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Topic: All About Doxil

Forum: Stage IV/Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Apr 10, 2019 03:04PM

wallaby715 wrote:

As I haven't seen a specific page related to just Doxil treatment, I thought I'd start one because that is likely my next treatment progression and I've seen little discussion of it here. So, who has been on Doxil? What were the SEs? How did it affect you after the treatment, i.e. how long were you not feeling well or completely "down"? How long have you been on it? Anything else you can think of to relate would be helpful! Thank you!

Cindy

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 10, 2019 09:48PM tina_marie wrote:

I'm definitely interested in this thread. I start Doxil next week. Thanks for posting, Tina

“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” Dx 7/7/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- (IHC) Surgery 8/24/2017 Chemotherapy 9/26/2017 Dx 10/1/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- Targeted Therapy 11/1/2017 Chemotherapy 11/19/2018 AC + T (Taxol) Chemotherapy 4/16/2019 Doxil (doxorubicin) Hormonal Therapy
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Apr 11, 2019 11:15AM Yndorian wrote:

I think doxil is lyposomal doxorrubicina (like Adriamicyn which is not lyposomal) I had Adriamicyn in my AC cycles. Is the famous red chemo. I had it with cytoxan, so I can't separated the SE from one to other. My SE: low wbc, nauseas, gum sores, bone pain and of course all my hair was out at week 2

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Surgery 6/11/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes, Chest wall
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Apr 11, 2019 11:23AM Yndorian wrote:

I've just realized that I wrote in a stage IV only forum. I'm sorry

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Surgery 6/11/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes, Chest wall
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Apr 11, 2019 02:24PM wallaby715 wrote:

Hi TinaMarie!

Glad this post interested you. I haven't started Doxil yet but am scheduled, tentatively pending scan results, to start the end of this month. I am on Xeloda now and apparently it has stopped working :( I had A/C on my first rodeo with this back in 2006 and it was horrible! I'm hoping, and my MO says so, that this is not as debilitating as the A/C treatments were. At least it's only scheduled for once every 4 weeks. I'm hoping we both gain some information and insight into the treatment. Thanks for responding!

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 11, 2019 02:30PM wallaby715 wrote:

Yndorian: It's OK, I'm glad for any participation and information. I also had A/C, Red Devil, in my first rodeo with this stuff back in 2006. Yep, by the second treatment my hair was coming out in clumps! It was the week of Christmas and I finally stood in front of the mirror and said "why am I trying to keep this hair?? It's going to come out regardless of what I want!". So I got in the shower and shaved it all off with a razor! I felt so much better after that! According to my MO the Doxil they give to Stage IV patients is different - less toxic and supposedly no hair loss. I'm hoping for less severe SEs, i.e. nausea, fatigue but I'll find out the end of this month!

Good luck to you!

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 15, 2019 10:54AM tina_marie wrote:

Going for my Doxil 'teach' today... tomorrow is my 1st Doxil treatment, will keep you posted!

“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” Dx 7/7/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- (IHC) Surgery 8/24/2017 Chemotherapy 9/26/2017 Dx 10/1/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- Targeted Therapy 11/1/2017 Chemotherapy 11/19/2018 AC + T (Taxol) Chemotherapy 4/16/2019 Doxil (doxorubicin) Hormonal Therapy
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Apr 15, 2019 06:39PM wallaby715 wrote:

Tina: Please let me know how it goes! I'll be interested to find out what they "teach" you about it. I don't see my MO until April 29, so will get the scoop then. However, if my danged insurance company doesn't approve the two scans, I won't be having my first treatment on the 30th. Good luck!

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 16, 2019 09:01AM tina_marie wrote:

My "teach" was good... I usually sit with the PA (who's a smart cookie!) and she goes through all the complications, side effects and any questions that I have... she spent about a half hour with me. This is nice because the MO basically says this is what treatment we are going to do and why... then they set up the teach with the PA to go over all the details.

So what I learned about Doxil is it is in the same category of the AC treatment... which I handled very well except for becoming nutrapenic (sp?) where my wbc would drop considerably. This was good news for me because I'm coming off Taxol which I wasn't handling well at all.

So today at 12:15 I have my 1st treatment... she said they give me the drip very slow the 1st time to be sure there's no reaction. I told her I was going to take a lorazepam, but she offered to add that to my premeds in the IV..

Good luck with getting your scan's approved... I'll keep you / everyone posted on how it goes today.

