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Jan 11, 2017 12:23AM
The natural supplement is something I had to research myself; because I can not handle SE of most Rx meds. I will say that the itching is more manageable, which is a small fiber sensory neuropathy that I have acquired. I do not have so much of the burning and shock like pain that I had.
Your dr will not tell you about this, unless he is a Naturo Path Dr; I just learned Conventional Drs have been taught symptom control with diseases not a cure.
I went to a neurologist and had the Nerve Conduction Study, and it did not confirm that I had neuropathy, but with their evaluation tests that they did that was the only way it was comfirmed. She tried Cymbalta, but did not work. Gave me a pain dr referral that all care was not covered.
So, I asked a friend who she went to. I called that dr up, they did their testing and said I had chemo induced polyneuropathy. This means more than just one set of nerves involved.
Tried Lyrica again and it gave me a reaction. Then they gave me Nucyanta ER, pain med. When they tried to imcrease it it just drugged me up. Besides that I had to drive to 8 different pharmacies to find that particular low dose of that drug. I felt too much stress going there so I canceled my last appt and never returned. The only supplement the pain dr gave me was Metanax, but the Ins stopped covering it, because it was not a rx drug. I felt some energy from it, but it was for only two months
I only went about four months, and quickly saw that these people were not ever going to get better. I only saw the actually dr once and then the CNP handles it from there. All they wanted to do is give me narcotics, and I was not wanting to live like that.
They give you a drug screen every other time. They may call you anytime and request you bring in the pills and count them. This is a random call, and usually a extra visit. You do not get refills called in. If you have problems with the meds, it requires another office visit, to get it taken care of.
I just did not like the whole system. I was treated like a number and not with dignity.
This was my experience, maybe yours will be positive. My mom told me something, before God took her 2014, they give you one medicine for a condition, and they have to give you another for the side effects of the first med. She was absolutely right. That has been my experience, and I am not going that route.
I can relate to pure exhaustion and insomina or sleep issues. That is all I have ever known since my 20's. They can't figure that out either. Did sleep study and did not detect the reason why?
I take Vervain for sleep.
Having chemo has messed me up in so many ways. I just hate it.
7/21/2014 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
7/22/2014, IDC, Right, 2cm, Stage IIB, Grade 2, ER+/PR+, HER2-
7/30/2014 Lymph node removal: Underarm/Axillary; Mastectomy
9/2/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
4/12/2015 Whole-breast: Breast, Lymph nodes, Chest wall