Sep 30, 2021 11:51PM Esther01 wrote:
NatureYogi, congratulations on having your first day behind you!! That is awesome.
Maryoe, I hope your simulation goes well. Make sure they help you get into the most comfortable position possible since you'll be in that same position throughout.
Aklynna, I felt the same way. This whole part of our treatment takes a mental toll on us because all our lives we run away from radiation damage, and now we're instructed to lie down and deliberately radiate ourselves. My brain had a hard time with that and wanted to run away! But, thanks to loving support here, from my rad techs, and from my family and friends, I got through the 35 treatments and just celebrated being done. I never had any fatigue at all. I think that might be because I did not have chemo right before (or at all). I also drank a lot of water and exercised every day even when I truly felt like skipping it.
My cording and ROM is getting better which is a relief. For what it's worth, while my breast and back (since the rad beams come out there) got REALLY reddish tan, I only briefly had a bit of nipple sensitivity and of course some itching like others have mentioned. But my skin never broke, peeled, or blistered. I am one week out and it's not even peeling, it's just tan which is fading each day. I mention all that because everybody responds differently (and as I was laughingly mentioning earlier, I think my once weekly shower might have actually helped).
Speaking of lotioning, I was careful not to lotion within 3 hours of getting rads, but my RO surprised me by saying that admonition is an old wives' tale and that I didn't have to forego lotioning before radiation. Well, that message didn't get to his rad techs, who repeated what I have always heard - that you should NOT lotion within 3 hours of treatment. So even though the RO had assured me it was fine, I played it safe and never did. The calendula cream would get pretty well absorbed so I could apply it three times a day and it never got greasy. I tried aquafor only once.
Anyway, hope that helps. I am thinking of you gals who are just starting. You'll get through this! I hope your commutes will not be too bad. When we do something difficult like this together, it is so much more bearable and manageable and for that I am so grateful.