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Jul 20, 2019 09:33PM
Jul 20, 2019 09:36PM
UpstateNYer - the recommended course of action from the geneticist is double mastectomy, oophorectomy, and screening for pancreatic cancer. I'm waiting for my genetic results to be shared with my surgeon to discuss options.
2019whatayear - Thank you. Sorry to hear you have a BRCA mutation as well.
Starr42 - my hair has started falling out more and I'm relieved that it's just tiny pieces as opposed to long strands. Plus I did have fun with the girls while we did it. I'm trying to find positives when I can. Plus it is great to not have hair in the heat.
Flnana2 - best of luck with everything this coming week. My second cycle is on Friday. My oncologist also delayed my third cycle by one day (from Friday to Monday) so I can attend a friend's wedding. Yay!
Jjpope1 - me too. Apparently those hairs are the first ones to fall out in earnest. Good luck with your second cycle. Big hugs.
MLSinTX - by far the not knowing was SO MUCH worse. I can only speak from my experience, but I blew things so out of portion in my head. I hope your first cycle goes smoothly.
NGCpeach - I think the oncologists mean well. When I saw mine last week she said that she hoped I didn't think she was mean for telling me about the possible side effects (she's not, I adore her). I think they want us to be prepared, but if you are like me (severe anxiety) then your brain takes you to some pretty icky places. I'm sure things will go better than you expect.
Britgirls - I stopped shaving. Figured why bother. It's also how I noticed that my hair wasn't growing. It's been 9 days since I last shaved my legs and all I have is slight stubble.
As for me, I'm still digesting my news. My brazillian is coming along nicely 😆 and my head hair is shedding, though not horribly (or I don't notice it because of the buzz cut). I feel fine and am ready to get number two under my belt this Friday. Plan to do some enjoyable things next week while I am still up for it.
DX at age 43. Weak staining ER, Oncotype score 50, BRCA1 mutation. Lost both parents to cancer in 2018.
4/17/2019, IDC, Right, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR-, HER2- (IHC)
5/1/2019 Lumpectomy: Right; Lymph node removal: Sentinel
7/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
1/20/2020 Prophylactic mastectomy: Left, Right
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)