Best Of

Thanks @irishlove and @cookie54 I usually feel pretty good the day after chemo so hoping I can manage today. Chemo went well except for the Benedryl part. It is the worst feeling for me and makes me twitch a little. I am going to ask my MO if we can reduce that a bit. I know they give it so I don't have an allergic reaction so I don't know what she will say. My nurse DD suggested I give myself one pill an hour before and they reduce the Benedryl by half during. I never drive so it should not be a problem. I put ice on my hands and feet to stave off neuropaty and so far that works well for me except I tried a new glove and feet covers the charge nurse gave me (I think it was a sample) and they were so cold they hurt so I had to stop and just touch the top. I am praying it was enough too. Next time I will just make the gel pads inside cold instead of frozen. I also get knee pain after a couple of days. It is called Paclitaxol-Acute Pain Syndrome if you want to look it up or if any of you ever had it. It was suggested I use magnesium cream on them too so I will try it.

Anyway, it snowed last nighe (yay for Colorado) but should reach 46 today and almost 60 tomorrow. We really need more snow.

Blessings everyone.

Finally got scan results after a week of waiting - still stable thanks be to God! Only significant finding was severe osteoarthritis of my left hip. I saw my ortho last week and he was surprised that I don’t have more pain but for now there is no need for a hip replacement.

Here for pocket duty for all. Happy hump day🐪🐫🐪

@cookie54 and @shanagirl Yes my poor brain has been through a lot, I have no doubt that my brain is still healing. Some spots I touch are still a bit painful and the top of my skull is still funny feeling, getting harder as it should be.Growing hair back, feels better to have some of my hair back so the wig feels good on there.

I spent a while waiting to get a couple of appointments for this month and an echo, got an MRI next month, was scheduled late at night so got it changed to late afternoon instead to ensure the Paratransit to and from hospital.

So Not sure what food I want today, will likely have some beef macaroni at some point though just ordered a couple of burgers. The beef macaroni will happen later today.

I do hope everyone has a good day, in pockets for all.

Intothelight, I hope your chemo session went fast and was gentle. Curling up with a nice, warm blanket and chatting with someone makes the time go quicker. Well I am a chatterer, so I hope no one minds, er too much. lol

Thanks everyone for the congratulations and support with the family dilemma. There was a time I wouldn't have tolerated this b.s., but when you are sick, well it takes too much out of you. MS has been a part of my life for 25 years, and unfortunately it has progressed. I'm so grateful though for all my blessings.

Irish

@irishlove Congrats on remission! Hope it lasts a very long time. I admire your patience and generosity with your daughter and granddaughter.

@irishlove - Congratulations on your showing of no cancer for now! Fingers crossed 🤞 that this lasts a long, long time for you. So sorry about the family issues. It's so hard when you really care and understand, but also have to put your foot down and set some boundaries for yourself. I hope everything works out well in that regard.

Re Phil, I told a friend about his prediction and that when I thought about it, it'd be 6 more weeks of winter, no matter how you look at it, if March 21 is indeed the first day of spring. Seems like we just have to wade through the winter and wait, as always.

Hello everyone. Hope tonight finds you peacefully curled up with a warm blanky and a good book! We took the covers off the outdoor plants and guess what??? You guessed it, they revised the weather forecast and tonight thru tomorrow morning we will have a few hours of below freezing. Too tired to recover and it's not going below 30, so take my chances.

Well I have some major news. I'm still in shock and not sure how to absorb this but here it goes. I am in remission!!! Unbelievable and I guess I'm accepting this with a restrained measure of acceptance. It's not like turning a switch on and off. I can't just turn off my mindset for 3 years of MBC. Also, I still have MS to deal with. It's not likely to threaten my life, but it's still a bitch to deal with. I guess I need one more scan to placate me. Next scan is in April.

I feel so blessed as it takes a lot to deal with DD and DGD. They are back due to cold weather and their camper is not suited for temperatures below 50 (no insulation). We laid down the law yesterday that DGD must go to school, use a grant and get help for her social anxiety and ADHD. Grants opened up yesterday. Lets say we were met with a whole lot of anger and mind your own business. We have a game plan with proper contacts and will secure a lawyer if we must.

Wish spring was coming sooner. I'd like to feed Phil to my dogs, well they wouldn't eat that mangy critter anyway. So maybe someone could dispute his findings. lol

In pockets for scans and life in general.

Irishlove

@mara51506 As all the lovely sister's so lovingly stated, don't be to hard on yourself you have been through major surgery. I know this is an ongoing situation and our feelings flip flop constantly depending on the kind of day we're having sometimes.Allow yourself time to grieve your current situation, you need to. I think we are so used to always having to be strong and we push so many emotions down that they are bound to return. As others said maybe you would feel unburdened by speaking to a counselor . Just know we are always here for you and we love you bunches😘

@irishlove Oh that ungodly insane copay…ugh! Please don't feel embarrassed who would be able to pay that frequently? It's ridiculous and disgraceful and I sure hope some grant money comes through for you. Yum the hashbrowns do sound delish, something about the crispy edges on them. The air fryer is perfect to cook them in if not ordering out. Hate the winter but love the soup and comfort foods. In your pocket today for your appointments, I hope it all goes smoothly.

@irishlove Wow—exciting news. Remission! That's just what I need to hear to bring a smile to my face. So happy for you! And as for your kids, I am glad you have a gameplan. Stick to it. Your DGD deserves your intervention and love.

@mara51506 Sweet Mara, I understand your feelings. I am not in a happy place myself right now, but we soldier on. The fact you do all of this basically alone says so much about your character and strength. You are a special lady and inspiration.

Tomorrow is chemo day so I am planning accordingly. The fact that we are supposed to get a little snow in the morning doesn't make it any better even though Colorado desperately needs the snow. This is my fourth infusion, then I have next week off. My oncologist warned me it gets harder the older you are (almost 73) and the longer you have been on treatment (almost ten years) so I don't expect an easy time, but I need to function and enjoy my family. Any words of wisdom are welcome.