Topic: Arimidex - Coping with the SE's

Forum: Hormonal Therapy - Before, During, and After — This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Jul 28, 2010 10:22AM - edited Nov 15, 2017 11:01AM by moderators

Posted on: Jul 28, 2010 10:22AM - edited Nov 15, 2017 11:01AM by moderators

Lowrider54 wrote:

Not just for Arimidex but all the Hormonals - se's are so similar so coping with them should also be similar and the remedies offered should work for any of the Hormonals - don't go away, read on if you are taking any of the hormonal treatments....

For those of us who are taking this potentially life saving/life prolonging drug, it does not come without side effects. There are some very lucky folks who don't have any...GREAT! But for those that do, lets share how we cope with the hot flashes and night sweats and stuff.

The 'Arimidex' thread covers more than just side effects and coping - there is much debate over it going generic and the effectiveness of its use. I am putting this up in hopes that new users can find the answers concerning the se's easily. Of course, please visit the Arimidex thread for more information concerning the statistics, research and controversy surrounding many of the AL's and new treatments we are being offered today.

Treatment is always a personal choice - if Arimidex is your choice, these kind folks can help you manage some of the issues that some with taking it.

I elected to take a low dose of Effexsor to aide with the hot flashes and night sweats. It worked very nicely for me. Water intake and walking assists with the possible joint pain. I eliminated as much gluten from my diet as I could (that stuff is in and did not experience weight gain - I did experience 'weight re-distribution' however - it seems to go to the tummy. I haven't found a good solution for that yet. Cool

Good Luck All!



Edited by Mods to add content from the main site on Arimidex: Benefits, Side Effects and More will make people wonder what you are up to...Initial dx 04/99 - CMF; 9/2009 bone mets Arimidex; 6/2010 Faslodex/Xgeva; 8/2011; abdominal wall invaded, ER/PR flipped to TN, Abraxane/Avastin//Xgeva 09/02/2011; 11/2011Xeloda/Avastin/Xgeva. Dx 9/16/2009, Stage IV, 5/25 nodes, mets, ER-/PR-, HER2-
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Nov 29, 2010 09:39AM molly52 wrote:

Hi jp3 - Welcome to our forum.  Sorry you have to be here.  Here you are allowed all the self pity and rants you need.  We understand.  With you history of osteoporosis, I would be surprised if they put you on Arimidex.  I may be wrong, but I believe Tamoxifen is better for bones.

enjoyful and susand - my appetite changed on Arimidex.  I am still trying to figure out why.  I  couldn't eat anything I cooked or prepared myself.  I existed on frozen meals, restaurants and junk food.  After a long while, I learned to cook one day and eat it the next and fruits were okay; vegetables weren't.  I am wondering if it was my sense of smell (it diminished) or my taste buds went out of wack.  Just mentioning in case it helps at all.

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Nov 29, 2010 09:49AM Enjoyful wrote:

Thanks, molly!

Actually, that does help.  I'll be sure to mention it to my onc on the 16th, because he doesn't see these side effects too often.  I'm curious if your onc had an opinion on it? 

I haven't lost my taste buds or sense of smell, but nothing looks appetizing.  Especially vegetables!

BENGHAZI! Dx 9/2004, IDC, 1cm, Stage IIIA, Grade 2, 4/14 nodes, ER+/PR+, HER2- Dx 8/28/2009, IDC, 2cm, Stage IV, Grade 2, ER+/PR-, HER2-
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Nov 29, 2010 11:32AM molly52 wrote:

The day my onc gives an opinion on a side effect, I will fall on the floor!  The process here seems different from the US.  Oncs deal with treatments/chemos, GP's everything else.

Ya vegetables.  Don't know why I carried them home from the store.  Should have just dropped them in the garbage on my way out.  Complete 360 from pre bc.

I still like chocolate.  No problems there.

Do you eat better when you are out with friends?

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Nov 29, 2010 11:43AM hound wrote:

On Arimidex for three months, then was able to get the Generic Anastrozole for a lot less money. The generic was produced by Zydus.  The new year is coming and now it seems that the generic has disappeared from all of the Medicare drugs programs and is no longer available.  For the year 2011 I will have to purchase the drug Arimidex at a more substantial price which will place me in the "donut hole".. Does anyone know anything about the generic and why it is not longer available??

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Nov 29, 2010 11:43AM JanetinVirginia wrote:

OK ladies - so today was the day.  I've had my A prescription for two weeks - been putting it off and told myself I'd start after Thanksgiving.  So I stared at the bottle for a while, then cut the pill into fourths!  Took one fourth and keep waiting to be hit by lightning or something.  Am I a total wimp to want to ease into this? 

