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Topic: Risk of Second Cancer Goes Up as Weight Increases

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Apr 14, 2021 12:06PM

Moderators wrote:

For Women First Diagnosed With Breast Cancer, Risk of Second Cancer Goes Up as Weight Increases
April 13, 2021

If a woman has been diagnosed with breast cancer, her risk of being diagnosed with a second primary cancer increases as her weight increases. Read more...

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Posts 1 - 30 (50 total)

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Apr 14, 2021 01:20PM MountainMia wrote:

"You might want to talk to your doctor or a registered dietitian about developing a healthy eating plan designed specifically for you and your needs."

THIS should be part of every cancer patient's treatment plan. And not just talking ONCE with an RD, but having a program of follow-up care.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Apr 14, 2021 01:28PM Harley07 wrote:

Another body shaming study from the breast cancer industry. I wonder who funded the study?

Surgery 11/5/2020 Lumpectomy: Right Dx 11/10/2020, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 11/19/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/7/2021 Hormonal Therapy 2/8/2021 Arimidex (anastrozole)
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Apr 14, 2021 07:59PM AliceBastable wrote:

I've had three of the cancers listed, plus a bonus unrelated one. Oh, and I have a mystery lump on my neck that's in a watch and wait phase. I have varied between overweight and lower-range obese for years. I want to know why the hell I'm the one paying for being fat. I joke about being a shit magnet, but underneath I'm torn between why-me rage and bewilderment.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Apr 15, 2021 09:13PM - edited Apr 21, 2021 04:51AM by sbelizabeth

This Post was deleted by sbelizabeth.
pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Apr 15, 2021 09:51PM BCat40 wrote:

yup and the hormone therapy they give you for your first cancer promotes weight gain and makes you have bone muscle and joint pain so you’re less likely to want to work out.

Dx at 40. Did not tolerate hormone deprivation treatment. Dx 2/4/2020, LCIS/ILC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/25/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/2/2020 Whole-breast: Breast
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Apr 15, 2021 09:53PM moth wrote:

the lead author of this paper has spent decades of her research time on breast cancer epidemiology. Her job is to identify risk factors. I appreciate her work. It would be negligent of cancer epidemiologists to identify a risk factor and not tell us about it.

http://kpco-ihr.org/bio-feigelson.html

It's important to remind ourselves these large epi studies apply to populations, not individuals.

This tells us there is a population wide, potentially modifiable risk factor which public health and oncologists should discuss with their pts. Ultimately it's the pt's choice what to so with that info.

I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Apr 15, 2021 10:41PM Olma61 wrote:

Obesity kills.

Mountain Mia, I like your idea. A nutrition and exercise plan with gentle support from our providers would be great.

Moth, right on.

I’d also like to see more research into helping peri menopausal and post menopausal women stay healthy and deal with hormonal and metabolic issues. I believe that much of what I went through as I entered menopause is directly linked to the development of the breast cancer I wound up with. I notice post-menopausal breast cancer is what’s on the list in this article. Right in line with my intuition.

Menopause is the least researched and least understood and supported phase of our reproductive lives

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Apr 16, 2021 04:34AM edj3 wrote:

Yeah Harley07 I am not seeing how this study is body shaming. Would you share more about where you're coming from?

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 16, 2021 04:37AM - edited Apr 17, 2021 08:25AM by Salamandra

I don't know. The problem with studies like this is that they don't show that losing weight actually helps prevent recurrence. Because they are comparing heavier women to lighter women, not heavier women to women who used to be heavier and lost weight.

It seems to me it isn't accounting for the impact of *weight loss* at all. For all we know, overweight women are more likely to use unhealthy crash diets that may increase risks. Or the same factors that lead to women being more likely to be heavier may also lead to them being more likely to get breast cancer, and losing weight might not change that.

And according to this study, failure to lose weight may be factor (and I say may because it didn't actually study the impact of weight loss) in 7% of cases. That's really not very high. And especially if a woman's ethnicity isn't white, I'm not sure how seriously she should take this study at all.

There is actually research coming out now that indicates that the heavier a woman is, the worse quality of healthcare she is likely to receive due to implicit (and explicit) bias on the part of the medical system and medical providers. That will not shock anyone who has sought healthcare as a non-thin woman, but it's nice to have the data. But given that, who knows how much of the worse health outcomes are actually due to... worse healthcare.

Basically I am very skeptical of a lot of the coverage around weight and weight loss. And I say this as someone who has been recently successfully losing weight and very happy about it - it's a blast to fit into clothes that I didn't used to fit, but the only thing I can say for sure that is benefiting is my vanity.

