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Topic: After Radiation

Forum: Radiation Therapy - Before, During, and After —

What to expect from treatment and ways to cope with side effects.

Posted on: Mar 8, 2011 08:02PM - edited Mar 8, 2011 08:05PM by FireKracker

FireKracker wrote:

OK NOW WHAT DO WE DO?

I finished the Rads 3 weeks ago.Now What???

Kind of cream?deoderant?soap?exercise?etc.

How do we get back to our life before BC?

And how long is this process.I would like to hear from other sistas what they are doing and how they are feeling after the RADS are over.

Focktober!!!!Pink stinks!!!!
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Jan 15, 2013 11:38AM LindaKR wrote:

That happened to me over Christmas, now I've cut waaaayyyy back on the bad stuff, and am starting to feel some better.

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema. Dx 3/19/2010, IDC, 4cm, Stage IIIA, Grade 2, 5/18 nodes, ER+/PR+, HER2+ Surgery 4/2/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 5/15/2010 Herceptin (trastuzumab) Chemotherapy 5/15/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 9/15/2010 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Radiation Therapy 9/25/2010 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Jan 16, 2013 10:50PM FireKracker wrote:

Show me the way........sugar is killin me....been sooo bad.

Focktober!!!!Pink stinks!!!!
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Jan 21, 2013 11:19AM ToriGirl wrote:

Wow, I've missed out on so much!

Sounds like everyone is hanging in there though and that's what counts!

The first few weeks of this year had me sick too! First an intestinal bug, okay for about a few days, then a nasty cold from my nephews! Yuck! So glad to be feeling better though!

Hubby left on Dec 22nd.... Been one month already! Only 11 to go! But, I did find out he does get a 15 day break in the middle. So we are trying to decide where to meet! Yay!

Got our house on the market too last week. Definitely no fun when you are feeling fine, just miserable when you feel yucky. But, it's done and now we wait!

Weather has been up and down here. Nothing else exciting going on. Just excited to see you are all still posting!

Prayers are always being said by me for all of us!

Much love,

Tori

"Sorrow carves the opening for joy later..." Dx 6/4/2010, IDC, 1cm, Stage IIA, 1/11 nodes, ER+/PR+, HER2-
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Feb 6, 2013 09:16AM GmaFoley wrote:

Can you ladies jump into my pocket tonight - but don't be too noisy at the party - its a overnight sleep study.Wink

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 8, 2013 06:50PM FireKracker wrote:

Wow GmaF....just saw this post.Hope everything went just fine with that sleep study.

This thread is really played out to the max.

Please pm me and let me know how you made out without the pocket party.

Miss talkin to all my after rads sistas/

big huggggg

grannydukes

Focktober!!!!Pink stinks!!!!
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Feb 8, 2013 07:26PM walley wrote:

Gmaf sorry I missed the pocket party,please let us know how it went:)

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Feb 8, 2013 08:36PM FireKracker wrote:

Hey Walley---nice to see ya.

I  wish everyone would check in once in a while

I miss my girls!!!!!!!!!!!

hugggggggggs

grannydukes

Focktober!!!!Pink stinks!!!!
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Feb 9, 2013 12:32AM GmaFoley wrote:

GrannyDukes & Walley - It took me longer to get to sleep but at 1am they said I met the criteria and they got good information... we will put the CPAP on now for the rest of the night. Thank goodness I brought my own mask.. Got to sleep in until 6:15 LOL.. While checking out they told me it would be 2 weeks before I get results and use my CPAP until they talk to me.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 9, 2013 09:38AM walley wrote:

Gmaf please let us know your results:)grannyD always look to see if any posts.I am coming up on my 2 year since

my diagnosis.I can't tell you how much all the ladies helped me get through.Thank all o fyou.Have a great weekend!

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Feb 9, 2013 08:49PM FireKracker wrote:

Well Gmaf you are bringing my baby out in the open again.I thought we did pretty good for 3 yrs running.

I finish the 3 yr.after rads this month.Dont remember the day.dont wanna either.

Please let us know through here how you made out with that study.....remember this is AFTER RADS.lol.

