Topic: ATEMPT Clinical Trial - Roll Call

Feb 7, 2020 01:00PM TinyDancer5 wrote:

TTFan - Wow, that's great news that a low carb diet helped with your neuropathy.

I had my two week checkup yesterday after my Ooph and I'm healing very well, but still a bit sore. Pathology report is negative - YAY! It's amazing how well this skin glue holds the incisions closed with no stitches.

Today I had my 5 year check up with my MO and we discussed switching to an AI - Anastrozole, now that my ovaries are gone. So I will try it for 3 months and see how I do with the side effects.

I hope everyone is doing well and have a great weekend.

Feb 17, 2020 07:16AM IsabelArcher wrote:

TinyDancer, great news about the clear path report. Hope you're all healed! I had the larger panel genetic testing last week and will get results in a few weeks.

Mar 5, 2020 08:20AM IsabelArcher wrote:

Results of my larger-panel genetic testing were all negative--no weirdo genes lurking around. I declined tests of genes for which there is no possible recommended action (as in they don't even know if you need more frequent screening--they don't know the significance of the variants or mutations), but the genetics counselor didn't see any reason to test for those based on family history anyway. I can always get tested again in a few years as the field advances. My brother had prostate cancer last year (he's fine) and also had gene testing that came back negative. This is good news for our kids.

Mar 6, 2020 08:32AM IsabelArcher wrote:

Thanks, TinyDancer. And I hope you're fully mended from your surgery!

Mar 10, 2020 12:46PM IsabelArcher wrote:

Tinydancer, I had the same thing with my little finger when on that drug--trigger finger. It drove me nuts. I also had all-over joint pain. I didn't last long on the drug. My onc took me off it since I'm so weakly ER+/PR+ anyway. Hope you have better luck adjusting to it.

Mar 23, 2020 04:04PM MIPat wrote:

The last few months have been very difficult. On December 2 my husband died unexpectedly. I am dealing with probate issues which is frustrating for a variety of reasons. Eight weeks ago I had a total knee replacement and was so fortunate and blessed that for the first four weeks my brother and sisters-in-law stayed with us to help. Now I am looking at a pandemic and financial crisis with two children under 18 being strong and confident for them, yet getting so weary. Please remember me in your prayers.

Mar 23, 2020 06:08PM MIPat wrote:

My daughter is 17 and very stoic. She does not like to talk about her feelings, but I periodically sit and talk with her. My father died when I was 13 and I’ve told her the she needs to work through this now or when she is thirty (like I did). She resists talking to anyone but I told both of them that we would be going to grief counseling, but now that is on hold. My son is 14 and took his father’s death hard. He will talk about his feelings with me and a few trusted adults but doesn’t like to talk with others. After the breast cancer diagnosis he had a lot of anxiety about me dying. My children have a loving support system on both sides of the family.

Mar 26, 2020 06:11PM TinyDancer5 wrote:

MIPat, I am so sorry for your loss. 🙏🏻 Wishing you peace to bring comfort, courage to face the days ahead and loving memories to forever hold in your heart.

Mar 30, 2020 08:13AM MIPat wrote:

Maggie, thank you. John is very much into video games. He is able to connect with his friends during this time which is helpful since he is my extrovert. He does see a therapist and also talks with me so he is working through some of his grief. I think that he would benefit by more structure with schooling since we will probably be out of school for the rest of the year. Ava will deal with her grief in her own way with support.

Tiny thank you for your good wishes and prayers. I think that during this difficult time we can all use prayers.

Isabel, loosing our fathers does cause us to be more resilient. The loss is always there. My children are resilient. They lost their biological families, their first language, and culture. There is a fear that something will happen to me when they are young I don’t want them to loose any more.

As much as I panic every year when my mammogram is due, I am freaking out more this year because my April appointment was cancelled and rescheduled for August. Trying not to worry

May 20, 2020 01:33PM MIPat wrote:

I was able to get in today for my mammogram and got a clean bill of health! I was nervous (ok, cry high anxiety level) because I have been having some issues with the left side but it reminded me of when I was younger and had more problems with cystic breasts. Neither the mammogram or ultrasound showed anything. So I am happy.

May 26, 2020 02:29PM TTfan wrote:

Congrats MIPat!

How is everybody doing in these Covid times? I'm feeling lucky to be retired. No extra risk as I would have had working at the hospital and no financial impact other than the stock market hit, but we'll weather that. My main complaint is missing being with my grandkids. One son's family is at pretty high risk for a variety of reasons, so we've not seen them since February. The other one is being super careful, both of them working from home and no exposures other than careful grocery shopping, so we decided to risk a visit for mother's day. Heaven on earth is holding your grandbaby again! She's almost 2 and before the stay at home order we were babysitting for her twice a week, so totally in each other's lives. I miss her soooo bad! Her 2nd birthday is coming up, so we may do another (very careful) cheat day with us and her other grandparents.

Hope you all are well and coping with these trying times!

Nov 26, 2020 06:47PM TinyDancer5 wrote:

Wishing everyone here a Happy Thanksgiving!🦃🍁 I hope you all are well and staying safe during the holidays and end to this crazy year.

Jan 9, 2021 02:30PM MaggieCat wrote:

Thanks for your message Little Cheese! Our small group - here on BC.org - had great results. I queried my oncologist in November about the other participants from our location. All are doing great, no cancer return - 5+ years out. Maggie