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Re: CT and Lung Nodules
Hi @cmre00, I'm sorry that you have a lung nodule which is a concerning size. It could be a granuloma which is a benign clump of cells caused by inflammation of some sort (possibly from Verzenio.) Mets usually appear in groups but a singleton is possible. The other possibility would be a new lung cancer primary.
Lung biopsies can be very difficult which is why they are suggesting short term follow-up (usually 3 months) to look for growth first. I don't know how useful a PET scan would be since any kind of inflammation would light up with FDG contrast. Even FES which looks for E+ lights up my pulmonary fibrosis which is not cancer but has estrogen receptors. Also, it wouldn't identify lung cancer.
If you need a biopsy it might be worth getting a pulmonologist involved. Occasionally an IR can do a needle biopsy but more often bronchoscopy is needed to reach the tumor. Sometimes the nodule is impossible to get to that way and VATS (open surgical biopsy requiring hospitalization) is required. A specialist pulmonary radiologist or lung cancer pulmonologist might have useful input about whether it appears the nodule should be biopsied immediately or followed short term. In the grand scheme of things three months doesn't make a huge difference.
Most of the time a lone nodule under 3 cm is benign but any nodule over 1 cm should be closely monitored. Keep us posted. You are wise not to worry unless you have to.
Re: Lymph Node Positive Survivors
Good question Lottemarine!
The frustrating thing for me is how the little differences can change outcomes more than people talk about. So it's hard to know when you are comparing apples to apples. Even then everyone is different, so one person's experience does not reflect on your own. I've been trying to narrow down the area of people more similar to me to see if I can get a better picture that way, but I still don't think it will really provide answers. (i'm a nerd, I just love data, though)
For example, staging is sometimes done by number of nodes involved. However, my cancer surgeon told me she has seen between 4 and 44 lymph nodes in a person's breast/underarm area. So it would stand to reason that a person with 1/4 nodes involved might be considered more serious than someone with 4/44. So why is that not reflected statistically? And what about Macro vs Micro mets in these lymphs? Also, the prognosis for younger people with cancers TENDS to be less good than when you are older. So, when we look at stats, and age is not mentioned, is the experience of someone who is 65 at diagnosis similar to someone who is 35? I started a thread on the stage 3 forum talking about age because that seems as good as any as a place to start trying to sort out some of my own questions.
Re: Who's starting Radiation in November 2025? Let's gather here to share!
hi@xsuzx
That is great that you had your first treatment!!
I was diagnosed with DCIS Grade 3. Had a lumpectomy, then 9 rad treatments. 5 whole breast and 4 partial. I finished on Dec 15!!
Today, it actually looks like the swelling has gone down!! Yay
Totally normal for your emotions to be up and down. I am the same way. I’ve said to people that I take things hour by hour and not day by day… when they ask how I’m feeling
One minute I will be crying, then I have a chat with a friend or my sister on the phone and feel better after.
I have been very lucky. My friends and neighbours have been incredibly supportive throughout my entire journey . (And that makes me cry) I have no family where I live.. (moved to another city after I got married) , other than my in laws. I made it very clear to my mother in law to NOT tell any relatives.
I have been out for lunch with a few close friends but that was when I was feeling up to it.
Remember, This is YOUR journey and you can see who you want and when you want. When people say, they want to come by, be honest and say you are really not up for visits right now, but you appreciate their kindness and compassion. I have one neighbour who asked me if it was ok for her to message me every few days to ask how I was feeling.. and I said Yes, that would be fine
Do what makes you comfortable, whatever that may be. Anything!!
From a distance.. we are here to support each other. We can all relate!! 💗
Wishing you all the best as you continue with your radiation
Embracing with strength
Redwinelover