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Apr 22, 2015 03:37PM
I will join the club…..and hopefully be a long standing member.
My story briefly:
March 2014 diagnosed with bi-lateral breast cancer. One = ER/PR+ and the other is ER+/PR-. Both were HER-. Originally thought to be a stage 3 but a PET
showed a very, very small spot in the sacral region. They were unable to biopsy due to location. Two of three radiologists thought it was not a met. I did 12 x
Taxol and 4 x AC. They then did another PET. Unfortunately the spot in the sacral had a complete response to chemo so they deemed me stage 4. They decided to still pursue a double mx. I had the operation in September 2014. My lymph nodes showed as completely clean. I then went onto 28 rounds of radiation which I finished in November. I started Aromasin and monthly Zometa in September. I had another PET in late March which showed NED-nada! They say they can’t even see
where the spot was in my sacral.
That being said-I am still terrified at times. I saw this thread yesterday and have been nervous to post on it because I don’t want to jinx myself. I am so grateful to have most of my life back after having a lot of treatment for the past year. The treatments, operation, etc went very well and I only missed chemo appointment times from work. Never was sick, etc. Only missed seven days of work for my mx too. I am now fighting with my hair, but no matter how crazy it is, I am just glad to have some!
Physically I am back to biking 20+ miles, running a couple here and there, etc. I also am around the corner from getting my permanent implants too!
On the good – I can absolutely relate to cafelover’s take on in some ways it’s been a blessing (assuming I continue to do well and stay NED). I am more focused on my family, friends, work, hobbies, etc – I don’t worry about all of the stupid little things I used to.
On the bad – the anxiety that this could be my only NED period is terrifying. I also get a little upset about the number of appointments I now have to have (even though
my work place has been WONDERFUL), I get sad that I may not be around to retire with my husband, etc. I hope I don’t appear as being whiny to those who are dealing with much worse situations than I am.
I think this thread will be a great resource and source of hope! Thank you for starting it.
3/2014, Stage IIIB, ER+, HER2-
3/27/2014 Taxol (paclitaxel)
8/2014, Stage IV, 0/2 nodes, mets, ER+, HER2-
9/4/2014 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
9/25/2014 Aromasin (exemestane)