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Important Links about DCIS
For helpful information, check out Breastcancer.org's DCIS section. There is also advice and personal experiences from other community members here on the discussion boards, including: A layperson's guide to DCIS Hope this helps! The Mods
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Surgery for DCIS
Tomorrow I will undergo a partial mastectomy not really nervous but I am wondering how long it will be before I make a good recovery? Not sure what to expect in the next few weeks.
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MRI
Hello! I am 47, I was diagnosed with DCIS (grade 2) last week. My second mammogram confirmed a small (3mm) spot near my nipple. I met with my oncologist on Thursday for my first appointment with him, pretty uneventful since I haven't had my MRI yet. I am scheduled this Thursday for my MRI and then meet with the breast…
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Differing diagnosis
I was diagnosis with DCIS grade 1 stage 0. I was given the treatment options. I decided to get a second opinion. My second opinion clinic requested the slides from my biopsy and that pathologist determined, I didn’t have DCIS. Has anyone ever experienced this?
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DCIS Alternatives for treatment
I have a recent diagnosis with DCIS moderate to high grade. Has anyone else received this diagnosis and chosen to do nothing but monitor the situation? I went from biopsy and ultrasound results with a likely lumpectomy to the MRI results with a 4cm + area and recommendation for a masectomy to remove the 'cancer'. Any…
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lymphovascular invasion or tissue displacement dcis
Just got my final pathology report after BMX, still pure DCIS. My Surgeon said no chemo, no radiotherapy and no tamoxifen. After reading through the whole report, there is one additional comment I don't quite understand: "In one block, at the edge of the tissue and partially within a thick walled vessel, there is a group…
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Did you consider bilateral mastectomy for DCIS?
I am really struggling to make a decision about the best path forward, so I've come to learn from all of you. I am still waiting on genetic testing results to come through, but have no reason to believe that there will be anything of significance. If there is, I will pivot accordingly. I had a 1.2cm, grade 3 DCIS with…
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DCIS Grade 2. Anyone told to skip hormone blockers?
I was diagnosed with a wide span of DCIS, Grade 2. I had a lumpectomy and reconstruction on my right breast and a reduction on my left, clear margins, no invasive detected. My oncologist recommends I do radiation but no hormone therapy. He feels it is not needed and will not change my long-term outcome. I am wondering if…
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BioZorb Recall
I want to let all of you know that have had a BioZorb implanted during your breast cancer surgery that the FDA has recently made a Class 1 Recall on the device. This is the most serious FDA Recall possible. Google BioZorb Recall, Hologic BioZorb recall, FDA BioZorb Recall and you will read a lot of information about the…
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Worried if I am high risk
reposted by Admin .
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Did you have SNLB done during Double Mastectomy?
Hi! I had a double mastectomy done 11/17. Surgeon did not get lymph node biopsy? I was wondering if there is someone here who have same experience? TIA
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Long-term survival of DCIS patients without radiation or hormone therapy
I'm interested in hearing from people who did not have radiation or hormone therapy after a lumpectomy for DCIS
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Looking for answers!
