Apr 26, 2020 12:57PM Arya44 wrote:
I'm glad you started the May 2020 chemo group-congrats on writing your first post! I don't have a date yet but expecting to start in a few weeks.
I do have some input on your low oncotype score and getting chemo due to the other factors. My situation is a recurrence, and I had a low oncotype score or 10, but a high grade, highly vascularized tumor. My oncology team debated whether or not I should have the chemo and decided it wasn't necessary-it wasn't in the lymph nodes and I was happy to avoid the chemo. However it has come back, I had a lumpectomy on April 15 and lymph node dissection, and they have said I'll definitely be getting chemo and radiation as well as inducing menopause seeing as the hormone therapy has not been adequate. As much as it sucks to be back here I'm glad I'm getting the chemo this time and that it didn't spread any further than it did. I feel being off work due to covid closures has been a positive time for me to allow healing and rest.
As for the hair-I had been thinking of doing cold caps to preserve the hair, but during these covid times where you can't bring a visitor to the hospital I feel it would be a burden trying to deal with all the upkeep while going through the chemo by myself.
As far as going to appointments alone, one option someone has suggested to me is bringing a loved one in virtually through facetime. I haven't tried this yet, but I have learned how important it is to have another person to take notes because of information overload and the emotional nature of it all. If this isn't an option, recording the visit could help with that. Having been through this pre-covid, and at that time having access to the local cancer support place where they offered wig/makeup lessons, meetings etc and now not having that is surreal. However they still offer virtual meditation and group support-whatever they can without getting people in a room together. I am part of a group of local young breast cancer women and they have been doing zoom chats which I'm grateful for. This led to one of them offering me a wig she no longer needs, and another who will lend me partial wigs that can be worn with a hat, and some scarves.