Dx at 39. 1.8cm. Oncotype 9. Dx 9/19/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2018 Lumpectomy; Lymph node removal: Sentinel Hormonal Therapy 11/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 12/3/2018 Whole-breast: Breast Hormonal Therapy 12/19/2019 Fareston (toremifene)
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Apr 16, 2021 10:07AM Harley07 wrote:

@edj3. Sorry if I offended you however I am entitled to my opinion. My thoughts are similar to @sbelizabeth and salamandra above.

I’m very tired of rude, unprofessional, disrespectful comments coupled with a lack of communication from the healthcare providers. I have little patience for doctors that do not want to explain the rationale for treatment recommendations but expect me to follow their directions without explantation. Is my weight the cause of my BC? I also have a genetic mutation that increases risk for BC and Ovarian cancer Bottom line is we don’t know what caused my BC or my mom’s BC or my maternal aunt and great aunts BC

I also believe that breast cancer is big business and in many (but not all) cases of early stage BC, generating revenue is a driving factor in treatment recommendations

Surgery 11/5/2020 Lumpectomy: Right Dx 11/10/2020, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 11/19/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/7/2021 Hormonal Therapy 2/8/2021 Arimidex (anastrozole)
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Apr 16, 2021 10:32AM AliceBastable wrote:

I have seen studies that show that even if a person loses weight, they still have a higher number of fat cells compared to a person of the same weight who hadn't been heavy, and it's one reason why it's harder to maintain the weight loss. I wonder if that's been taken into account in these cancer comparison studies? And, only somewhat facetiously, for the thin people who still get the same cancers, does it mean there's a fat person inside them trying to express themself?

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Apr 16, 2021 12:24PM edj3 wrote:

I wasn't offended in the least, I was trying to understand your point of view. Thanks for clarifying :)

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 16, 2021 12:50PM NotAsCalmAsILook wrote:

I want to bang my head against a wall every time I’m referred to an RD! I have several cormorbidities and every RD I’ve spoken with (there have been a few) only focuses on one thing. I am more than a condition, or several conditions.


I don’t need one more person passing generic advice like “eat enough lean protein” without talking with me about what I am eating or what my restrictions are.

That said, I’ve lost 50 pounds since last June and am working my butt off to lose more. I need a personal trainer who has a sense of humor and some nutrition info, but Covid has shut down all the free cancer fitness programs here


or a personal chef


oh, and I need more time in the day to exercise, cook healthy, work, sleep, do PT exercises, etc.

Dx 7/2020, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 4/12 nodes, ER+/PR-, HER2- Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy AC + T (Taxol)
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Apr 16, 2021 12:51PM SummerAngel wrote:

Salamandra has a good point about studies including women who lost weight vs women who've always been a normal weight. I'm pretty sure I got an email from Army of Women about a study like that. I do hope they're trying to get that data.

Personally I like to know what I might be doing that contributes to my risk. This is no different (even though this particular study doesn't apply to me as I had premenopausal breast cancer), and I don't think the researchers have bad intentions. They're just trying to find things that increase risk. They're not saying that overweight women caused their cancer, they're just saying that if you want to do everything possible to prevent recurrence and you're overweight it might be a good idea to lose weight. If I were going to do everything I could to prevent recurrence I would completely abstain from alcohol, but I don't. The small increased risk doesn't bother me, and I don't feel like I caused my BC because I didn't abstain before my diagnosis.

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 3/27/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 6/1/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right Surgery 6/1/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/27/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/3/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 16, 2021 03:40PM Sunshine99 wrote:

So many "studies" to prove what's good or bad:

Coffee is bad for you - oh, wait, coffee is good for you.
Meat is bad for you - oh, wait, meat is good for you.
Dairy, alcohol, chocolate... the list goes on and on.

I probably got cancer because I ate/drank _____________.

I truly think that stress causes us more harm than what we eat, drink or weigh. I do try to be mindful of what I eat and drink, and I watch my weight, but to be critical of another's habits or weight just feels wrong. And stressing about it doesn't change or help.

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Apr 18, 2021 09:40AM Kikki wrote:

I agree with Moth. If there is something that we can do to help decrease our chance of recurrence that is within our control, it’s definitely a good thing!

My problem with these “studies” is that patients with Stage 1 breast cancer versus Stage 3 breast cancer are in completely different categories when it comes to chances of recurrence. Add to that, it depends on what type of breast cancer you had and whether or not you had chemotherapy and invasive versus non invasive radiation, as well as oncotype; to give more accurate data of recurrence. I wish that studies would differentiate and not lump every breast cancer patient into the same pot and do more individualized, specific studies.

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Apr 18, 2021 08:56PM AliceBastable wrote:

"If there is something that we can do to help decrease our chance of recurrence that is within our control, it's definitely a good thing!"

Yes. But if someone hasn't ever had to try to lose a significant amount of weight, they should perhaps not comment on this topic. It's inconsiderate and a bit smug.