Congrarts Walley....we came a long way baby.

huggs to both of you

K

GrannyD

Focktober!!!!Pink stinks!!!!
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Feb 13, 2013 09:46AM GmaFoley wrote:

Hello again,

Long time back did we have a discussion on radiation damage traveling down to the hip on the same side?  I went to see my pain management doc after having a grand time with the grandsons, I managed to flare up my hip/bursa some how and can't hardly walk. My doc and I started talking and reminded me all my aches and pains seem to be on my right side.. the pain was so bad that he gave me a anti-inflammatory & pain shot as I can't ingest antiinflammatory meds..  But it got me wondering, if something else is going on?  I walked a little yesterday and traveled to get my new compression cami and this morning I am having horrible pain again.. I am taking muscle relaxers but doesn't seem to cut it - think I have to go back to tylenol #3s.. Any suggestions on what I can do? - Ice, stretching, resting - that is what I have been trying.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 13, 2013 05:31PM FireKracker wrote:

Ice,rest and stretching all the time usually does the trick...tylenol#3 does work but its like a bandaide.

I find if i do too much not only is my body killin me but that arm...oh damn it hurts like hell if i do too much.

everything in moderation.

waiting to hear your other results.

take it easy and breathe...smell the roses and then blow out the candles...10x....it helps to relax the entire bod.I do it at least 2x a day.Try it....

huggs Grannydukes

Focktober!!!!Pink stinks!!!!
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Feb 17, 2013 07:57PM GmaFoley wrote:

Hey Grannydukes, Hugs4u, Walley and Ducky - you have stuck by me through thick and thin.. I have a mild case of everything but I just can't do it anymore..  breast, nerve damage, sleep apnea and now bursitis in the hip... I'm done Just can't fight.. I know I am one of the lucky ones that survived, but a person can only take so much.... what happens happens ....

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 17, 2013 08:50PM FireKracker wrote:

OK GmaF...i too have a mild case of everything.....i hear you but dont understand....

You cannot give up...bullshit with the im done!!!!!!

I just had a son who had a failed brain surgery.14 hrs.for nuthin...nuthin.he had an aneurism and he still has it and dont know about it.

I have to go for stomach surgery if i dont im gonna have to get a colustomy(sp) the bag to poop in.

Sure somedays i wanna say enuf...but i put 1 foot in front of the other and move.is it easy?hell no its not easy but God has a plan for both of us and it doesnt include givin up...

When you reach bottom the only thing you can do is go UP.

please pm me if you feel like talkin.

PLEASE DONT SAY YOU ARE DONE.

Focktober!!!!Pink stinks!!!!
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Feb 18, 2013 08:34AM walley wrote:

GMAfoley.........What Grannydukes said!!!!! I know it is so hard.Just when you think everything is getting better something else pops up.Hang in there, we will be here to listen and help anyway we can!WinkJust take it one day at a time(((hugs))))

Walley Dx 2/13/2011, DCIS, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Feb 18, 2013 12:43PM FireKracker wrote:

Where are all the other sistas????????where? We need support and we need it now.

GmaF...I hope you heard me yesterday.....

Im goin to the dr. soon....Ill be back and i hope to find 1-some other sistas to come here for support and 2-a message from you that you heard me.......otherwise im gonna have to get busy and call in the troops one by one.

ill be back!!!!!!

Focktober!!!!Pink stinks!!!!
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Feb 18, 2013 12:54PM - edited Feb 18, 2013 12:55PM by CarolynVM

Okay, GmaFoley.  We don't know one another but we share a whole lot of life.  This sense of defeat is a sickening sensation I've had also.  I think your Grammie Esther also knew that feeling.  You quote what she learned.  "Grammie Esther: Imagine God in His HUGE rocking chair, rocking you and saying, 'It will be ok,  you can do it. I will be right here for you'."  If Grammie Esther knew this, she learned it from her needs.  Your grandchildren will learn this wisdom from you just as mine will learn from me.  We can't quit on ourselves without quitting for these precious children who will someday need our strength and wisdom for themselves.  I quote my great-grandmother.  You quote your grammie.  Someone will quote us if we've lived a life worth quoting.  That's how life works.

