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Topic: High number of positive lymph nodes

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Sep 13, 2020 07:39AM

Ausykaren wrote:

Can lymph node survivors please chime in here. I had 11 positive nodes,some broken open with cancer and grade 3. After 3.5 years this still really worries me every day. Would love to hear stories of long term survival.


Dx 2/2017, IDC, Right, 4cm, Stage IIIC, Grade 3, 11/19 nodes, ER+/PR+, HER2-
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Jun 21, 2021 04:06PM victoriasecret wrote:

Look at my stats 12 years out !

Dx 6/15/2009, ILC, 6cm+, Stage IIIC, Grade 2, 11/25 nodes, ER+/PR-, HER2- Surgery 7/31/2009 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 8/31/2009 AC + T (Taxol) Radiation Therapy 1/1/2010 Breast, Lymph nodes Hormonal Therapy 1/1/2010 Arimidex (anastrozole)
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Jul 3, 2021 11:56PM 7of9 wrote:

great news! 12 yrs !!

If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/31/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/31/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/18/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/18/2016 Prophylactic ovary removal Radiation Therapy 2/10/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 3/31/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Jul 4, 2021 12:05AM Ausykaren wrote:

Fantastic news 7of9. I still think about this crap everyday. My best friend has just been diagnosed with motor neurone disease. Never thought I’d say it but I think it is worse than cancer. No treatment at all. So sad.


Dx 2/2017, IDC, Right, 4cm, Stage IIIC, Grade 3, 11/19 nodes, ER+/PR+, HER2-
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Jul 5, 2021 01:16AM - edited Jul 5, 2021 01:17AM by 7of9

hey Ausie...I'm not 12 yrs out ...yet. Only 9!:) I was complimenting Victoria further up but lets keep cheering each other on.

I'm not familiar with motor nueron disease, doesn't sound good. My latest old age post bc ailments include eye drops for high eye pressure, to prevent/ stop/watch early glaucoma...and too many desserts and fried food during covid, high cholesterol. My BMI is still under 21 so good reminder that heart diseasestill mo 1 killer. I have a few months to get it down before they start me on something. Honestly I feel in great shape so I shouldn't complain. My son was 2 when diagnosed...he just turned 12. Take that cancer!!!

If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/31/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/31/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/18/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/18/2016 Prophylactic ovary removal Radiation Therapy 2/10/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 3/31/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Jul 5, 2021 05:11AM Ausykaren wrote:

Hang in there 7of9, you’re doing well. I have high cholesterol too but am not sure why. I’m pretty much vegetarian these days and hardly touch sweets or fried food. I’ve been given three months to get in down. My youngest has also just turned 12. He was 7 when I was diagnosed. Take care 😊



Dx 2/2017, IDC, Right, 4cm, Stage IIIC, Grade 3, 11/19 nodes, ER+/PR+, HER2-
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Sep 27, 2021 04:21PM Emily21 wrote:

It's great to hear such positive stories, I had 3 positive nodes, and an oncotype score of 51, IDC. I am on Anastrozole now and am absolutely terrified. The oncotype score was a bolt of lightning, no one was expecting it. I take great courage knowing that others with extensive node involvement are thriving. Can u ask are you all still on aromatase inhibitors 10yrs out?

Dx 9/4/2020, IDC, Right, 2cm, Stage IIB, Grade 2, 3/31 nodes, ER+/PR+, HER2- (FISH) Surgery 9/23/2020 Lumpectomy Hormonal Therapy Arimidex (anastrozole) Radiation Therapy 3DCRT: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol)
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Sep 27, 2021 09:21PM - edited Sep 27, 2021 09:22PM by RuthATO

Hi all - Long term survivor here. I had 17 cancerous nodes out of the 20 they took out.One had migrated to the chest wall and they took it out but did not get clear margins. Grade III, triple negative. That was November 1999. Mastectomy, 6 rounds of chemo (cyclophosphamide, epirubicin and 5-FU) and radiation. No other meds since I am estrogen negative. I was pretty much resigned to not making it but I'm still here.

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Sep 27, 2021 11:14PM MSWife wrote:

@RuthATO - unbelievable! What a great story.

Thanks everyone for your positive stories

A member to gather info for my husband ❤️ Dx 3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, 18/20 nodes, ER+/PR+, HER2- (IHC) Surgery 3/24/2021 Lymph node removal: Left, Sentinel; Mastectomy: Left Chemotherapy 4/25/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 8/19/2021 Lymph node removal: Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 6, 2021 11:44AM - edited Oct 11, 2021 11:27PM by faith71

Hi everyone, hope all is well. I had 20 positive nodes out of 24 and that was around 6 years ago this time.

It is indeed a lot to take in for those recently diagnosed but look at it from the stand point that the nodes caught the cancer, if they hadn't who knows?

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