(Not aimed at you, Kikki, I just found your initial comment useful for what I wanted to say.)

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Apr 18, 2021 09:23PM - edited Apr 18, 2021 09:24PM by ShetlandPony

I should not comment because I am one who got lucky genes -- at least in the body type department. But man, I have watched a dear friend go through so much crap with doctors who won't BELIEVE her when she describes her sensible diet and the great amount of exercise she does. She really is very dedicated to her healthy lifestyle, but her body type is her body type. Doctors just blame, lecture, disrespect, and do not offer any real help. It makes me so sad for all the women who go through this. I hope someday it will be common knowledge that being "overweight" is not some indication of a lack of virtue, laziness, etc, and that for many people it can be nearly impossible to lose weight. So I think any reports about weight and cancer should be done very sensitively and acknowledge all the unknowns that people on this thread have pointed out.

2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
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Apr 19, 2021 02:47AM edj3 wrote:

Shetland, agreed.

And the role of hormones in weight regulation needs to be studied a lot more too. It's not as simple as calories in, calories out for a lot of people I personally know.

And then there's the effect age has on at least my metabolism--it's definitely slowed down as I've gotten older which means to maintain my current weight, I have to eat less. At some point, that becomes unsustainable.

But I still don't really see this as body shaming as much as insensitive.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 19, 2021 10:32AM Harley07 wrote:

I am very sensitive to the association between weight and BC. Until my forties I was a healthy weight and at times underweight. Now 20 years later I am considered obese. I am fully responsible for my weight. However I also have a strong family history of BC as my mom, maternal aunt and maternal great aunt had BC.

During my face to face discussions with the BS and MO, my weight was not mentioned. It was a different story with the RO. Due to Covid, the RO was only having phone visits. She called ~30 minutes late and started the conversation by asking “why in the world did I not have a breast reduction since my breasts are extremely large and are probably saggy at my age.” (I'm 63, so yeah, everything is saggy 😀). Then she went on a rant about not liking where the surgeon placed the incision, said I would get lymphedema (which I did), that I needed to go on AI immediately (MO wanted to wait until radiation was complete), have a mammaplasty, do radiation and then have my ovaries removed (I have a genetic mutation that increases my risk of ovarian cancer significantly and increases BC risk as well). She provided no info on the radiation therapy. I was totally humiliated and stunned. I told her I had no plans for breast reduction as I feel it's unnecessary. At the mapping she came into the room briefly but only when I was in the CT machine so I've never actually met her. There were only 5 treatments, so at the conclusion of radiation her colleague came in for the final meeting. The whole experience was just weird. I never went back for a follow up.


I did develop mild lymphedema in my breast and have a seroma in my armpit. I worked up my courage & went to PT which I found helpful. However at the first visit, the PT therapist asked if I was happy with my size? And advised that women she knew that had breastreduction were happy they did it. Again I was stunned and humiliated. At the next visit I explained how humiliated I felt and asked her to respect my feelings. She was very apologetic. I saw her one more time and then we both felt that was sufficient


At this point, I am supposed to have a mammogram this summer and a follow up with the BS in fall. I canceled the next MO follow up. I don't know if I will do another mammogram or any doctor follow up as I do not wish to be humiliated again. My emotional well being is my priority.

Surgery 11/5/2020 Lumpectomy: Right Dx 11/10/2020, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 11/19/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/7/2021 Hormonal Therapy 2/8/2021 Arimidex (anastrozole)
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Apr 19, 2021 10:48AM 2019whatayear wrote:

I'm sorry that RO was terrible. I hate that bad doctoring would cause you to avoid follow-up care.

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020
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Apr 19, 2021 10:48AM - edited Apr 19, 2021 10:49AM by AliceBastable

The year my two latest cancers were found, I had a rough bout of flu, my mom died, I had half my teeth pulled, and then the breast and kidney cancers. I lost quite a bit of weight - mostly, it turned out, due to the kidney cancer gobbling up whatever I ate, like a nasty space alien, but also illness, grief, and adjusting to dentures. I quit smoking shortly before the kidney surgery, and then when I started breast radiation shortly after, I was ravenous - I guess it was a combination of not smoking, the cancer being gone, and probably just seeing some light at the end of the tunnel I'd been in that year. When I saw my new PCP the next year, ALL she could focus on was the weight I'd gained, which was all I'd lost plus a few pounds. When I mentioned what all had happened before the gain, she just hand-waved it and said "Look how much you've gained!" like it was the only thing that counted. Now I've lost about half of it, and 2 or 3 sizes, without trying (I usually have to go down to about 800 calories a day to lose) and all she does is congratulate me instead of trying to figure out why. To her, I'm just the fat woman.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Apr 19, 2021 11:06AM edj3 wrote:

