 04:53PM Lou789 wrote:

diagnosed april 2013 was 5 years clear last week 5 positive nodes x

Dx 4/19/2013, IDC, 3cm, Stage IIB, Grade 2, 5/11 nodes, ER+, HER2-

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