Best Of
Re: Can we have a forum for "older" people with bc?
Not to be cheered by praise, not to be grieved by blame, but to know thoroughly one's own virtues or powers are the characteristics of an excellent man.
betrayal
Re: Nervous about switch from Letrozole to Exemestane
Good evening, ladies! It’s been a while since I’ve been on this thread. I am still on tamoxifen. However, over the past few months I have started to feel gradually worse: achy, very intense sinus congestion/pressure, indigestion, gas, bloating, heartburn! I feel like I just got a Covid vaccine! 😝 Anyway, not sure if this is from tamoxifen or cumulative effects of my HP protocol, which I’ve been on for 2 years, or born. Some research I’ve done indicates that tamoxifen can dry out mucus membranes, causing the issues I now have. Hopefully, they will subside in the next few months. My hot flashes from tamoxifen have become less frequent, so I am hopeful.
Best to all of you!
Hugs, Pam 💗
Re: Nervous about switch from Letrozole to Exemestane
@lillyishere I agree, I've been on all three AIs (currently Anastrozole) and none of them caused significant side effects for at least 3 months. Each of them has given me serious SE but the first two were unmanageable. I've been on ANA for the longest (about 8 months now) but may give tamoxifen a try once I hit 2 years on AIs since my oncologist says that the joint pain is less likely with it. Apparently, it also works better if you've been on an AI for 2 years, which would be this fall if you total all 3 that I've been on already.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Glad that the floor and toilet are done. What a relief!
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Geez glad that was fixed before anything went wrong! Water can certainly do some damage.
Heavy rain and storms here yesterday, some areas had terrible flooding. Our area was fine and we have cooler weather today🥰
Wishing all a peaceful day.
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
@tanya_djamila Ugh hope your mom recovers quickly and is feeling better. Enjoy your mini getaway with your family!
cookie54
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
Oh @illimae… We're wishing you the best of luck for your upcoming lumbar puncture. 🙏 Take it one day at a time. Sending hugs and thinking of you. 💛
Re: My Husband, My Life, My Love, My Family, My Cancer
Floor and toilet are done. After he managed to get all the old flooring up, he put down the new stuff. I noticed that there is a half step that would be easy to trip over, took a small step, I was using that to get into bed but don't use it right now. I put that in front of the bathroom exit, too easy to trip and do not trust myself not to when I use the bathroom through the night. The worker is coming back, says he has 3 tiles to put up then all is done. Not sure why they were not done but I am not concerned. He will be back tomorrow. Once all is finished, I will put stuff back, mostly just do laundry. Got some to spin and then put in the dryer.
Hungry now, Mcdonalds is calling me.
Re: Faslodex Girls Thread
Hi! @Rosebessie So, just to add on my experience. My docs do keep it refrigerated since I was told last time that the nurse took it out of the refrigerator two hours before I was coming. Truthfully, I don’t notice the temp and I follow tips provided by @eleanora (thank you sweetie!!) - here they are as she posted:
Over the years I have collected several tips from various nurses which definitely work for me and share them here hoping that they will work for you:
insist that they give you the vials to warm up - even if they tell you they're room temperature that's not the same as body temperature. I put one in each armpit and that works well for me. 😂
stand facing a chair with arms so you can hold on and bend the knee of the side being injected and rest it on the seat to take the weight off of it. (I have found I cannot bend each knee but rather slightly lift the leg getting the shot so not putting weight on it during the shot)
ask the nurse to give you a 3-2-1 countdown so you can cough as she injects
once the injection starts, ask her to "tap" lightly around the needle as this distracts the nerve endings. (This really works!!!)
To end, I bring my own ice bags and keep it on each shot location on my 25 minute ride home. I wear compression gym pants to hold the ice bags in place. Once home, I take some Motrin.
To date, I have not had an issue with my shots afterwards. I am either lucky or these steps work for me. Wishing you the best of luck going forward!!
eddiej
Re: Faslodex Girls Thread
Rosebessie. My hospital stopped refrigotating it at all. Our packaging says it is not required.
