Mar 31, 2016 03:23PM
Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are:
I'll go first: dx June 2015 TN IBC, not NED but hoping to get there.
IBC is such a different diagnosis than so many of the other types of BC I think it is really important for us to talk and share and learn from each other.
I am taking a "board break" mid June 2016, I will be back but mentally exhausted right now. Peace be with all of you. Diagnosed at 46 triple negative IBC. Mets to skin, lungs, bones.
6/29/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2-
7/21/2015 Carboplatin (Paraplatin), Taxol (paclitaxel)
1/7/2016, IBC, Right, Stage IV, metastasized to other, Grade 3, ER-/PR-, HER2-
5/6/2016, Stage IV, metastasized to bone
5/9/2016 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Stage IV, metastasized to lungs
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