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Feb 9, 2019 08:05AM
Grannax - I'm happy to hear you are feeling better now that you're off A/A. May Xeloda be easy and effective for you!
MM - Sounds like you are doing better as well, though your blood sugar sounds concerning. Hope it stabilizes soon. I'm thinking this may not be the best tx for those with diabetes. When you restarted A/A after your break, did your mo order a lower dose?
Nancy - I have never had any kind of chemo and am terrified of the "big chair". Your description of lots of ladies coming and going for infusion with all their hair and plans for the rest of the day cheered me up too! Hope this second attempt at A/A gets easier for you, but if not, Xeloda sounds like one of the better options.
Shetland , Theresa, and HLB - Thanks for the good reports on Xeloda, it is very heartening to hear that some do well on it for years rather than months, and with good QOL.
Nkb - I agree with what you said about trying to get a few months from this drug and a year from the next one while waiting for a new and better drug to come around. My MO is very by the book, so I expect Xeloda will be next (when A/A fails) for me too.
My body seems to have adjusted to this tx so far. I had a blood draw this week and all my blood work looks normal again. Mouth sores have been minimal so far and I am still able to live pretty normally. I hope I don't come off as an insensitive jerk by saying I'm doing okay when everyone else seems to be having such a rough time. I am only 1 1/2 months on Afinitor, but would like to give others starting this tx some hope that it may not be horrible for them.
Wishing everyone tolerable and effective TX!
"What do you know, and what do you just believe?" Linda Hogan "Power"
7/1/2014 Lumpectomy: Left
8/1/2014, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 4/7 nodes, mets, ER+/PR+, HER2-
8/4/2014 Arimidex (anastrozole)
4/30/2015 Faslodex (fulvestrant)
8/17/2015 Ibrance (palbociclib)
11/20/2018, IDC, 1cm, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH)
12/4/2018 Aromasin (exemestane)
1/1/2019 Afinitor (everolimus)
7/16/2019 Faslodex (fulvestrant)