“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” Dx 7/7/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- (IHC) Surgery 8/24/2017 Chemotherapy 9/26/2017 Dx 10/1/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- Targeted Therapy 11/1/2017 Chemotherapy 11/19/2018 AC + T (Taxol) Chemotherapy 4/16/2019 Doxil (doxorubicin) Hormonal Therapy
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Apr 16, 2019 06:27PM tina_marie wrote:

Had my 1st Doxil today.. . no issues at all at with the infusion.. and doing well so far. Im actually heading out to hear somebody speak at my church. Doing well so far.. I'll keep posted about SE.

Have a good night all.


“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” Dx 7/7/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- (IHC) Surgery 8/24/2017 Chemotherapy 9/26/2017 Dx 10/1/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- Targeted Therapy 11/1/2017 Chemotherapy 11/19/2018 AC + T (Taxol) Chemotherapy 4/16/2019 Doxil (doxorubicin) Hormonal Therapy
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Apr 17, 2019 03:13PM wallaby715 wrote:

Tina: Glad to hear your infusion went well. I hope the days following are SE-free, or as good as possible! Keep us posted!

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 17, 2019 04:44PM tina_marie wrote:

Wallaby715 - I will, How are you doing? Any update on your progression or hopefully lack of??


“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” Dx 7/7/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- (IHC) Surgery 8/24/2017 Chemotherapy 9/26/2017 Dx 10/1/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- Targeted Therapy 11/1/2017 Chemotherapy 11/19/2018 AC + T (Taxol) Chemotherapy 4/16/2019 Doxil (doxorubicin) Hormonal Therapy
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Apr 17, 2019 08:24PM wallaby715 wrote:

Tina: still waiting for the imaging facility to call me for an appointmet for the CT/Bone scans. Supposedly they get the approval from the insurance company and then call me to make the appointment - at least that is always how it worked in the past. The silence is worrying me but I haven't received a denial letter from the insurance yet so I think I'll call my doctor's office tomorrow a.m. and see if they've heard anything from them. I need the scans so my MO can make a decision. I also have to have an echocardiogram but no sense in scheduling that if there haven't been any scans! Did your MO have you get an ECG? In 2006, I had to get a MUGA scan before I could have the A/C.

Still bloated up like the Hindenburg so I'm thinking Xeloda has run it's course even though I am on my week on this week. I don't particularly feel bad just the bloating is SO uncomfortable! If I have to move on with treatment, I'd just as soon get at it!

Cindy

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 21, 2019 03:21PM wallaby715 wrote:

Hi Tina,

I know it's Easter today but I have been wondering how you are doing after your treatment? Wishing you a peaceful day with family.

Cindy

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 21, 2019 09:18PM tina_marie wrote:

Hi Cindy... I feel like I did after the AC treatment... just very drained and weak... starting to feel better this weekend... I remember when I was on the AC treatment after the 1st weekend I started to do better. Then later the 2nd week while on AC tx... my WBC would start to drop... so hopefully that won't happen this up coming week.

I did hav a nice day with family... what about you? Do you go to church for Easter?

“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” Dx 7/7/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- (IHC) Surgery 8/24/2017 Chemotherapy 9/26/2017 Dx 10/1/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- Targeted Therapy 11/1/2017 Chemotherapy 11/19/2018 AC + T (Taxol) Chemotherapy 4/16/2019 Doxil (doxorubicin) Hormonal Therapy
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Apr 22, 2019 01:52PM wallaby715 wrote:

Hi Tina - Gald to hear you are feeling better. I remember A/C well. I got mine every other week on a Thursday. On Fridays I'd feel like I was on a rocking boat with a queasy stomach! Saturday and Sundays I'd be like a dish rag. Of course, as treatment went on, recovering stretched over more days. Did you have any nausea? I know with A/C they gave me Decadron in the IV but even the day after I had some queasy stomach issues but no vomiting. I also had Zofran for the nausea. I'm hoping to avoid the queasy stomach stuff this time around. I'm just hoping it starts taking care of the bloating from the ascites...that is really driving me crazy! I have the appointmets for two of my scans, CT and bone. Now for the electrocardiogram and I'll be set. All this chasing around is irritating.

