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Feb 6, 2014 11:34AM
Brooklyn & petjunkie, thank you very much for your responses. We must be a really small group, but I'm happy to have found the two of you who are on Kadcyla.
Brooklyn, I'm thrilled to hear that you've been on the drug for a year and that the se's are manageable. It seems that fatigue and a little nausea are fairly common for about 3 days after treatment; I think I can deal with that. It's wonderful that you got to NED on this drug. That really gives me reason for hope. I read about one lady who had to stop the treatment because of bad neuropathy in her feet and legs, so I'm glad to hear that hasn't been a problem for you. If you're able to run after a four and a six year old, then you must be doing really well. You don't know how great that makes me feel!! I hope you upcoming scans are good for you and that you continue the have success on Kadcyla.
petjunkie, it's great news that you've also been on the drug for almost a year now and that you feel normal most of the time. That's really encouraging information for a Kadcyla newby like me. Do you take anything for the hot flashes? I started taking Zoloft several years ago, and it works very well, even for the 9 years I was on Arimidex. I'm sorry to hear that you got a brain met but very happy that the gamma knife got rid of it. I'm glad that the mets in your bone and liver remain stable. My only mets are in my liver, and I hope Kadcyla zaps them. I already take potassium because mine is low due to the terrible diarrhea I've had on Perjeta. I'm looking forward to getting rid if that problem. I wonder how long it will take for the Perjeta side effects to get out of my system.
Thanks again for the information. Maybe there are some more Kadcyla/TDM1 ladies out there who will chime in with their own experiences. It's always comforting to talk to others in the same situation.
Dx 09/03, ILC, Stage IIIa, 7 cm, 4/18+ nodes, ER+/PR+, Her2-, 11/05 BL DIEP, 5/13 Stage IV, dx mets to liver
9/15/2003, ILC, 6cm+, Stage IIIA, 4/18 nodes, ER+/PR+, HER2-
9/30/2003 Mastectomy: Right
10/14/2003 AC + T (Taxol)
4/14/2004 Arimidex (anastrozole)
11/16/2005 Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
5/27/2013, ILC, 6cm+, Stage IV, ER+/PR+, HER2+
6/23/2013 Herceptin (trastuzumab)
6/23/2013 Perjeta (pertuzumab)
6/23/2013 Taxotere (docetaxel)