Best Of

OK, got some answers. I found out SIL situation, have to keep quiet as she asked me not to say any details but she has a lot going on, DB is in the middle of all of it so I feel for him.

Brain surgery is definitely happening, he wants the cyst out of there and wants to see about removing mets that were already there. Once done, will have PT and OT and looking into services. They were very nice, need a presurgery checkup.

We also had to discuss my DNR. Typically I am a DNR person but have to be willing to be brought back or the surgery would not happen so signed off on being brought back during surgery. Also need to get a will done and official Power of Attorney as they said that younger brother could be contacted and we are estranged. Luckily will is pretty easy but need to get a legal power of attorney. All of that will be coming.

Surgery will be sometime in January.

I am not feeling nervous particularly because I was expecting surgery anyway, now just have to go through the steps, get services for possible OT, Pt, who knows. I am in own pocket and DB and SIL pocket as well. Life certainly can pile on but we will get through it.

I was really hungry by end of appointment so they took me to the drive in at Mcdonald's, I do appreciate having the same neurosurgeon as well.

Dearest Mara - prayers for you this morning🙏🏻🙏🏻. Special thanks for your DB & SIL for helping you.

Shanagirl - my MO just suggested I see my regular ortho doc. So I will plan to do that. In doing some research, it is possible for the ortho to repair the labrum tear through arthroscopy but the recovery is almost worse than a joint replacement. Requires weeks using crutches, which there is no way I could do that.

Prayers were answered - DHs pathology of 11 polyps came back benign. Thanks be to God!

Woken up by phone call from neurosurgeon office, consult at 830 am tomorrow. Will get a ride, was told to bring family members. Already got DB and SIL on board for a ride. Possible I may be put into hospital from there since he is gone in Jan, may just pack up my little bag to prepare for a hospital stay in case I am admitted Just a thought in back of my head. Not too anxious yet, I do not believe it will be life altering but you never know. I am just glad things are moving. Get through Herceptin today, pack up supplies and hopefully go to bed early. No staying up all night.

Other than Herceptin, I have laundry and clothes to pick out to wear, probably use the air fryer for pizza this morning. Get about chores, app't for Herceptin at 2pm so being picked up at 130.

Overall, SIL thinks I may cry today, I assured I do not feel that way right now. Have to get info first, may or may not get emotional but overall, I think overall my mind is one day at a time. If I hear something I do not like, then tears may happen but today, not feeling overly anxious. I hope I am right about the outcomes, either surgery to remove or drain. If benign no radiation and if cancerous, radiation. We will see. I am just glad this is moving along now. I am also glad phone is able to wake

I am keeping simple with meals, just some pasta and chicken, the frozen stuff this morning, air fryer pizza later maybe.

Got wash on go, working harder on sink clearance so sticking with fewer dishes made before leaving, need water and charger put aside for music phone and regular phone and a pair of pants, earbuds already in purse. On a half an hour at a time schedule so I do get some stuff done beforehand.

I still was coughing quite a bit but that is just getting rid of stuff and postnasal drip. I did set up my humidifier, I am sure it made a difference but still had coughing spells. They are less than before.

I do hope everyone has a good day and in pockets for all. My own pocket to not whine tomorrow about being out early, I did not whine when had MRI at 645 am last week, should be easy this time.

Shanagirl - thank you for the labrum tear info. Fortunately mine is not due to Mets in the hip. I just don’t understand why I now have to think about my 5th joint replacement since my first one in April of 2022. I can’t believe these damn drugs are not responsible for the severe joint response I have. That first replacement was my right hip which had developed avascular necrosis from Xgeva, a very rare side effect. I’m going to see my ortho and hopefully get a steroid injection to help me through and then think about surgery in the spring. Cancer sure sucks🤬🤬.

Here for pocket duty for all in need (which seems to be all of us🙄)

@mkestrel Oh I'm sorry you're having such a rough start with Trodelvy. I hope the big D calms down soon, that's the worse! OH I can identify with the hair back when I was Stage 1, I was so devastated! I felt like I didn't know who was looking back at me but got over it quickly. I turned it into a mantra "my life is more important than my hair", it got me through. Feel better soon❣️big hugs of comfort and strength your way.

@shanagirl Hey sweet lady, thanks for the prayers. Hope your pain level is tolerable and you can enjoy looking at the snow while cozy on the couch. I may not venture out until my appt on Thursday. I fell walking outside on Saturday and split my palm open and pulled a jagged rock out..ouch. Trip to ER to clean it out and antibiotics orally and topical. So grateful that I didn't break my hand!!