As for church, no, I don't go but not because I have any aversion to going but just got out of the habit and an organized church. I grew up in a small New England town that looks like it came off the picture on a postcard! My parents were active in the First Parish Church and even worked on the church suppers they had. When we moved to California when I was not quite 8, they never went to church again. Didn't think about that much then as I was a kid and they were working really hard to establish our new life in Cali. I used to go to church with neighbors and later with friends from junior and senior high but never really stuck with one. My mom used to say we were "home baptists"...LOL. I do believe and I do believe in life after death - I've had too many examples not to. Off to call the cardiologist! Have a good one!

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 23, 2019 01:05PM msmann63 wrote:

Hello All -

I am 3+ year (this time) MBC patient with bone Mets. During this time, I’ve received (in order) Taxotere, Ibrance & Letrozole, Abraxane, and most recently, Taxotere again. I’m scheduled to start Doxil on Thursday. After reading about this drug and from info I’ve received from members of other forums on other sites, I have to say I’m afraid of this drug. I have had MAJOR side effects from every infusion drug I have received. I’m concerned about the SE from this one.

Any info you can share will be greatly appreciated.

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Apr 23, 2019 01:42PM wallaby715 wrote:

msmann63: When I heard I was going to go on Doxil, I looked on this website for information about it. It was scattered all over pages relating to different mets locations people had. So I thought I'd have a page exclusively for Doxil just to get more information in one place. So far, Tina and I are the only ones who have responded. As you can read, Tina has just had her first infusion of Doxil. I will start mine likely in about 10 days or so. My MO has said that Doxil is less toxic than A/C, the Red Devil (Adriamycin/Cytotoxan) that I had for my first chemos in 2006. I'm hoping she's right and that I'll only have the "dish rag" response to Doxil, not the "queasy, I must be on a rocking boat" reaction I had with A/C! She also stated that the infusions would be once a month, not the every other week schedule of A/C, which would allow a longer period of recovery before the next infusion. Please stay tuned to see if we can attract more people to this page and thus get more information out there. Good luck with your first infusion Thursday - I'll be thinking of you! Please let us know how it goes.

Cindy

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 23, 2019 01:56PM msmann63 wrote:

Thank you, Cindy! I’ll let you know how it goes. I’m the “queen of side effects”. Praying they aren’t severe with this one.


Bridget

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Apr 24, 2019 04:18PM tina_marie wrote:

oh wow... lots of catching up to do... I'll post back later!

“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” Dx 7/7/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- (IHC) Surgery 8/24/2017 Chemotherapy 9/26/2017 Dx 10/1/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- Targeted Therapy 11/1/2017 Chemotherapy 11/19/2018 AC + T (Taxol) Chemotherapy 4/16/2019 Doxil (doxorubicin) Hormonal Therapy
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Apr 26, 2019 02:36PM wallaby715 wrote:

Tina: Are you doing OK?

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 26, 2019 04:24PM - edited Apr 26, 2019 04:42PM by msmann63

Hi guys -

Received first Doxil treatment yesterday. Had a bag of steroids, a drip antinausea med, and an anti-nausea injection. Waiting for my Nulasta On Pro to do its thing by 5pm.

No issues with the infusion. I'm taking nausea meds every 6 hours faithfully. Have slept nearly continuously since yesterday, but that keeps me off my painful, blistered feet. I've felt like a dishrag today. Will wait and see if I develop any other side effects (mouth sores, digestive issues). Praying that I don't.

How are you guys?

Bridget

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Apr 26, 2019 06:53PM tina_marie wrote:

Hi Ladies... yes I'm doing ok.. I'm on day #10 after my 1st Doxil day 7-8 I was completely wiped. I'm feeling better today. But I've been dealing with other pain issues in my right shoulder and right abdomen. MRI showed more lesions in my bones so they are going to send me for radiation and then a sono on my abdomen.

Besides the fatigue, and starting with mouth sores, I really haven't had any major side effects.


“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” Dx 7/7/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- (IHC) Surgery 8/24/2017 Chemotherapy 9/26/2017 Dx 10/1/2017, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 3, ER-/PR-, HER2- Targeted Therapy 11/1/2017 Chemotherapy 11/19/2018 AC + T (Taxol) Chemotherapy 4/16/2019 Doxil (doxorubicin) Hormonal Therapy
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Apr 26, 2019 07:15PM msmann63 wrote:

Hi Tina - I’m glad you’re tolerating the treatment well. My 1st was yesterday. Other than sleeping a lot, I’ve had no other side effects yet. I know it’s early.

You are in my prayers!