Those are terrible doctors and you should not be treated like that, Alice and Harley.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 19, 2021 01:40PM AliceBastable wrote:

edj3

What stinks is this doctor is the new improved one who is so much better than the one I fired after several years! I think she and I just need to shift our priorities enough to meet in the middle somewhere.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Apr 19, 2021 02:14PM - edited Apr 21, 2021 04:51AM by sbelizabeth

This Post was deleted by sbelizabeth.
pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Apr 19, 2021 02:15PM Harley07 wrote:

Alice- your doctors comments are unacceptable. There are times I think the doctors are not even listening. I know they are busy, but I feel like they see so many patients thateveryone sounds alike. So they zone out and are thinking of the next point they want to make. Good luck

Surgery 11/5/2020 Lumpectomy: Right Dx 11/10/2020, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 11/19/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/7/2021 Hormonal Therapy 2/8/2021 Arimidex (anastrozole)
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Apr 19, 2021 04:11PM moth wrote:

I guess one of the things that stings is the assumption that for some of us it's easy & that people commenting positively on the original post must be the lucky ones for whom it's easy. Nobody ever seems to give any credit to people for whom it's not easy. I DON'T have easy stay slim genes. I'm short, stocky & prone to putting on weight unless I work stupidly hard to stay at normal BMI. But it seems it's not ok to say that because then someone gets upset that it's a judgement on them because I do it. I mean, we have to be able to talk without everyone's emotions getting in the way.

but I'll give my emotion: I'm angry and hurt that nobody ever gives me credit for staying normal BMI. I'm fundamentally lazy, my ass is stuck to the couch, and I would eat empty carbs all day if I could. I exercise and eat well in spite of myself. I did it before I got cancer, I did it extra hard after I finished treatment for stage 1 tnbc because it's one of the few things that showed some potential for lowering risk of recurrence. It didn't work but I'm *still* doing it now because it might extend my life & it definitely makes me stronger to endure treatment. Every frigging bone in my body hurts and all of me is fatigued and I did zumba today after being on taxane chemo for over a year. I have too much fat, not enough muscle & I keep trying to fix it, no matter how hard it is but nobody recognizes that or gives those of us who try it any credit at all.

(jeez maybe this should be in the steam room thread but I'm just going to post here)

I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Apr 19, 2021 04:18PM Poppy_90 wrote:

Moth, I only wish we lived in the same city. You are amazing :)

Dx 5/1/2020, IDC, Right, 2cm, ER-/PR-, HER2- Chemotherapy 5/29/2020 AC + T (Taxol) Surgery 10/5/2020 Lumpectomy: Right Radiation Therapy 11/5/2020 Breast
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Apr 19, 2021 06:51PM Sunshine99 wrote:

moth, I totally get it. I work hard to keep my weight in check. My all time high weight was in 2010 and I used an app to count calories and lost 23 pounds. It was hard, but I did it.

The last time my weight dropped was when I had pneumonia and "couldn't eat" - believe me, that has NEVER been a problem. Now, my weight has crept up about 10 pounds since I was diagnosed with Stage IV and COVID started. It's slowly coming off, but I really have to watch what I eat.

I tried intermittent fasting for a day, with no results - haha. Actually, I've been sticking with it pretty well. I just wish it were easier. My husband is fit and eats healthy. He runs/surfs/rock climbs every week. He's super sweet and supportive of me.

I track my weight on an Excel spreadsheet - I know, I know, but it works for me. It's kind of fun to track trends, or to look back and see how much a weighed a year ago, or how long it took to lose the 23 pounds. I know the weight where I feel the best, but sometimes I just want to say the heck with it. Sigh...

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Apr 19, 2021 08:55PM Olma61 wrote:

Moth, thanks and I am right there with you. And I will give you some praise! In fact, I’m giving you a standing ovation right now. And if your care providers aren’t giving you positive feedback for making the effort, shame on them.

I struggle to lose and maintain. It IS hard, no question. I also have to restrict calories to around 1000 to even lose anything. But my knees and feet are thanking me for getting out of the obese BMI range in 2017. Probably my pancreas is too.

My cardiologist definitely wants me to lose more and be active although he hasn't said much lately, since COVID has made it harder to be active. I have hypertension and I'm a bit skeptical that weight loss would change it that much because I was a healthy weight and in my thirties when it started. But I know my doctor has my health in mind so I don't fault him for bringing up the issue and maybe he does know a little more than I do, right?

Anyway, we're all free to do as we please, I don't judge anyone for their choices and I do understand how hard it is to lose. But if evidence shows a link between behavior and disease, I want to know about it. I expect researchers and doctors to inform me. What I do with the info is up to me.


10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone

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