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Topic: Chemo induced Neuropathy

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Sep 7, 2020 09:18PM

stokerfan wrote:

After my last treatment of chemo I ended up getting chemo induced neuropathy. After a while it went away. Now I think it is back again. Is this normal? My last treatment was on August 11th. Also, can it be just in part of you foot/feet? Mine are just in a few of my toes. Thanks

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Sep 7, 2020 09:52PM moth wrote:

Mine didn't come and go but it gets worse in cold. Have you been having cooler weather by any chance?
Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Sep 8, 2020 04:01AM Spookiesmom wrote:

Sorry, mine isn’t bad it’s up to my knees, it never goes away.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Sep 8, 2020 09:45PM MinusTwo wrote:

stoker - Yes, one toe, many, feet, up your legs, fingers, hands..... I went to a neurologist several times. She said it's possible it would get better over a couple of years. Qualifying that better means 'better' than the worst it was, but never back to where you were before the damage. I'm 7 years out. My fingers got enough feeling back to manage most things. My feet are totally dead - blocks of ice. Sometimes it creeps up my calves. The worst part is I have no balance to stand on one foot.

Many people have intense pain. I'm grateful that I do not. There are prescriptions for pain, but no other proven treatments. Some people try acupuncture but I've never heard a real success story.

I recommend the following thread. Lots of tips & ideas - heartbreak & hope.

https://community.breastcancer.org/forum/69/topics...


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 9, 2020 06:03AM Ingerp wrote:

Mine was really only on the bottoms of my feet, and definitely came and went. It was pretty much gone by about a year PFC.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/18/2018 Taxol (paclitaxel) Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Radiation Therapy 8/20/2018 Whole-breast: Breast
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Oct 31, 2020 01:43PM Nsbrown54 wrote:

I’m finding not wearing shoes helps with neuropathy discomfort. Maybe it’s because my feet swell as the day wears in. Any suggestions on socks that help with pain? I’m using OTC cream, just need to use it more frequently

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Oct 31, 2020 02:14PM MinusTwo wrote:

NsBrown - I'm going to recommend this comprehensive thread again. Seventy-five pages of good advice.

https://community.breastcancer.org/forum/69/topics...

You can buy diabetic socks that are looser. I can't go barefoot anymore because the contact bothers the ball of my foot unless I'm on a very soft carpet.


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 1, 2020 06:19AM Nsbrown54 wrote:

Thank you!

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Jan 25, 2021 10:38AM Raleta1 wrote:

I’m sorry to say my neuropathy has been ongoing for me with moderate to bad days.

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Jan 25, 2021 07:48PM MinusTwo wrote:

Raleta - sorry you have to join us. If you go to "my profile" and post your diagnosis & treatment to date, it will help us relate to your issues. You will have to choose to make it 'public' for it to appear under your posts.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 3, 2021 07:18AM Nsbrown54 wrote:

Raleta1- so some days neuropathy discomfort is better / worse for no apparent reason? I’m having one of those days where a few of my toes hurt. Not all, just a few. 😱

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Feb 3, 2021 04:12PM YesIamaDragon wrote:

For the longest time last year I had to wear my husband's AllBirds to work, then take them off under my desk and put my feet on ice packs. The good news is that although I still have bad days with the pain, I am at least wearing my own shoes again, and the pain is more intermittent. I suspect my balance issues will take longer, but I have hope!

My TC was done in October, and my pain peaked (was on Kadcyla by then) in July, then with a whole lot of gabapentin and duloxetine and topical lidocaine got better over the next couple of months and is now manageable even at its worst. Someday I may even be able to wear heels again!

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)

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