"All bads got goods." (Swiss quotation) -- Oncotype Score 28 -- Lymphedema dx 03/06/13 Dx 11/12/2012, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 11/20/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 2/4/2013 Breast, Lymph nodes Hormonal Therapy 4/14/2013 Aromasin (exemestane) Hormonal Therapy 4/14/2013 Aromasin (exemestane)
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Feb 18, 2013 12:58PM GmaFoley wrote:

I heared just so depressed - granny i PM'd you.  Wish my docs were more understanding about the LE.. in pain and tired - don't make a good combination

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 18, 2013 01:04PM ptdreamers wrote:

GmaFoley, Granny Dukes, One day at a time, sometimes it just seems so hard. There is a very caring group of sisters here who share your miseries. Sometimes we are all having difficulties and sometimes one or two have it bad but we all know and care. Pain is so debilitating that it makes it seem hopeless but it is not.  Work on getting that under control and things will come around again. In both of your pockets. Hugs

ptdreamers, “Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do. . Sail away. Catch the trade winds in your sails. Explore. Dream. Discover.” Dx 8/26/2011, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Feb 18, 2013 01:10PM FireKracker wrote:

GmaF.your drs dont know shit about the LE...none of them do unless they are a LE specialist and they are so hard to find......a good one will not argue with you but help get it under control.I went to 4 different Lana LE therapist...even with having stage 0 i had lots of problems.I know you remember that...I complained all over the board but i found one that made it last on my list of problems.I wish you find one.

I did get your pm and i answered you.

Carolyn thank you for your help.......

I told you ill be watchin you!!!!!!!!

grannydukes

Focktober!!!!Pink stinks!!!!
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Feb 18, 2013 02:27PM Alicethecat wrote:

Hello ladies

I finished 12 rounds of radiation on November 1 2012 so I do know what it is like trying to recover...

Very sorry to hear some of you are feeling down and tired. From what I can remember about my recovery, that unfortunately seems par for the course for a bit but...it does get better!

In case this is helpful, what I found was that every day for a month or so, I seemed to get fatigue that lasted for about two hours. Had to lie down straightaway and rest. Then it disappeared.

It used to start at 2pm every day, then 3pm, then 4pm, 5pm and so on. After about a month or so, if the fatigue happened, it must have happened overnight because I didn't notice it anymore.

Pleased to say that I don't get fatigue much at all now - and if I do it is for half an hour, no longer than that.

Hope you are not expecting too much of yourselves!

Happy healing.

Alice

Dx 1/4/2012, IDC, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR+, HER2+ Surgery 2/6/2012 Mastectomy: Right Targeted Therapy 7/18/2012 Herceptin (trastuzumab) Radiation Therapy 10/2/2012 Breast, Lymph nodes
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Feb 18, 2013 03:55PM GmaFoley wrote:

AliceCat, thanks for the encouragement - unfortunately, I'm going on almost 2 years post radiation and the pain didn't get better and the pain management doc is suggesting an implanted stimulator to help with all the nerve pain.. I can't afford the surgery even if I decided to go that way and get off all my pain meds so maybe the brain fog would go away.. 

Don't get me wrong, it makes me happy that some of us are lucky and feel better everyday.. not working for me... Smile - I try to smile. Today, I'm not.Undecided

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 18, 2013 04:23PM - edited Feb 18, 2013 06:30PM by new2bc

Hi everyone,

I have been reading your forum for a while. I understand that some of you are suffering greatly after your diagnosis. I hope all of us will have enough strength to continue this long journey. I have a favor to ask anyone of you to give your honest opinion. I understand that we do not have a crystal ball to know exactly what will happen in future. I am in a dilemma where I can not decide if radiation will benefit me or harm my other organs such as heart and lung. I asked my question a week ago under another forum but nobody answered me. Here is my situation:

I was diagnosed with 3 different areas of cancer (IDC) plus an area of pagets disease in my left breast. The largest tumor was 9mm. I am stage 1b grade 2, ER+, PR+, HER2-

They did SNB which was clear and 2 lymph nodes were taken from my left underarm which were clear. My oncologist did not recommend chemo. I had double mastectomy with no reconstruction. I met with my RO and he suggested I do radiation for 6 weeks because I had scattered areas of cancer + pagets on the left breast. The radiation is not going to involve my underarm. I get scared sometimes when I read that it can cause damage to my lung and heart. I asked my RO and he said that is why he is doing a CT scan to map out where things are. I also asked him if the chances for lymphedema is being increased because of radiation and he said he is not going to radiate my underarm so that should not be an issue. I just would like to get your opinion to see what you think. I need to make a decision fast. Do you think the benefit of radiation outweighs the complications that may cause? My oncologist did not recommend chemo but wanted me to take Tamoxifen afterwards. Thank you for your help.