Hi All. I am 41years old. When I was in my 20's I was diagnosed with PCOS. In 2023 I experienced a slight tingle in my right breast I knew was hormonal, but to appease my nagging husband, I went and was seen by my GP. She agreed that it was most likely a blocked milk duct as there were no other abnormal signs. I check…
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Letrozole Side effects-- throaty
Have been taking letrozole for about 4 months after DCIS (w/clear margins), and preventative radiation treatment. Seem to be free of noticeable side effects except it appears to cause a cough and a 'drippy' feeling in the back of my throat. I confirmed this by going off it for 2 weeks, when these symptoms disappeared. Has…
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Hypersensitivity and tenderness
I am new to this site and wonder if what I'm experiencing is normal. I had DMX with immediate reconstruction with tissue expanders on December 20th. My PS filled the expanders with air during the surgery, then on January 2 I had air exchange and saline fill of 250cc. I am 4'11 and going for a full B size. Anyway, I'm…
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DCIS Grade 2 Diagnosis
Hi all, this is my first time posting here and am so grateful that this forum exists. My wife has had an incredibly stressful few months to say the least. In September she went in for her yearly mammogram and a suspicious area was identified in her right breast. She subsequently had an ultrasound, biopsies and MRI and was…
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Active Monitoring May Be as Good as Surgery for Low-Risk DCIS
Active Monitoring May Be as Good as Surgery for Low-Risk DCIS Dec 20, 2024 Two-year rates of invasive cancer were similar for women whether they had surgery or frequent mammograms, but more research is needed. Read more…
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Before surgery, looking for connection
I am 37 and was recently diagnosed with DCIS ER+ and recommended to have a lumpectomy, radiation and hormone therapy. I am very concerned and resistant to radiation and hormone therapy, but will deal with those decisions after the surgery. I am American who has been living in a foreign country for 10 years, so I am also…
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DCIS with Isolated Tumor Cell in Sentinel Node
Has anyone had this? My primary tumor is DCIS, and no definite invasion seen from path report. But the one sentinel they took showed Isolated Tumor Cell. The surgeon wasn't too worried about it, said it's treated as negative and won't affect overall treatment plan. She said it might be from biopsy. But I feel uneasy about…
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decisions to be made--DCIS suspicious for microinvasion
Hi everyone, This is my first time posting. I have a DCIS (grade 3 ER+ PR+) diagnosis and am kind of stuck between having a mastectomy or trying cryoablation first. In order to make that decision, I am trying to figure out how to make sense of my likelihood of being upstaged at surgery. One sticking point is microinvasion.…
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Declining hormone blockers for DCIS grade 3?
has anyone refused taking hormones after surgery and radiation with dcis nuclear grade 3
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DCIS stage 0 grade 3 ER + Lumpectomy and Radiation, clean lymph nodes
The Dr. gave me the choice lumpectomy or mastectomy. As she said it was caught early and still inside the duct I picked lumpectomy. Surgery went well, no complications, clean margins, clean lymph nodes etc. Did Radiation and because of the grade AI drugs - Oncologist said 50% chance it will come back. She originally told…
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Returning to exercise
Hi I had DCIS surgery to remove crystallised area about size of stock cube. Am resting and started the physio. I am keen to get back to walking and lower body strengthening. Any advice about when it would be safe to do so. Thanks very much. I am so grateful to be in this group
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Aromasin
Hello Ladies, My Onc ordered Aromasin today after being in Arimidex for several months. My finger joints were swelling and painful, as is my knee and pelvis when I walk. I am still on Zoladex and had a Reclast infusion recently for signs of osteopenia. I’m afraid the Aromasin will be the same, hoping for some advise on…
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2 surgeries later...
Was diagnosed with DCIS in September 2023. Was told it was high chance of spreading but was DCIS so not to worry as caught it early enough just to whip it out. Thats where it all started to go downhill. Went in a week before surgery to have a magseed placed to mark the target, the radiographer seemed to be having some…
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Can DCIS become "cancer" in 5 months?
Thank you very much for this space. I am informed about DCIS, but have a question which I cannot find an answer to anywhere on the internet. After searching for a week, I am now thinking it may not have an answer. Past and current situation My wife, age 46, was diagnosed with stage zero DCIS 12 months ago. She received a…
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Verzenio
Taking verzenio ..having brutal side effects
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DCIS, non invasive, Grade II
Hi all, I am interested in some feedback on treatments that others have had with my diagnosis, and how you're doing? I have been diagnosed with ER+/PR+ noninvasive (Stage 0) Grade II DCIS. I have been given an array of treatment recs, but honestly leaning towards B mastectomy. Any others that have chosen this route? This…
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Lumpectomy Surgery with SCOUT
First time posting and have had months of waiting for diagnosis due to long wait times for scheduling mammograms, ultrasound and finally a biopsy on May 6th. I have DCIS grade 3 and found out today that genetic testing for 70 mutations was negative. I have lumpectomy planned for August 7 and will have SCOUT procedure…
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Arimidex
My oncologist changed my Tamoxifen to Arimidex along work the Zoladex injections. Has anyone had this same regimen? Any thing I should worry about with the Arimidex?
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Ductal Carcinoma and Mastectomy
Hi all I’ve been diagnosed with Ductal Carcinoma. Met with the surgeon yesterday and he would like to do a mastectomy on one side with lymph node removal. The CT scan has shown enlarged lymph nodes but he thinks that could be because there are obvious signs of inflammation on my breast. I feel removing the lymph is a bit…