Bridge

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Apr 27, 2019 12:20AM wallaby715 wrote:

Tina & Bridget: Glad to hear you are both doing reasonably well. If mouth sores are a SE, I'm sure not looking forward to that! I had those when I was on Affinitor/Exemestane and they were terrible. I hope you can keep them under control, Tina.

Well, I am dealing with either incompetence or just downright not doing your job! Today I was supposed to have my CT scan, checking in at 3:30, which I did, after trying to down 32 ozs. of water (hard to do when you're blown up like a balloon with ascites!). So I go through having my paperwork processed and paid the co-pay, go sit down to be called, and I can hear the check-in guy (a kid, younger than my son but very nice) say to his co-worker that the two referrals they received from the doctor's office don't match. One says chest/abdomen with contrast and the other says "with and without contrast". They said they had tried to contact the doctor's office since April 22nd but they haven't called them back! He called the doctor's office again while I was sitting there and they were already gone! Needless to say, with contradicting referral orders, they couldn't do the scan. I was torn between picking up the chair and tossing it through the window or sitting down and crying. I just wanted to get it over with and get to the treatment! He said he will call them Monday a.m. and then let me know and maybe they could combine the CT with the bone scan on Tuesday. That would probably be a miracle. I'm SO uncomfortable with the bloat and now just both angry and discouraged. I'm generally an optimist but it's getting more difficult to maintain that outlook. I just want to get started on the treatment and get some relief from the ascites issue.

I hope both of you have a great weekend as free from SE's as possible! I will be captaining my recliner for most of the weekend!

Cindy

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 27, 2019 09:45PM - edited Apr 27, 2019 09:46PM by msmann63

Cindy - I'm so sorry you're getting the medical runaround. Been there and it's frustrating. I pray they can get the issues resolved quickly! You are in my prayers!

Bridge


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Apr 27, 2019 09:52PM wallaby715 wrote:

Thanks Bridge - those of us going through this know how hard it is to both fight the disease and a bureaucracy! Hope you are doing well this weekend!

Cindy

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)
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Apr 28, 2019 03:07PM - edited Apr 28, 2019 03:10PM by msmann63

Hello Ladies:

Just checking in and checking on how you are doing. I'm not too bad, just tired all the time since Thursday's treatment. Constipation seems to be an issue, so out came the Miralax (TMI. I know). Not much of an appetite. Still taking nausea meds around the clock so as to not have that issue. Lots of muscle and bone pain from the Neulasta, despite the Claritin, but that will pass. The foot blisters are still nagging me.

I hope y'all are doing well. Always in my prayers...

Bridget

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Apr 28, 2019 03:50PM ABeautifulSunset wrote:

I was on Doxil for three months. Unfortunately it didn't work for me, but I sucked on ice the entire time I was in infusion, and I never got one mouth sore.

Sunset



“Sunsets are proof that endings can be beautiful too.” Chemotherapy Gemzar (gemcitabine) Chemotherapy Xeloda (capecitabine) Targeted Therapy Afinitor (everolimus) Targeted Therapy Afinitor (everolimus) Chemotherapy Doxil (doxorubicin) Targeted Therapy Chemotherapy Chemotherapy Chemotherapy Xeloda (capecitabine) Targeted Therapy Radiation Therapy External: Breast, Chest wall, Bone Chemotherapy TAC Targeted Therapy Ibrance (palbociclib) Surgery Mastectomy; Reconstruction (left): Fat grafting, Silicone implant, Tissue expander placement; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole)
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Apr 28, 2019 08:23PM msmann63 wrote:

Thank you for the ice cube tip, Sunset. They had me hold a block of ice in my hands, but mentioned nothing about the mouth. Wish I knew what to do with my foot blisters which developed during Taxotere treatment.

I hope you are doing well. Have you switched to another chemo

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Apr 29, 2019 11:15PM wallaby715 wrote:

Sunset: Great tip on the ice! What other SEs did you have while you were on the Doxil?

Cindy

Dx 10/19/2006, ILC, Right, 5cm, Stage IIIC, ER+, HER2- Surgery 11/3/2006 Mastectomy: Right Chemotherapy 12/7/2006 AC Radiation Therapy 6/18/2007 3DCRT: Chest wall Hormonal Therapy 9/6/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/17/2016, Right, Stage IV, metastasized to bone/liver/lungs, ER+, HER2- Surgery 3/25/2016 Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 10/27/2017 Faslodex (fulvestrant) Hormonal Therapy 3/21/2018 Aromasin (exemestane) Targeted Therapy 3/21/2018 Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Femara (letrozole)

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