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Topic: Cold Therapy Gloves and Booties to Combat Chemo Neuropathy

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Oct 25, 2017 02:02PM

TreysRib wrote:

Hello,

Has anyone tried cold therapy gloves or booties during chemo to combat neuropathy? If so, what brand did you purchase and from which site. Thanks

Dx 9/21/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 10/12/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/14/2017 Taxol (paclitaxel) Targeted Therapy 12/5/2017 Herceptin (trastuzumab)
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Oct 25, 2017 02:24PM OCDAmy wrote:

TreysRib, They are pretty expensive. I just bring quart size zip lock bags and fill them with ice at the infusion center. I wear thin socks and rubber medical gloves. I only using during the taxotere infusion which is an hour and I only put my fingers and toes on ice. I start 15 minutes before and keep the ice on 15 minutes after. They give me washcloths at the center to place under the bags because they sweat but you could bring your own. I have had no neuropathy or nail issues.

Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Surgery 11/14/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting, Silicone implant Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap Radiation Therapy Whole-breast
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Oct 25, 2017 03:07PM Legomaster225 wrote:

TreysRib, I used booties with gel packs on my feet. I bought them off Amazon for around $25 I think. They worked well. For my hands I just held a frozen water bottle or bags of ice. I did not experience any neuropathy. Whether it was the icing or just luck I'll never know but I was happy. I also drank slurpees or frozen cokes during treatment to kept my mouth cold. I just like them but maybe those helped as well.

Diagnosed at 50. Currently 54. Oncotype score 39. One node positive at diagnosis negative after preadjuvent chemo. Bilateral cancer discovered at BMX. Left breast was supposed to be prophylactic. :-( Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 6/22/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 8/22/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/17/2017 Hormonal Therapy 9/9/2018 Aromasin (exemestane)
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Oct 25, 2017 05:14PM Meg101 wrote:

I've been using small ice packs that fold over my toes and fingers during infusions. The ice packs are called CryoMax. They stay frozen for eight hours with no dripping, sweating, or refreezing. I bought them through Amazon. The size I bought were 6 inch x 6 inch squares. There are 2 ice packs per box, so I bought 2 boxes (total of 4 ice packs) to cover both feet and both hands. The total cost was about $20. The infusion nurses loved them because they didn't have to replace any ice or clean any wet areas. In fact, the infusion center is considering buying them for all their patients so the nurses don't have to deal with hauling ice and mopping up when ice melts. You will have to specify the "CryoMax" brand when you search on Amazon. Hope this helps. Oh, just wear a pair of regular socks while icing.

Dx 7/14/2017, IDC, Left, 3cm, Stage IIB, Grade 2, 3/23 nodes, ER+/PR+, HER2- Surgery 8/11/2017 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Chemotherapy 9/18/2017 AC + T (Taxotere) Radiation Therapy Whole-breast: Breast, Chest wall Hormonal Therapy Arimidex (anastrozole) Targeted Therapy
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Oct 31, 2017 11:41AM - edited Oct 31, 2017 11:50AM by jenglutenfree

meg101 - Thank you for the cryomax advice. Do you wear the socks under or over the packs?

JenGF Dx 8/18/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (IHC) Chemotherapy 9/21/2017 AC + T (Taxol)
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Oct 31, 2017 02:38PM TreysRib wrote:

Thanks Meg 101. I ordered the packs from Amazon so I am ready to go. One question, do you use socks for your hands and feet? If not, what do you use for your hands

Dx 9/21/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 10/12/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/14/2017 Taxol (paclitaxel) Targeted Therapy 12/5/2017 Herceptin (trastuzumab)
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Nov 11, 2017 02:07AM Faithonfire wrote:

hi everyone, I know cold is all the rage in new therapy for peripheral neuropathy but I have only seen that work for patients new to the symptom in my experience under 6 months to a year. I have heard many happy stories of using snow layer in hats and socks with one hat snow and second hat after bathing to try to avoid hair loss with limited success but great for hot flashes at least!

Didn't work nearly as well as I hoped either, once it started falling out fast it was gone in under a week no matter what I did so I got a free shave and new wig at a fabulous salon that donates everything to patients and survivors every month and it's such an amazing gift to be able to be a part of it all I had to share the latest tidbits we talk about in what we all call living with it!

I'm unique on a few levels more than previously joked about with family and friends, and having genetic proof of that now I hope it helps others to adapt and heal the way my body is right now during chemotherapy treatments that doctors can't explain. Not only do I have active hair regrowth on taxol now, it turned from white to brown last 2 months without any fallout at all, patches are changing color as they get longer and thicker it's freaky!

I've had peripheral neuropathy in my hands and feet for over 12 years now and I am very blessed that it was rarely painful but gradual heat therapy always worked better for me than anything else I have ever tried. My skin does not burn only when it is cold but I cannot accurately determine temperature on my skin below my elbows so it is important to know personal limitations and risks to any type of therapy you plan to use during chemotherapy treatments that make symptoms flare on top of new ones!! My team was quick to address it and my results of therapy are amazing benifit to my quality of life I wanted to share with you all.

