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Jan 29, 2021 08:18AM
Jan 29, 2021 10:15AM
Good morning everyone,
DeniseML--That is such wonderful news, I'm so so happy for you!!!
MEM127--I'm sorry you have to deal with all this additional stuff, it's so hard. I got blindsided myself a few times already since being diagnosed and it's the worse. I hope you hang in there!!!! Let me know if you have any questions about the mastectomy process!
Kimberly1981--Hurray for all drains coming out! I agree that sleeping on the back is horrible. I use a wedge pillow and an infinity of other pillows of all shapes but still have not found a comfortable way to sleep.
I'm on day 8 post-op and doing well, except for the huge anxiety that comes with awaiting the final pathology report from surgery. I won't know anything until Feb 3 at least. I am bracing myself for a situation where they will end up finding some IDC on top of DCIS (which we already know has microinvasion). They usually don't test for HER2 status with pure DCIS, but because of the microinvasion they did test mine and I'm HER2+++ (hormone receptors both negative). So based on my research, even the smallest IDC would warrant chemo and herceptin, though honestly I'm not sure if HER2 status can change when cancer is/becomes IDC. Can't wait to talk to an oncologist to help me navigate this poorly understood "in between" DCIS/microinvasion/potential IDC situation I find myself in.
In terms of recovery from the mastectomy, I really can't complain. They removed 2 of my 4 drains on Wednesday, and I'm hopeful that the other two will come out Monday or Tuesday. I haven't had to take Tylenol around the clock the last couple of days because the pain is really quite mild, it's mostly on my sides, around the drain incisions, and under my left armpit, where they did my sentinel node biopsy. That arm hurts. The rest is basically tightness and mild discomfort. I do a lot of stretching exercises and feel much better after each session.
I also wonder if this drug that I've been taking since being diagnosed to help me get through this health crisis--clonazepam 0.5, which is a benzo but also has muscle relaxing properties--is helping with my overall comfort level. I've always been so against taking drugs of this kind (always believed more in therapy), but in my case I have to say that the clonazepam has been a HUGE blessing in terms of reducing my overall anxiety and catastrophizing and helping me sleep and lead a normal life. I would highly recommend it to anyone who feels overwhelmed and hasn't attempted this route yet. I also see a therapist a couple of times a week, and I find that the combination of the clonazepam and being able to mourn and talk about my feelings with a therapist is incredibly helpful.
Wishing you all easy surgeries if you're still facing one, and much strength and light ahead!!!!!!!
Dx 12/15/2020, DCIS with multifocal microinvasion, Left, 6cm+, Grade 3, ER-/PR-, HER2+
1/21/2021 Mastectomy: Right; Reconstruction (right): Tissue expander placement
1/21/2021 Mastectomy: Left; Reconstruction (left): Tissue expander placement
2/28/2021 Herceptin (trastuzumab)
3/1/2021 Taxol (paclitaxel)