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Topic: 13 years out - 'all clear' mamm - DCIS - no additional treatment

Forum: DCIS (Ductal Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for DCIS.

Posted on: Sep 3, 2021 09:46AM

momzr wrote:

Just wanted to share that I had my annual mammogram earlier this week and was given 'nothing suspicious' results and told to come back again in another year for annual screen. I was diagnosed with DCIS in my left breast (very tiny 1.6 mm single focus) in July of 2008 at age 46. At that time I had a lumpectomy but did no additional treatment. A week after the 2008 biopsy, the medical oncologist told me that my tumor was so tiny he thought there was a miniscule chance it would cause me problems down the road and he did not recommend radiation therapy or hormonal therapy with their associated risks and side effects for my particular situation. I also had a lengthy discussion of possible radiation, but decided to forego it with radiation oncologist in agreement on the decision. I've had a couple "scares" since then - one additional lumpectomy/excisional biopsy as well as a stereotactic biopsy on the left breast and a call back or two (most recently for the right breast). However, nothing resulted in anything more serious.

My own mother was also diagnosed with Stage 1 Breast Cancer five years ago in May 2016 (she is now 80) and she has been taking an AI for five years since her diagnosis – she will be done with that medication next month. Having my Mom also get diagnosed does worry me a little more each year when I go for my screening, but am super happy to be 13 years out at this point with no further troubles. When annual screening time rolls around I get a little nervous, but really don't think about the DCIS diagnosis much anymore. Good luck to all who are making decisions concerning DCIS.

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Sep 3, 2021 01:49PM Moderators wrote:

momzr, thank you for stopping by to share this inspirational post! It truly will help put many at ease who are facing this diagnosis and treatment decisions, and worry for the future.

Celebrating your 13 healthy years (and your mom's 5!) and sending good wishes to you both for many, many more!

--The Mods

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Sep 3, 2021 05:44PM LivinLife wrote:

Really great to hear your success story after such a long time! Hoping it remains that for you. The worry is real too and you validated that for yourself and others. I hope your mom continues faring well too....

with expansive comedo necrosis & weak ER/PR Dx 7/2020, DCIS, Left, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/30/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Oct 4, 2021 04:36PM tinkerkell wrote:

Thanks so much for posting this. I am just coming up on 4 months since my lumpectomy and my first follow up mammogram and ultrasound. I also decided against radiation and I am on ultra-low dose Tamoxifen - 10mg every other day. I made these decisions due to a very small area that turned out to have been removed entirely by the biopsy (so the lumpectomy was actually for nothing), and my DCISionRT score came back as 0.8. I felt/feel pretty comfortable with my decisions, but every now and then I wonder if I'm making a mistake not doing everything I can. Your experience is exactly what I'm hoping for and helps me feel like I'm doing the right thing.

Dx 4/27/2021, DCIS, Right, Stage 0, Grade 2, ER+/PR+

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