Best Of
Re: Refusing AI Treatment
My breast cancer oncologist wanted to put me on Tamoxifen after my double mastectomy in 2017, but I refused. My risk of cancer returning was very low. I wasn't menopausal yet so he wanted to put me on Tamoxifen. I read up about the drug and its risks for blood clots and causing endometrial cancer. I have been at high risk of blood clots since my early 20s and already suffered from numerous joint and muscle issues so I declined to take the Tamoxifen. In 2019 I was diagnosed with endometrial cancer which confirmed for me that it was good I hadn't taken the Tamoxifen. I made it to the 5 year mark and remained breast cancer free. Sadly I was diagnosed with a new breast cancer in 2024 when I was 7 years out. I'm still glad I never took the Tamoxifen, however I am pissed off that my OBG oncologist didn't even suggest I take an AI for post menopausal women after I had the radical hysterectomy for the ovarian cancer and tested positive for a gene defect that causes cancer. My ovarian cancer has returned 3 times since the hysterectomy and now I'm dealing with breast cancer again. I'm having chemo now and will follow up with 4 weeks of radiation later this summer. Once those are all finished I will be going on an AI because at this point it's my best chance of keeping any of my cancers from coming back, or at least stalling any returns. The lesson I've learned here is to research everything and be very vocal with your doctors. You have to be knowledgeable about your cancer(s) and treatment options and you need to advocate for yourself because doctors are only human and they do make mistakes. I won't go into the nitty gritty details, but 2 of my 3 oncologists have both made mistakes with my care and if I hadn't researched and learned about the particulars of my cancers I would be dead now. When in doubt research and get a second or even a third opinion. I am in the midst of researching new doctors now because I no longer trust or respect the 2 doctors that made potentially life ending mistakes with my care. Good luck to you. I hope you find doctors that you can trust and respect and find the right treatment plan for you.
Re: Can we have a forum for "older" people with bc?
Honeoye Falls - great dinner. A visit to a home built in 1803, where we believe there was a spot in the basement from the Underground Railroad. Fredrick Douglas’ his second wife is from the area, and stayed (lived? research needed) in this area.
First picture is from a hike in the state park looking down in one of the lakes, in the Finger Lakes.
Great weather, enjoying ourselves.
cindyny


