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moderators
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Sep 6, 2019 01:10PM
moderators
wrote:
Hi Johnny, and welcome to Breastcancer.org!
We're so very sorry to hear of all of your struggles with breast and lung cancer -- you've definitely been through it! We're so glad you've joined us, though we hate the reasons that bring you here. You're sure to find our Community an incredible source of information, advice, and support -- we're all here for you!
Others will surely be by to welcome you soon, as we have a small but very helpful group of men among us. Lots of very supportive women as well!
We are sending good thoughts for a speedy recovery! Please let us know if you need any help at all while you navigate our Community.
--The Mods
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elainetherese
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Sep 6, 2019 01:59PM
elainetherese
wrote:
Hi Johnny!
I hope Traveltext or one of our other male breast cancer survivors stops by, but I'd like to welcome you to BCO! Hope your recovery goes well!
DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year
Chemotherapy
7/23/2014 AC
Targeted Therapy
9/17/2014 Perjeta (pertuzumab)
Targeted Therapy
9/17/2014 Herceptin (trastuzumab)
Chemotherapy
9/17/2014 Taxol (paclitaxel)
Surgery
1/12/2015 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Underarm/Axillary
Hormonal Therapy
2/25/2015 Aromasin (exemestane), Zoladex (goserelin)
Radiation Therapy
3/9/2015 Breast, Lymph nodes
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trishyla
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Sep 6, 2019 02:57PM
trishyla
wrote:
So sorry you have to be here, Johnny, but glad you found us. There are so few resources for men with breast cancer. I hope you are able to get the support and care you need.
I'll echo what Elaine Therese said about Traveltext. He's a great guy, Australian I believe, who advocates for better care for men with breast cancer. He'd be a good person for you to connect with. I don't think he'd mind if you sent him a private message.
Best wishes for successful treatment.
Trish
Dx
8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2-
Dx
8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Dx
9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2-
Chemotherapy
9/28/2016 AC + T (Taxol)
Surgery
4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
Chemotherapy
8/5/2017 Xeloda (capecitabine)
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traveltext
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Sep 7, 2019 05:54AM
traveltext
wrote:
Johnnybgood, welcome to BCO, everyone is so helpful here. The lung cancer was a double whammy, so I guess the second primary bc is a triple whammy! Sorry to hear about your latest diagnosis, but pleased that treatment has begun. Apart from the second mastectomy, would be having chemo or radiation this time? Also, were you prescribed Tamoxifen after the first diagnosis? Finally, do you know the type and grade of the two breast cancers?
Lots of questions, but establishing these facts helps us give you advice and support that is based on what we’ve all been through. Keep us posted.
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
Hormonal Therapy
Surgery
Surgery
Surgery
Surgery
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Johnnybgood
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Sep 7, 2019 06:20AM
- edited
Sep 7, 2019 06:34AM
by
Johnnybgood
Hi travelltext thanks for you response.My first BC was in 2010 it was a stage two as it has reached the lymph nodes underarm.There was no chemo but 20 rads.This involved a round trip of 60 miles each day.it is likely that it is cured. The current bc was discovered after a routine mamogram about 5 weeks ago its very small just 4mm i. don't yet no what final treatment will be as they took lymph node biopsies and will get those results in 10 days. I took tamoxifen for 9 years.I have been a " someone like you" volunteer with Breastcancercare,co.uk I was well trained for it.The Lung cvancer is a small cell Lc for which I received Chemoradiation which made me very ill and I lost four and a half stone.I have been in remission for four years now and still cheerful which is my natural state.
Hope that helps
John
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traveltext
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Sep 7, 2019 06:50AM
traveltext
wrote:
John, I’m assuming you were ER/HR positive the first time around, hence the tamoxifen. Certainly, you’re lucky to have a second primary rather than a metastatic recurrence, and I’m interested, no doubt like you are, to find out the stage, grade and tumour type of the new primary. This will determine what extra treatment you might have.
Meanwhile, you might like to check out the Male Breast Cancer Coalition website here:
https://malebreastcancercoalition.org/survivor-stories/
Good on you for volunteering with BCC. Have you met some men with this disease yet?
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
Hormonal Therapy
Surgery
Surgery
Surgery
Surgery
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mswife
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May 11, 2021 10:54AM
mswife
wrote:
Just wanted to add myself on here - my husband was diagnosed about 8 weeks ago and has had a mastectomy and started chemo. Happy to answer any questions people might have! I have read a lot of travel text' posts and he is a great resource!
A member to gather info for my husband ❤️ Dx 03/2021 IDC 2.6 cm, stage IIIA, nodes ‘undetermined’ (matted), grade 1, ER+/PR+, HER2 -
Dx
3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, ER+/PR+, HER2-
Surgery
3/25/2021 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left)
Chemotherapy
4/26/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
Whole breast: Breast, Lymph nodes, Chest wall
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traveltext
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May 12, 2021 01:46AM
traveltext
wrote:
Thanks MSwife. I'm here for you and hubby, so feel free to DM me with any questions. How's the chemo coming along?
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
Hormonal Therapy
Surgery
Surgery
Surgery
Surgery
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mswife
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May 12, 2021 10:29AM
mswife
wrote:
He’s had a rough couple of days, he’s just 6 days out from his first treatment (and I hear he might feel worse with future chemo dates??)
He felt great the first few days. He is really not used to feeling unwell, but I’m hoping things improve later this week. Lots of joint and bone pain (he’s on filgrastim injections and Claritin seems to be helping).
I’ll for sure let you know if we have any other questions!
Mandy
A member to gather info for my husband ❤️ Dx 03/2021 IDC 2.6 cm, stage IIIA, nodes ‘undetermined’ (matted), grade 1, ER+/PR+, HER2 -
Dx
3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, ER+/PR+, HER2-
Surgery
3/25/2021 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left)
Chemotherapy
4/26/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
Whole breast: Breast, Lymph nodes, Chest wall
L
livinlife
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Aug 2020
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Mar 15, 2022
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May 12, 2021 03:28PM
livinlife
wrote:
Want to welcome you Johnny and MSWife! Glad Traveltext chimed in already - so helpful, as well as others' support and feedback.
with expansive comedo necrosis & weak ER/PR
Dx
7/2020, DCIS, Left, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+
Surgery
8/30/2020 Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right)