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Mar 31, 2012 06:37AM
Catherine, I wish the Tamoxifen issue didn't come out of left field. Doesn't seem fair there was no preparation for that discussion. I hope you tolerate it well - at this point you have a head start with getting your body and mind in a good place to handle.
Boy, everybody is flying high! You guys are terrific!
I am behind in my posting, as I have been dealing with some issues around my mother. I'm in PA, she's in FL. I usually visit three or four times a year, but last year with my surgery, I had to limit my travel. I was there in Jan and Nov, and the plan was to go back in Jan or Feb of this year, then two weeks in April. Subtle LE symptoms in arm and lack of trunk garment because of stupid insurance appeal kept me grounded and Jan or Feb trip was cancelled. Arm blew up, and now I am waiting for custom sleeve, glove and night vest (all ordered) and then check for fit. Fine tuning my wrapping skills. So, April trip was postponed to May (verging on too hot for my liking). Husband and I decided he could make a quick trip if necessary. Then about two weeks ago, my mother fell and broke her hip, had hip replacement surgery. Hospital staff said it would be best for us to be there for her rebab, so we were waiting as she settled into rehab. Everything was going well, but now she is having issues about getting out of bed to do PT. Quickly purchased plane ticket for my husband yesterday and he just left for FL to see if he can help motivate and get her in a better frame of mind. I spoke to her and just cried and begged her to get out of bed, as she will deteriorate quickly otherwise and lose that window of opportunity to walk again. She seemed to agree and understand what she needed to do. Some success with PT yesterday, a little bit today so far, and they will continue to go back throughout the day for 10 min intervals of exercise if that is what it takes. It is upsetting that I can't be there for her right now, and I am so glad my husband has a good relationship with her, she really adores him. I hope she doesn't get angry with him visiting - her venom when ticked off is not a pretty site! He has been spared that so far, but he is prepared. She really let loose on the PT's, screaming, swinging at them, threw a sneaker. You get the picture. This is so unlike my mother, but she has slowly changed over the last few years, is 92 now. I just don't want her to end up bedridden when she had been athletic her entire life. It is hard to take. I am only child and my father passed away.
Yesterday was another example of how you never can predict changes to schedule and should do self care when you can. So glad I did MLD in morning, had LE therapy session at 1pm. Never got to walk outside as planned, but made up for exercise in evening with several ball exercises, really worked my torso, bouncing and then sitting on ball and bopping around while I watched TV for an hr. Did the stairs inside, 500 steps. Several rounds of the Hulk in evening, which I really love! Trunk MLD at bed. Slight adjustments to planned routine, but overall self care and exercise-wise, it was a windshield day.
Now today, I need to get myself together so it plays out well. Getting husband off and several conversations re my mother got me off track, but I am working to reverse. Weather is not cooperating, so I will be exercising inside again today.
"Life isn't about finding yourself, life is about creating yourself." ~ George Bernard Shaw
11/13/2007, DCIS, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2-