Bottom line is, I HATE being cold, even during hot flashes I want wind over cold because I was sensitive to it before but on chemo I feel like I need a plastic bubble with a temperature of 70 to cruise around in!

so it's more about what you find comfortable in your circumstances and practical and safe for your total care plan.i do enough damage with a scooter in a store I can't imagine how much fun a huge hampster ball would be!

Take care and best of luck to everyone

Dx 6/25/2017, IDC, Both breasts, Stage IIIC, ER+, HER2- Chemotherapy 7/14/2017 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide), Doxil (doxorubicin), Methotrexate (Amethopterin, Mexate, Folex), Taxol (paclitaxel), Taxotere (docetaxel) Chemotherapy 9/2/2017 AC + T (Taxol) Surgery 1/9/2018 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/9/2018 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left, Right; Reconstruction (left): Nipple reconstruction, Tissue expander placement; Reconstruction (right): Nipple reconstruction, Tissue expander placement
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Nov 14, 2017 01:06PM snowday123 wrote:

thank you for detailed info! So helpful.

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Apr 6, 2018 08:08PM kathyandmark1 wrote:

TreysRib did you end up wearing socks over your hands and feet?

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Sep 8, 2018 03:28PM 2018summersuck wrote:

Hi everyone

for those that used ice packs on the fingers and toes, were you able to tolerate it? no frostbit on fingers and toes?


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Sep 8, 2018 11:33PM TreysRib wrote:

I hate being cold but I was still able to tolerate. I wanted to avoid neuropathy at all costs. I also used L-glutamine for the mild neuropathy that I did experience.

Dx 9/21/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 10/12/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/14/2017 Taxol (paclitaxel) Targeted Therapy 12/5/2017 Herceptin (trastuzumab)
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Sep 9, 2018 08:28AM SpecialK wrote:

2018 - I iced for 6 TCH with bags of frozen peas, my center did not assist with icing but didn't oppose it either, so we brought the peas in a cooler with ice packs, it was no problem. I did not do it to avoid neuropathy as much as nail loss. I put a small towel on the floor, wore thin socks and iced both feet, put a sweatshirt in my lap and used a large bag of peas on each hand. I also brought ice chips in a Tervis tumbler and held ice in my mouth to help with mouth sores. I iced through the Taxotere portion of the infusion, starting 10 minutes before during pre-meds, and continued for 10 minutes after. I also took 30g of powdered l-glutamine (three 10g servings dissolved in a cold, non-acidic drink) daily, along with a B6 capsule for neuropathy avoidance.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Oct 31, 2019 02:48PM Hb4hikes3 wrote:

hi, how did the icing help with nails and neuropathy? Th

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Oct 31, 2019 07:34PM TreysRib wrote:

it worked really well for me. I also took l glutamine as well. I have no issues post chemo.

Dx 9/21/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 10/12/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/14/2017 Taxol (paclitaxel) Targeted Therapy 12/5/2017 Herceptin (trastuzumab)
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Oct 31, 2019 08:46PM - edited Nov 1, 2019 07:38PM by rlmessy

Hi...just to clarify...I will start chemo TCH in a few weeks.

I have the cold booties and plan to wear anklet socks with them.

The cold mittens are on order and was planning on wearing those white cotton gloves with those.

So, you freeze these, pack in cooler day of treatment, put on when they are doing the taxotere (sp) chemo.

Is that correct?

Thank you!!

My DX appears below but I am also a caregiver to my awesome Mom, a 13 year (2006) BC Survivor, IIIa IDC, ER/PR+, HER2+, R MX, Lymphedema R Arm ---- I am scheduled for a complete hysterectomy 12/2020 Dx 10/10/2019, IDC: Papillary, Right, 2cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 12/18/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 2/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Oct 31, 2019 08:53PM DogMomRunner wrote:

rlmessy- I put my cold packs on my hands and feet about 15 minutes prior to the Taxol infusion. The pre meds will take some tim

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Oct 31, 2019 08:54PM TreysRib wrote:

That is correct. Alternatively the cancer center can give you ice packs to use. Praying for your complete recovery.

Dx 9/21/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 10/12/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/14/2017 Taxol (paclitaxel) Targeted Therapy 12/5/2017 Herceptin (trastuzumab)
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Nov 1, 2019 06:36PM - edited Nov 1, 2019 06:37PM by MinusTwo

I did exactly what Special K did. Packs of frozen peas during Taxotere & 15 minutes before & after. I changed them out 1/2 way through. I also took L-Glutamine and B-6.

I did not avoid neuropathy. My feet are still mostly dead 5 years after treatment, but fingers have mostly come back to life. Luckily no pain - just no feeling. The lack of balance is the biggest problem.

I DID avoid losing my nails. Both big toe nails came loose but never totally detached.

Oh - and I was meticulous at following the routine.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

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