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Important Links about DCIS
For helpful information, check out Breastcancer.org's DCIS section. There is also advice and personal experiences from other community members here on the discussion boards, including: A layperson's guide to DCISHope this helps! The Mods
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Having swellings on fingers and arm 8 hours after surgery. Is it common?
Hi, I had a unilateral mastectomy today. Surgery was completed about 8 hours ago. I just noticed that my arm and fingers on the side where I had a surgery are slightly swollen. Before surgery I had read the symptoms of lymphedema. In my case, surgeon took 3 lymph nodes away. I’m at risk of developing lymphedema. I know I…
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Dcis -mastectomy or Lumpectomy/rad
I am 42 yrs old and was diagnosed with dcis grade 2 in my right breast in April. I had a follow up breast mri which showed other suspicious areas that should biopsied with mri. I have the mri biopsy scheduled but I feel like skipping it and just having a mastectomy instead. My MD adviced of the research regarding outcomes…
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Did you consider bilateral mastectomy for DCIS?
I am really struggling to make a decision about the best path forward, so I've come to learn from all of you. I am still waiting on genetic testing results to come through, but have no reason to believe that there will be anything of significance. If there is, I will pivot accordingly. I had a 1.2cm, grade 3 DCIS with…
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Another tiny calcification dcis in same spot 3 years out!
Hi, my yearly mammo just showed a tiny 2mm area of linear dcis behind my lumpectomy scar. I was finally stable and just started having a yearly mammo, and they found this....! So, just had a stereostatic biopsy and am waiting for results, but it's in the ducts and doctor feels it's dcis again. So, I wanted to know if…
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DCIS: choosing surgery only, followed by monitoring
Hi all, Would love to start a thread for those with DCIS who chose surgery only, no RT or HR meds. I've done a lot of research and am comfortable with my decision based on my pathology and low Oncotype score. I will have monitoring twice a year, once w GYN & mammogram and once w BS & ultrasound, so should anything change…
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Unilateral Mastectomy without Reconstruction - Mobility and Clothing
Hi everyone, I am a new member and was diagnosed with DCIS on the left breast couple weeks ago. I am still slowly digesting the "fact". Doctor suggested mastectomy, which is completely fine to me. I am 90% not going with reconstruction. So mostly likely I will be living with ONE breast. My main question is whether I will…
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Should I be concerned about the bad impact from compression as ABUS imaging is extremely painful
I did the breast ultrasound screening a few days ago. The breast ultrasound screening was *extremely* painful, much more painful than mammo. In the breast ultrasound screening, I felt that the compression was too much. And I felt so painful that I had to make a tight fist and make a sound. I told the lady I felt very very…
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Is there molecular subtyping for ductal carcinoma in situ (DCIS) in breast cancer?
GPT gave me a definite answer, but I can't find any related information on the web. Pretty puzzled…
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Mastectomy with close margins
Hi, I recently had a bilateral mastectomy to remove a large section of DCIS in my right breast. My surgeon said the margins were clear and that’s all that matters (the closest ones were the superior at 1mm clearance and the deep at 2mm clearance). He said the recurrence rate is less than 5%. However, I’m 35 and the dcis…
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lumpectomy vs mastectomy - why did you choose your route?
Hi all, i was wondering if anyone could elaborate on this question. i have multifocal, grade 3 DCIS, and am contemplating another lumpectomy vs a mastectomy. my surgeon is confident she can clear the margins with another lumpectomy, and recommends radiation afterward. BUT anecdotally, so many women I’ve talked to, even…
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Bio markers for DCIS
hi everyone, I found out my bio markers for a large area of dcis were estrogen positive (11-33%) and progesterone negative, her2 status ( not tested). Does this matter with a dcis diagnosis? There does not seem to be a lot of people with this type of hormone status (er pos, pr neg). Trying to navigate this new normal of…
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Super Confused: Reconstruction vs Flat
Hello Warriors, I am extremely new and learning all the terms, jargons, abbreviations here. Please excuse me for any ignorance. Recently diagnosed: 43 yr old, F. Right: Stage 1, grade 3 Microinvasive. DCIS. Macrocalcification span of 8 CM Left: Microcalcifications. 11 mm mass. Multiple cysts are Benign. Genetic Test:…
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Just diagnosed DCIS grade 3 after many benign biopsies
I joined here in 2017 with questions after finding out I was CHEK2 positive and a many-year (close to 20) history of nipple discharge. I had I think 3 ultrasound guided biopsies around that time and all came back benign intraductal papillomas. Although the CHEK2 put me in a higher risk category there is no breast cancer…
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DCIS with possible Microinvasion
Hi all, so glad to have found this community. Got the horrible news and been on an emotional roller coaster ever since.diagnosis- DCIS right breast confirmed with biopsy. Tumor area spans almost 10mm so mastectomy is recommended. MRI showed invasion of 1.5. Thinking about Bilateral Mastectomy with immediate reconstruction.…
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New grouping of linear and punctuate microcalcifications
my mom had bc in 2003 stage 2. Last month she had her annual mammogram and the report had several findings. -post therapeutic changes in posterior right upper outer quadrant -skin thickening which was present previously but slightly more pronounced on right breast -new grouping of linear and punctuate microcalcifications…
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DCIS, too much info, just saw biopsy result, confused
I just saw my biopsy result on the medical page. My Dr appointment is not till Tues the 29th. I had rt breast discharge, MRI showed 'something"..so decided to do a excision biopsy. Had that the 18th...still sore! Results show DCIS, grade 2. there's a bunch of other stuff I don't understand, even with looking it up. There's…
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Re-incision
Hello, I was recently diagnosed with DCIS. I had my lumpectomy on 10/31/2022. My labs resulted in margins that were not clear. The lateral was on the rim and the other 2 slides (superior/inferior) were 1.5 CM with DCIS. Radiation oncologist wants me to have re-incision but surgeon is not sure that is the answer. The DCIS…
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A laypersons guide to DCIS
This is a reposting and updating of my "DCIS facts and misconceptions" thread. In setting up that thread, I wanted to share basic information about DCIS that I'd learned from my research and in my years on this board. I also wanted to provide links to reliable websites that have good general information about DCIS - there…
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Experience to share about how to find a timely second opinion?