Dx 9/1/2010, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Nov 29, 2010 01:41PM Raj20 wrote:

I am with Arimidex  for about 3 and 8 months. Its is very difficult to get the same from medical store in my place. I have to order it beforehand otherwise  it has to brought from the Capital on higher price. Last week, there was only 4 strips (14 tabs in one strip) in the store. They allowed me only two strips for 28 days. I have decided to confirm from  my doctor on my next follow up check up in Jan,2011 that, for how long  Arimidex is to be continued as  I am having appetite change problem as Moly52 says and weight gain is secondary.

snehlata Dx 3/26/2005, IDC, Right, 2cm, Stage IIB, 1/1 nodes, ER+/PR+, HER2-
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Nov 29, 2010 01:49PM don23 wrote:

Janet - you're not a wimp. After reading the posts here it is understandable you're a little nervous. I had to laugh about the waiting to get hit by lightning. At least you have a sense of humor about the whole thing. Keep up your good spirits and I'm sure you'll do fine.

Dx 4/10/2009, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Nov 29, 2010 02:52PM nativemainer wrote:

Jp3-No need to excuse yourself. This is the place where we come to rant, rave, cry, get answers to questions, and generally find understanding. Of course you are angry. Of course the ER/PR+ status doesn't sound like good news. The fact that I have a "good" variant of breastcancer does not mitigate the fact that I had cancer. There is no such thing as a "good" cancer.

Enjoyful-it always creates a lot of discussion when I teach nursing students about pain control and addiction. Addiction is a psychological/behavioral condition where a person takes a substance not for the use it is intended, but for a side effect, usually euphoria. A person cannot become addicted to a pain medication as long as the person has pain. A person can develop tolerance, which is the purely physical effect of the body adapting to the presence of the substance, and needing more to get the same effect. That's why someone on pain medication for a long time needs to have the dose increased periodically to keep the pain under control. If the pain goes away (if the cause of the pain is corrected) then the person needs to be taken off the pain medication gradually, in steps, to prevent physical withdrawal symptoms. The person being weaned off a pain medication is not considered addicted. Take the medication if you need it, there is no reason not to have pain control. If the pain goes away your doc will wean you off the pain meds.

JanetinVirginia-no you are NOT a wimp! We go through a lot of h@##ish treatments on this journey, so it's not surprising that we end up a little skittish about something new. If you want to take a quarter pill a day for a few days, then half a pill for a while, and so forth, go ahead and do that. It won't hurt anything, and if you are more comfortable, that's important. There's no reason not to ease into this if you want to.

"I have come to believe that caring for myself is not self indulgent. Caring for myself is an act of survival." Audre Lorde Dx 3/9/2007, IDC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/14/2007 Lumpectomy; Lumpectomy (Right) Surgery 3/28/2007 Lumpectomy; Lumpectomy (Left) Radiation Therapy 4/9/2007 Breast Hormonal Therapy 10/4/2007 Hormonal Therapy 4/24/2008 Arimidex (anastrozole) Surgery 8/14/2008 Mastectomy; Mastectomy (Left) Surgery 6/20/2010 Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
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Nov 29, 2010 02:59PM ruthbru wrote:

Vegetables, I didn't know that they were SUPPOSED to taste good!!! Unless, of course, they are cooked in a cheese sauce or dipped in ranch dressing........Tongue out
"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Nov 29, 2010 04:38PM JanetinVirginia wrote:

don23 & native mainer - Oh thank you so much for your kind words.  I'm just really scared and if I don't laugh I'll cry - so I try to find some humor on this journey.  I don't think I've ever taken 2 tylenols at one time in my whole life - and that includes after mastectomy - never filled the pain meds (but I had very little pain or I would have).  One glass of wine makes me tipsy & so on.  Therefore taking heavy duty pills is going to take some getting used to.  So far, having taken 1/4 a pill, I'm happy to report NO SIDE EFFECTS :):)   (laughing again) 

JP - I "met" you on another thread and my last Dexa put me into the osteoporosis. So, I'm with you on that worry.  Even tho I'm post menopause, the onc wanted me to take Tamox because of the bone issue, but the blood test results showed I would not metabolize it.   So, we're trying Arimidex and he has me on Vit D because that was low.   I've been reading about zometa & reclast (same drug ingredient) and that does show a lot of promise in rebuilding/protecting bones & added bonus of reducing bc recurrence as someone else said.  And, I don't think it has the same risks as fosamax and some of the others (which are different drugs).  Still researching and will ask at my next visit.

Dx 9/1/2010, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-

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