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Jun 8, 2015 09:50AM
Jun 8, 2015 09:51AM
Good Morning fellow NED members,
Some of you have seen my posts over the past two years, however I'll make a formal introduction. I was diagnosed Stage IV from the getgo having a bone scan confirm multiple mets. In fact I had a pathologic fracture that was healing in my pelvis, the month before for diagnosis. You can see my bio in my signature. I own a wedding planning business and specialize in destination weddings, which feeds my love of travel. One year, not too long ago I flew over 110,000 miles for weddings. My poor sweet, patient husband felt very alone since I'd be gone at least 1 week a month.
I have a very strong Catholic faith, and know that the timing of my diagnosis was planned perfectly. On New Years Eve of 2013 I said out loud, I wonder why I don't have any destination weddings this year? 4 weeks later I learned why. I had a BMX with TE two weeks after dx. I had an allergic reaction to the steri strips so ended up with a second, unexpected surgery which delayed chemo for several weeks. But the day after my 3rd grandchild was born, I start CT. I had a complete response as evidenced by a PET/CT after 4 rounds. My Onc said, "a case could be made for no more chemo, on the day of my scheduled 5 of 6 rounds. I decided to add icing on the cake and voluntarily had my final infusion which was July 3, 2013.
I was able to keep my business running and in fact worked several local weddings during chemo, but it was taxing. Phew, I felt like a wet noodle most of the day, but have a strong team who stepped in and propped me up. I have almost completely retired from doing destination weddings because I am feeling more like a home-body and I miss my husband and family terribly, when I'm gone. We have six children and six grandchildren, all of whom live within a few miles of us.
Anyway, just last month I had my implants removed due to constant pain and discomfort. I have been able to wean off of Oxycodone, which I was taking for almost 2 1/2 years and now manage any residual pain with OTC.
My next scan is scheduled for September, so I'll blissfully and optimistically look forward to a wonderful summer. Thanks for letting me be part of a happy club, albeit one I wish I didn't have to join.
2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2-
4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
7/19/2013 Femara (letrozole)
11/25/2015 External: Bone
1/10/2016 Faslodex (fulvestrant)