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Apr 13, 2019 10:53AM
Nanci - Sorry to hear about your neutropenia, but glad you are adjusting well to this combo otherwise. Was your ANC low before starting A/A? Hope your body gets busy making some neuts during your week off. As your mo has explained it, is there a difference between bone marrow mets and bone mets? My mo says no, but from other posts on bco I had the impression there was a difference. May I ask why you were off tx for 2 months? Yay for TMs going down after only 26 days, this has got to be a good sign.
Angie - That SOB must be scary. Hope that getting rid of that fluid around the lungs will make it easier for your heart to keep up. Sounds like your scan was sort of similar to mine in that it showed somewhat mixed results. Maybe A/A is slow to work on bone mets?
My mo and I decided to stay with A/A for another 3 months in spite of progression to pelvis, then scan again. I always ask for a copy of my PET scans and seeing those brightly shining areas is kind of disturbing, but I can't imagine changing to a different tx again so soon. My CA-15 TM has always stayed in the normal range, but nearly doubled when Fas/Ibrance failed. Since starting A/A they have been coming down a couple points each month, so keeping my fingers crossed.
Has anyone else noticed weird changes in BMs? That and fatigue seem to be my lingering se's now. Body aches were bad for a while, but seem to have tapered off. Maybe because fatigue is making me too lazy to do much of anything, ha ha!
Hugs to all,
"What do you know, and what do you just believe?" Linda Hogan "Power"
6/30/2014 Lumpectomy: Left
8/1/2014, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 4/7 nodes, mets, ER+/PR+, HER2-
8/3/2014 Arimidex (anastrozole)
4/29/2015 Faslodex (fulvestrant)
8/16/2015 Ibrance (palbociclib)
11/20/2018, IDC, 1cm, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH)
12/4/2018 Aromasin (exemestane)
1/1/2019 Afinitor (everolimus)
7/15/2019 Faslodex (fulvestrant)