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Topic: pregnancy after Her2+

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jul 2, 2019 01:59PM

Elfmcg wrote:

Hi everyone,

I haven’t posted in a while, but am always reading, and i’m looking for some advice or insight.

I’m 37, and am two years on since diagnosis and myself and husband have recently started talking about children. I have none, and wasn’t sure if i even wanted one, but after going through treatment and every emotion that throws up, i started to feel like having a baby would actually be something i would like to happen.

My periods seem to be back to normal, ive still weight i put on over treatment that doesn’t seem to want to shift, but i suppose im wondering is having a baby even something i should think about? is it too soon? Basically, id like to hear if any of you have had similar thoughts post treatment and if you ended up having a baby?

Thanks in advanc

Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Surgery 6/25/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/20/2017 AC + T (Taxol) Targeted Therapy 10/15/2017 Herceptin (trastuzumab) Radiation Therapy Breast
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Sep 7, 2019 10:58PM windgirl wrote:

hello, I went through similar decisions and decided to not get pregnant. I had some doctors say it’s ok and some who were more risk averse. There is no study that shows what recurrence risk would be if one did get pregnant, except for I believe one doctor who collected information after the fact and didn’t see a difference. I still couldn’t take the risk though so am currently searching for a surrogat

Dx 7/14/2014, IDC, 3cm, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Targeted Therapy 8/12/2014 Herceptin (trastuzumab) Targeted Therapy 8/12/2014 Perjeta (pertuzumab) Chemotherapy 8/12/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/18/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 1/27/2015 Breast
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Sep 9, 2019 12:01PM - edited Sep 9, 2019 12:01PM by Elfmcg

thanks windgirl, I hope you are successful in finding a surrogate. That is very exciting!

I met with my onc last week and expressed my wishes and thoughts of becoming pregnant and she was very supportive, it has to be said. She referenced some study that said for my type of cancer that's hormone negative, there may be even some advantages to pregnancy, and that survivors of ER-negative breast cancer who became pregnant had a 42% lower chance of dying than those who did not become pregnant in the study she quoted, and that Pregnancy could protect ER-negative breast cancer patients through either immune system mechanisms or hormonal mechanisms.

My mind is fairly made up, it's just a matter of going for it now.




Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Surgery 6/25/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/20/2017 AC + T (Taxol) Targeted Therapy 10/15/2017 Herceptin (trastuzumab) Radiation Therapy Breast
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Sep 9, 2019 09:26PM raleighgirl wrote:

hi there!

I was diagnosed in December 2014 at 37 years old. I had a seven month old and a 20 month old at the time of diagnosis. We wanted a third child so badly. I didn’t do fertility preservation as I had ten tumors and felt I needed to get started on chemo right away.

I had a pcr. I went to see a fertility doctor in February of 2018 who told me he was not worried about the regimen that I took(tchp) causing infertility. He was more worried about my age! He told me to try on my own that month, and the following we would start fertility medication. Low and behold, I got pregnant that month on my own!

I’m now 42, and have a 9 month old beautiful baby girl who was born on Thanksgiving. I’m so happy we went for the third! She has completed our family.


Dx 12/23/2014, IDC, 4cm, Grade 3, ER-, HER2+ Targeted Therapy 1/15/2015 Perjeta (pertuzumab) Targeted Therapy 1/15/2015 Herceptin (trastuzumab) Chemotherapy 1/15/2015 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Oct 25, 2019 03:20PM - edited Oct 25, 2019 03:20PM by Elfmcg

Hi everyone,

I just wanted to come back to this thread to say i've just have my pregnancy confirmation with my GP. I'm so happy and excited and scared, but mostly happy. It was the first month of trying and it's happened. Very early days,but here's hoping!



Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Surgery 6/25/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/20/2017 AC + T (Taxol) Targeted Therapy 10/15/2017 Herceptin (trastuzumab) Radiation Therapy Breast
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Oct 25, 2019 04:17PM - edited Oct 25, 2019 04:19PM by Gudrun

Elfmcg, I'm so happy for you.

My daughter, now 32, gave birth to her cute and healthy babygirl three weeks ago, and four years after dx.

Best wishes to you and soon to your baby, G

Myself: dx at 55 in 2013, ILC, stage IIa, G2, ER+/PR-/HER2-, KI67 20%, BMX, Letrozole 5.5 years. Daughter: dx at 28, stopped antihormonals after 2 years to have a baby and restart tx afterwards: Dx 8/2015, IDC, Left, 3cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ (IHC) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery Mastectomy: Left; Reconstruction (left): TUG flap
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Oct 25, 2019 06:54PM Elfmcg wrote:

thanks Gudrun, congratulations to your lovely daughter too. fingers crossed for me X

Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Surgery 6/25/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/20/2017 AC + T (Taxol) Targeted Therapy 10/15/2017 Herceptin (trastuzumab) Radiation Therapy Breast
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Nov 4, 2019 12:36PM Kimm992 wrote:

Congrats!! So exciting!!

Dx 10/14/2015, IDC, Right, 1cm, Grade 3, 0/3 nodes, ER-/PR-, HER2+ Chemotherapy 11/3/2015 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Targeted Therapy 1/6/2016 Herceptin (trastuzumab) Chemotherapy 1/7/2016 Taxotere (docetaxel) Surgery 3/24/2016 Mastectomy: Right Radiation Therapy 4/30/2016 Lymph nodes, Chest wall
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Nov 4, 2019 01:18PM Elfmcg wrote:

Thanks Kimm992,

I still can’t believe it. Hopefully it will all go well!

Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Surgery 6/25/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/20/2017 AC + T (Taxol) Targeted Therapy 10/15/2017 Herceptin (trastuzumab) Radiation Therapy Breast
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Nov 4, 2019 03:13PM berries wrote:

Congratulations on starting your family! So exciting for you! Wish you a happy and healthy pregnancy!

Dx 8/6/2019, DCIS/IDC, Left, 5cm, Stage IB, Grade 1, 4/4 nodes, ER+/PR+, HER2- Surgery 9/18/2019 Mastectomy: Left; Reconstruction (right) Chemotherapy 10/24/2019 AC + T (Taxol) Surgery 2/17/2020 Reconstruction (left): Silicone implant Radiation Therapy 3/30/2020 Whole-breast: Breast, Lymph nodes Chemotherapy 4/29/2020 Xeloda (capecitabine) Hormonal Therapy 5/7/2020 Arimidex (anastrozole)
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Nov 4, 2019 03:43PM Elfmcg wrote:

Thanks very much vmb. really appreciate the kind words

Dx 6/16/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Surgery 6/25/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/20/2017 AC + T (Taxol) Targeted Therapy 10/15/2017 Herceptin (trastuzumab) Radiation Therapy Breast

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