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Aug 31, 2020 11:20AM
I had IDC , lumpectomy, re-excision, chemo and radiation (24 nodes removed due to failed SNB, all neg) in 2003.
I refused Tamoxifen or AI
I thought I would never get breast cancer again, largely because I was told so many times that it comes back in the first five years, rarely after that. NOW, I know that is completely wrong, but I was told that by doctors!
Then after a long fall of seeing specialists for multiple other health issues, I ended the year with a diagnostic mammogram due to pain in left breast. (I might add, I was ALWAYS told pain is NOT a symptom of breast cancer. Also, WRONG! ) Nothing showed up on the mammogram but they did an US and it showed up on that. A new ILC in the same breast.
Biopsy in 11/2018, left mastectomy 01/2019 with DIEP reconstruction. I tried AI for 6 months and it raised my cholesterol significantly. I wasn't in agreement that lessening estrogen is a good thing for all post-menopausal women with breast cancer, so I quit and my only regret is that I ever took it in the first place.
As for BMX, I wanted that but was refused. I was told the cancer hospital I went to has a policy of not removing a healthy breast unless the patient is BRCA + ! At first I was angry. Now I see it as "water over the dam," and I put it behind me.
Then the other "Big C" aka Covid 19, came and for me, breast cancer is no longer what I worry about.
6/6/2003, IDC, Left, 1cm, Stage IA, Grade 1, 0/24 nodes, ER+/PR+
12/4/2018, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH)