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Apr 29, 2009 10:51AM
I was first diagnosed with DCIS, however, after the first lumpectomy they found two very small areas of Invasive Carcinoma. Too small to stage (<1mm) so I have had a second lumpectomy and a sentinel lobe biopsy (both the additional tissue and the sentinel lobe were negative for cancer).
I have now finished my radiation - April 3. I had 34 treatments, the last 8 of which were boosts. I never burned, just "tanned" mostly under the arm pit area and under the breast. On the 32 treatment I actually had skin peel under my breast due to my bra rubbing. Since finishing the boosts Friday that area is turning slightly red.
As far as the skin problems I had very little. BUT, during the radiation I started having shoulder pain, and numbness and tingling down to my fingertips. I would wake at night with my hands burning, tingling and numb. I have not had any sensation in the tips of my thumb, pointer and middle fingers now for over 5 weeks. I have been referred to a neurologist for these problems. It is belived to be a nerve problem from my neck. I had radiation only to the right side, but my nerve problems are on both sides.
I never had any pain or health problems prior to being told I had this cancer. I thought I was extremely healthy. I don't smoke, drink only a glass of wine once in a while, and watch what I eat. I am 5' 6" and weigh 128. I also work regularly in my gardens and am used to strenuous work. However, I now feel like I hurt so bad some of the time that I wish I never had the surgery or radiation. I can't wait to see the neurologist (May 8). Nothing like having to wait almost two months to get in with one of these guys!
I do believe that if this pain was not caused by the radiation that it at least exacerbated the situation.
Dx 10/30/2008, IDC, <1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-, HER2+, 26 Rads w/ 8 boosts
10/30/2008, IDC, <1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-, HER2+