GmaFoley,

I hope you are feeling stronger now. Hang in there! It looks like you have very good sisters in this forum very concerned about you. My emotions are all over the place. One minute I feel strong. The next minute I am crying in despair. But we have no choice to hang in there and be strong.  

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Feb 18, 2013 09:03PM ptdreamers wrote:

new2BC, I would ask what kind of radiation machine they are using. The newer one cause much less radiation damage if any to the heart and lungs. Have your radiologist show you the field they are going to irradiate. Good luck.

ptdreamers, “Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do. . Sail away. Catch the trade winds in your sails. Explore. Dream. Discover.” Dx 8/26/2011, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Feb 18, 2013 09:16PM FireKracker wrote:

New to bc....welcome to the best thread there is!!!!!!

i have a major question for you...you dont have to answer it but to me AGE is the biggest factor

Like if you are old like me I didnt have to do chemo but i did the rads and it wasnt that bad.I will not take the 5 yr.meds cause of my age BUT if i was younger damn i would hit it with everything i had.

I finished the rads 3 yrs.ago and started this thread.You should start from the begining and really see these wariors all sizes,shapes and colors and we all did things kinda together.

And yes i did rads on the left side....Im still goin strong....

BTW i got a clean bill of health to go to do my stomach surgery.Goin to the surgeon on wed.

Please keep us posted...We care.

Focktober!!!!Pink stinks!!!!
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Feb 18, 2013 10:16PM new2bc wrote:

Hi grannydukes,

First of all, I am very happy that you have a clean bill of health to do your surgery. I hope it goes very well and you can get back to this forum soon since all the sisters need you. 

I am sorry I forgot to mention my age. I am 50 years old. I do not know what kind of radiation machine they are using. RO told me that the CT scan will map out where things are. There will be a simulation before the treatment. He said it will take 5 min everyday (M-F) for 6 weeks. Should I ask them any other questions besides showing me the field they are radiating?  

ptdreamers,

Thanks for your quick response.  

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Feb 18, 2013 10:50PM FireKracker wrote:

newtobc---you are only 50 yrs old? damn you have everything to live for sooooo if i were you i would listen to your dr.....only if you love him and trust him.We will be here for you to answer any questions.If we dont have the answers we will find it.Most rads machines are very modern now.

Yes the rads tx.is like 5 min.the max.its like a machine that quickly scans the breast gives it a zap that you will never feel and bingo you are done.....

ask your RO if you are getting tattoos.i got i think about 5 or 6...another zap 1-2-3 and its done.Some drs, use the magic markers but not mine.I got the real thing.They want things perfectly lined up.

There is a saying that rads are a walk in the park....yeah for some sistas it was....everyone is different.

You dont have to enjoy it you just have to show up....

You can do this and we will be there holding your hand.

xoxoxo Grannydukes

Focktober!!!!Pink stinks!!!!
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Feb 19, 2013 11:44AM LindaKR wrote:

Gma - I know exactly what you mean, pretty much in that same place.  I'm getting a referral to you pain guy!  Excited!!!  Take care and you're in my prayers.  Maybe we can have coffee when I come over for my appointment.  I seem to spend my at home time crying or sleeping or just staring at the wall - so tired of pain, fatigue, fighting for my disability, being disabled...... 

I'm putting my happy face on now and heading off to volunteer at the cancer infusion center Cool  It actually does help me when I go, puts things in perspective.

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema. Dx 3/19/2010, IDC, 4cm, Stage IIIA, Grade 2, 5/18 nodes, ER+/PR+, HER2+ Surgery 4/2/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 5/15/2010 Herceptin (trastuzumab) Chemotherapy 5/15/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 9/15/2010 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Radiation Therapy 9/25/2010 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Feb 19, 2013 11:49AM GmaFoley wrote:

It will nice to meet you when you come my way.  If you need a place to rest, we have an extra room!  Just let me know.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Feb 19, 2013 11:52AM LindaKR wrote:

Thank you Gma - are you doing any better today? 

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema. Dx 3/19/2010, IDC, 4cm, Stage IIIA, Grade 2, 5/18 nodes, ER+/PR+, HER2+ Surgery 4/2/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 5/15/2010 Herceptin (trastuzumab) Chemotherapy 5/15/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 9/15/2010 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Radiation Therapy 9/25/2010 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)

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