Intolight - cancer sucks🤬🤬. So sorry to read of progression. Praying that your new treatment will work🙏🏻🙏🏻.

Mkestrel - cancer sucks🤬🤬 with the damn side effects. Hair loss stinks.

Mel - little Theo must be so cute in his coat. Our crazy Mariah cries all day to go play in the snow. With this cold spell we had, with temps below 0, there’s no way we will take her out other than to potty. At least we’ll be in the upper 30s for a few days so she’ll be able to get her fix.

Hope everyone is recovering from all the disease and pestilence going around. I keep reading about various severe outbreaks. Here for pocket duty. Hugs to all……

@goldensrbest I’m glad to hear DH’s colonoscopy went smoothly and benign polyps is all. Keeping you and your Dh in my heart and prayers. Your labrum issue must be painful enough to interfere with mobility. I hope you don’t have to face surgery.

@mara51506 I’m glad you’ve been moving along with your brain issues you are looking into. Now another wait for your for your consult with neurosurgeon. I am in your pocket as you continue to solve the puzzle pieces.

@sf-cakes my heart hurts for you in the memory of your sweet husband. I love the idea of lighting a candle, and it’s on my mind to do it this evening in honor of you and your grief over DH and also ai will light the candle here in my night table for all here dealing with our struggles.

@intolight I am sorry you are seeing progression increase in liver and osteous lesions. Now it’s a wait to see what your onc wants to do regarding your treatment. My MRi last month showed a new lesion on my posterior Asetabulum which was causing the pain and limp when walking.. Palliative radiation for 10 days was done by Rad Onc., Pain and limp when I first get up from a sitting position but diminishes as I get moving. They want me to use a cane and practice how to use it correctly in PT🙄. I feel when progression happens suddenly I am even more nervous about scans coming up the end of December.

@candy-678 Hey there girl. always glad to hear from you🩵

@micmel Yes it's been so cold. The snow was pretty but not melting and it’s really cold and windy here at the Jersey Shore. My 2 little pugs don’t like the cold and come right back inside to get warm and cuddle in a blanket next to me.

@irishlove I’m thinking of you and Hope all is well.🥰

@wren44 Take care of that sore throat. try some orange peel slices without the white bitter part, and boil them for 10 minutes, pour into a tea cup with “throat tea” teabags, add some raw honey 🍯 and stir and sip. This combination is soothing and healing.

@cookie54 Hey Jersey, you and your hubby are in my heart and prayers. Hope all is well this evening. Saying good night to everyone and hoping you all get a restful 😴 🛌 🥱 So now I am lighting my candle 🕯️ next to my bed with 💗 and caring vibes for all her on what we all struggle with and saying a prayer 🙏

@wren44 I am so sorry you are dealing with a sore throat, hoping inflammation recedes for less pain, easier swallowing.

I did not wind up posting yesterday, wound up sleeping a bit on couch then watch IT Welcome to Derry, excellent show. Same people made recent theater movies which were good.

I am at the coughing phase which is bloody annoying if I may be blunt. Still productive with cough so will take expectorant, drink lots of water. Practicing controlled coughing, holding breath and just doing a cough or two, not sure it works, sitting up seems better to avoid the coughs. Worst come to worst, sleep upright on couch. I am focusing on rinsing nose, garlic which I will enjoy

Last piece of puzzle re brain is the consult appointment as the neurosurgeon is travelling soon so I will see what is suggested by him, timelines etc. We will see. Been leaving the phone on so people could call through if need be. Nothing else this week (hopefully) except Herceptin. Going to get in habit of phoning to check appointments as mine were nothing like the print out. Got Paratransit booked, least is an afternoon appointment. Hard to follow with these other appointments at other hospital. My goodness.

Thinking about getting kitchen sink done first, higher priority, then laundry. Got boxes and bags to deal with from Amazon for recycle Thursday.

Meals are a toss up, got beans and beef in the fridge, Might chop up beef, beans and cheese. Add some rice if need be. Also need to pay the extra for extra lean ground beef, am finding the grease a bother to mop up and I do not usually save the grease so mopping up grease on the burgers itself is a PIA. Next shop, shell out the extra for extra lean ground beef, less grease if any to deal with and can stretch further with black beans or lentils even.

I hope everyone has a good day, in pockets for all of us as well. I hope all illness heals up quickly and in pockets for those of us looking after loved ones and sending support to the loved ones as well.

,