Posted on:
Feb 24, 2022 06:17PM
L
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Apr 6, 2022
Posted on:
Feb 24, 2022 06:17PM
livinginparadise
wrote:
Hi everyone!
Went in today for a vaginal US which shows very thick uterine lining. No polyps or fibroids.
My last two periods have been very heavy and painful and last longer than usual.
The Dr said this could be caused by the tamoxifen but that I need a biopsy.
I'm obviously scared, and sad. Just hearing the word biopsy, again. And knowing this is my life, I will always need tests and tests and tests. Will I ever stop feeling scared?
Any of you experienced thickening of the uterus with tamoxifen
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veeder14
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Jun 21, 2022
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May 22, 2022 05:02AM
veeder14
wrote:
Hi eauclaire
My uterine lining was 2mm when I started Tamoxifen and 17 mm 4 months later. I wasn’t taken off of Tamoxifen but had a hysterectomy so I could continue taking it. I was 61 and post menopausal at that time. I didn’t want to switch to AL medication instead.
sounds like your lining is getting thicker but no where near how quickly mine did. I just know my lining thickness was out of control. Why would you need a biopsy? Are you having bleeding? Let us know what your Oncologist recommends
Dx
1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2-
Surgery
1/26/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal
Radiation Therapy
3/8/2018
Hormonal Therapy
2/28/2019
Hormonal Therapy
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rah2464
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Jul 2018
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Jul 4, 2022
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May 22, 2022 05:49AM
rah2464
wrote:
Eauclaire that is the plan with me but that means going to an AI and that gets complicated with my bones. My lining has thickened to 8.7 and I have had some bleeding. So off for a procedure for me. You should have a biopsy just to make sure - but what a pain. Your oncologist should refer you to an oncological gyno for care. In fact, I would think they would refer you without even having to see you just to get the ball rolling. That is what my oncologist office does but everyone different. Nothing about this is easy is it?
Dx
5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Surgery
6/27/2018 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
Hormonal Therapy
7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
R
rain88
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Jan 2020
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165
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Jul 3, 2022
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May 22, 2022 11:30PM
rain88
wrote:
I was peri-menopausal before starting on Tamoxifen, and after 15 months on it, I had a massive bleeding. The vaginal US showed a 24 mm thickened uterus, but in turned out it was a large - benign PHEW! - endometrial polyp. My MO did take me off Tamoxifen though, and advised to stay off it.
Dx 27/7/2019, Mucinous, 11 mm, Stage 1, Grade 1, 0/10 nodes, ER+/PR+, HER2-, Lumpectomy (right), Radiotherapy, Tamoxifen (15 months)
Surgery
10/1/2019
Surgery
10/1/2019
Radiation Therapy
11/27/2019 Whole breast: Breast
Radiation Therapy
11/27/2019 Whole breast, Radiation boost: Right breast
Radiation Therapy
11/27/2019 Whole breast, Radiation boost: Right breast
Hormonal Therapy
1/1/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
Lumpectomy; Lumpectomy (Right)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
Whole breast, Radiation boost: Right breast
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
Lumpectomy (Right)
L
ladyc2020
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Jun 26, 2022
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May 24, 2022 03:51PM
ladyc2020
wrote:
livinginparadise-
I was taking Tamoxifen for less than 2 months and developed thickened lining - 18mm. Had the biopsy and hysterscopy and d/c. All benign. Stopped tamoxifen right away and did the gene test - I don’t metabolize tamoxifen so all side effects and no benefit. Fingers crossed for you.
Hormonal Therapy
2/28/2020 Femara (letrozole), Zoladex (goserelin)
Dx
8/6/2020, IDC, Left, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2-
Hormonal Therapy
8/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
9/18/2020 Lumpectomy; Lumpectomy (Left)
Dx
9/23/2020, DCIS, Left, 2cm, Stage 0, Grade 1
Radiation Therapy
10/31/2020 Whole breast: Breast, Chest wall
Hormonal Therapy
Arimidex (anastrozole)
P
pinger2474
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Sep 2020
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12
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Jun 22, 2022
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May 29, 2022 03:14PM
- edited
May 29, 2022 03:16PM
by
pinger2474
Thanks Rah for your well wishes. Since the ultrasound which uncovered 14mm lining, I ended up getting a very heavy period after not having a period in 8 months and another period the following month. So even though I'm going to be 56 this year I am clearly not going into menopause. Would having a period decrease the lining?