I'm recently dragonized as DCIS after lumpectomy. DCIS, nuclear grade 1, present in 2/13 slices, 8mm, ER+/PR+, Distance from Closest Margin (Millimeters): 1mm Closest Margin(s): Superior = 1mm Distance from Other Margins > 5mm (BTW, I am a little bit concerned about the Superior margin < 2mm; would it play a major role in…
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Delaying surgery to "shrink" DCIS with letrazole?
Has anyone else ever heard of such a thing? My sister was diagnosed with DCIS several months ago and still has not gotten surgery. She has 4cm of grade 2 DCIS. She really, really, *really* does not want surgery and has had a mental breakdown over her diagnosis. She found a doctor willing to prescribe her letrazole for the…
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Can you have DCIS only & not be put on a hormone blocker?
or even referred to an oncologist? Hi guys. My fraternal twin sister just got diagnosed with what appears to be 6mm of DCIS. I was diagnosed with both IDC and DCIS in 2020, and we have no other family history. My sister said her doctor told her she may need just the breast surgeon, and the surgeon may not even refer her to…
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Boost Dose After Radiation for Some DCIS Reduces Recurrence Risk
Boost Dose After Radiation for Moderate- or High-Grade DCIS Reduces Recurrence Risk Aug 15, 2022 After whole-breast radiation, a boost dose to the area where the tumor was further reduced the risk of moderate- or high-grade DCIS coming back. Read more...
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Decided to do BMX, but scared. Advice?
Hi All, I'm blown away by the amount of support on this website. Your feedback would be so helpful. My surgery is scheduled for April 15. I have DCIS stage zero and another spot that is DCIS with micro invasions at stage 1A -- both are grade 3. All of my factors added together have helped me make my decision -- plus my…
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Diagnosis in December, just home now to deal with it
I mentioned this in someone else's thread but just to recap…. I had my mammogram in October, called back a week later for another at the hospital. Not worried, this has happened twice before. It was recommended that I have a biopsy so I did…but that didn't happen until later in November. So I waited… Now, last year I had…
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Lumpectomy - no rads age 40
I recently had a lumpectomy for low grade DCIS. The pathology results showed all DCIS was removed at biopsy, so clean margins with atypia only. BS thought I could avoid radiation provided these results and my history of uncommon reactions to medicines. RO states it is my choice, however, per my younger age would still…
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What grade is “GRADE 1-2/3" DICU?
I just received a surgical pathology exam test result. The grade is “GRADE 1-2/3" and I don’t know what this means. Is it grade 1 to 2 out of 3? Or maybe grade 1 and ⅔ (1.67)? I’ve pasted below details from the test result, in case they’re helpful in answering my question. A. Breast, Right, Right breast- upper outer…
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After DCIS, About 1 in 5 Invasive BCs Unrelated to Original DCIS
After DCIS, About One in Five Invasive Breast Cancers Unrelated to Original DCIS June 15, 2022 In the years following a DCIS (ductal carcinoma in situ) diagnosis, about one in five invasive breast cancers that developed were not related to the original DCIS lesion. Read more...
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Unusual DCIS a presentation?
Hello this is my first post so hope it works. About a year ago I noticed clear nipple discharge on the left side of my bra. I was send for mammogram andultrasound which were negative but a MRI showed a 4.7x 4.2 x 2.5 suspicious area of tissue. ADH was found on needle biopsy then DCIS grade 1 on excision wire biopsy. My…
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Older w/ DCIS Have Low Invasive BC Risk, May Not Benefit From Tx
Older Women With DCIS Have Low Risk of Invasive Breast Cancer, May Not Benefit From Treatment Mar 17, 2022 Women ages 70 and older who were diagnosed with low- or intermediate-grade DCIS and didn't receive treatment had a very low risk of developing invasive cancer in the same breast. Read more...
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First post. Anyone have similar mammo. and biopsy results?
Hi all. I was diagnosed on May 12 and have not seen a surgeon yet (appt. this coming Thu). The diagnostic mammogram says "Mildly amorphous calcifications in the right breast retroareolar extending to the lower inner quadrant involving an area of up to 5 cm maximal dimension..." It goes on to say that there are two more…