I did end up getting a uterine biopsy which was interesting because the gynecology oncologist couldn't see the cervical polyp that my regular gynecologist mentioned. Maybe it detached with the heavy period? They did find a benign endometrial polyp which I am planning to have removed soon. Rain, I did ask about whether I should stop my Tamoxifen usage which is only 5mg a day but both. MO and GO said no. Are you on something else? Hope you are doing well. We have the same type of BC, mucinous.
Hope everyone is staying safe and healthy.
Dx
7/1/2020, IDC: Mucinous, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Surgery
7/23/2020 Lymph node removal; Mastectomy
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
R
rain88
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Jul 3, 2022
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May 29, 2022 03:48PM
rain88
wrote:
Pinger, I am doing all right, thanks. I am not on anything else. I was on 10mg of Tamoxifen, as I couldn't tolerate well the 20mg dose. On 10 mg, I still had lots if side effects, but tolerable. After the episode of heavy bleeding we discussed switching to an AI, but my MO pointed out that I would most likely have another plethora of side effects. He then suggested to stay off estrogen blockers all together, since the benefit from them in my case would be in the range of 1 to 3%. Our type of cancer, as you most likely know, is also less aggressive, so I took that into account when I made the decision. All the best and lots of positive vibes going forward. ♥️
Dx 27/7/2019, Mucinous, 11 mm, Stage 1, Grade 1, 0/10 nodes, ER+/PR+, HER2-, Lumpectomy (right), Radiotherapy, Tamoxifen (15 months)
Surgery
10/1/2019
Surgery
10/1/2019
Radiation Therapy
11/27/2019 Whole breast: Breast
Radiation Therapy
11/27/2019 Whole breast, Radiation boost: Right breast
Radiation Therapy
11/27/2019 Whole breast, Radiation boost: Right breast
Hormonal Therapy
1/1/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
Lumpectomy; Lumpectomy (Right)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
Whole breast, Radiation boost: Right breast
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
Lumpectomy (Right)
R
rah2464
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Jul 4, 2022
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May 30, 2022 05:36AM
rah2464
wrote:
Pinger - the heavy period should shed the uterine lining but I would plan on a follow up pelvic ultrasound since you had a clean biopsy and you are continuing on the tamoxifen. I would think your GO would have that it the plan as an annual check.
My D&C is Wednesday will be so glad to get it done and determine if I have an issue or not. My MO has already pulled me off the Tamoxifen. I will get my original tumor tested early (at four years not five) to see if I need to try an AI.
Dx
5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Surgery
6/27/2018 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
Hormonal Therapy
7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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ladyc2020
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Jul 2020
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188
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Jun 26, 2022
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Jun 3, 2022 02:24AM
ladyc2020
wrote:
rah - I hope you’re feeling well after the d/c yesterday. Fingers crossed for you.
Hormonal Therapy
2/28/2020 Femara (letrozole), Zoladex (goserelin)
Dx
8/6/2020, IDC, Left, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2-
Hormonal Therapy
8/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
9/18/2020 Lumpectomy; Lumpectomy (Left)
Dx
9/23/2020, DCIS, Left, 2cm, Stage 0, Grade 1
Radiation Therapy
10/31/2020 Whole breast: Breast, Chest wall
Hormonal Therapy
Arimidex (anastrozole)
R
rah2464
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Jul 2018
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1,559
Latest activity:
Jul 4, 2022
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Jun 3, 2022 05:01AM
rah2464
wrote:
Thank you so much ladyc2020 ! My results posted late yesterday and thankfully all benign. I was anticipating some dysplasia but all clear whew! Thankful it won't be a hysterectomy summer.
It will be interesting to see where my post op discussion goes given the level of irritation in my uterus.
Dx
5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Surgery
6/27/2018 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
Hormonal Therapy
7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
S
salamandra
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Oct 2018
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1,441
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Jul 2, 2022
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Jun 3, 2022 06:30AM
salamandra
wrote:
Yay!!
Dx at 39. 1.8cm. Oncotype 9.
Dx
9/19/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
Surgery
10/18/2018 Lumpectomy; Lymph node removal
Hormonal Therapy
11/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
12/3/2018 Whole breast: Breast
Hormonal Therapy
12/19/2019 Fareston (toremifene)