Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
I am so happy for you whishing you all the best 🧡🧡🧡
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl in your pocket for your scans today. Hope everything goes as planned and that you get nice technicians who are gentle with you.
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
Thanks for all your responses to my post. Maybe I am not as social as I thought. Prior to cancer, and when I was younger, I did enjoy being in the buzz of activity. But now, with the cancer, and older, and my mobility issues with the arthritis, I don't really miss going to the "latest" activity. Maybe older and wiser? Who knows. I just do not see myself being in the large crowds that were posted in the pics on Facebook concerning that fundraiser dinner. I don't want to go to activities like that bad enough to put my health at risk. Not worth it. And I will get back to attending church when the illnesses abate. And I can call my friends and go to lunch with them when there is not as much sickness around. I will have a better time if I am not concerned as much about the person sitting at the next table. Oh, don't get me wrong, I do miss some social gatherings. But not enough to risk my health.
Angiosarcoma of breast
Hi everyone - I was diagnosed with a very rare cancer called Angiosarcoma - it appeared in my left breast and due to its aggressive natural I had a mastectomy and radiation
I am feeling blue and feeling awful about my body although I am in remission and I feel guilty as I should be grateful instead of feeling the way I do - joyless...
Anybody felt the same? It also has a high likelihood of coming back so it's tricky not to worry about that...
Xxx
yoko168
Re: My Husband, My Life, My Love, My Family, My Cancer
The stitches are out, they were not staples, had to disinfect my sewing scissors, cut them first and then use disinfected tweezers to pull them out and disinfect area once done. I am glad they are gone. Giving it a day or two before I wear my wigs
Re: Starting radiation October 2025? Let's support each other!
Hi everyone! I just finished a week ago, and wanted to drop in to offer a word of encouragement. You got this! Going every single day can be a drag, but the time passed quickly for me.
As for being ready, there's nothing special that you need to do. Each rad onc has different protocols including what deodorant you can wear, so that's a question to ask. They'll give you instructions on how to care for your skin. Fatigue is definitely a side effect most feel, but that might not kick in until several days or even a few weeks after you start rads.
Happy to answer questions if you have them!
kks_11
Re: Can we have a forum for "older" people with bc?
Hi everyone, I'm 68 and just diagnosed with PR+ HER- Stage III. I want to share my honest perspective. Over the past several days, I’ve followed many cancer journeys online closely, from initial diagnosis onward. What I’ve observed doesn’t always seem to align with how statistics are often presented. In many cases, the cancer does return, sometimes sooner than expected.
I also struggle with how survival statistics are interpreted. When we talk about things like “10-year survival,” that can include people who experienced recurrence or metastatic disease during that time and lived with ongoing treatment and suffering, which is very different from living cancer-free. My gut feeling says this is the vast majority in that 75%.
For me, this makes it hard to view cancer as something that is simply “over.” I don’t say this to be pessimistic, but to be realistic about the uncertainty and complexity many of us are facing. Does anyone else feel this way, or have thoughts that might help put this into perspective? I’m currently waiting to have my port placed and to start my second round of chemo, and would really appreciate hearing from others.
Enhertu questions and experiences
Hello,
My original diagnosis in June 2022 was Stage IB (T2N1mi)
ER-93%
PR-70%
HER2 - (2+ by IHC 1.0 by FISH )
Ki-67-80%
I did lumpectomy and breast reduction, 4 rounds of TC, and anastrozole switched to fulvestrant due to side effects.
In April of 2025, my CA27-29 spiked and imaging was ordered. Signaterra negative for ctDNA (thought I was in the clear). Recurrence in lung was confirmed metastatic late May. ER- 55%, PR-3%, HER2- (1+ by IHC, 1.2 by FISH). Ki-67 not done. Not enough tumor for NGS. Started ribociclib June 19 (almost 60 days post tumor marker spike). Additional blood biopsy at MDA still negative for ctDNA. Completely asymptomatic. Tumor markers kept rising. Thoracoscopy 8/20 confirmed lung and pleura progression. ER-60%, PR negative, HER2 ? (2+ by IHC, FISH pending) Ki-67-90%
Headed for chemo to stop things growing. Was going to go nuclear option and do AC-T to wipe things out and then do fulvestrant and Verzenio to keep things at bay. After meeting with 2 med oncs and talking to a cancer biologist, I think I’m headed for Enhertu instead as it seems to have higher efficacy. My question is how many rounds or do you just take it indefinitely until progression? Has anyone on here had a complete pathological response with Enhertu? What are side effects like? Has anyone here been on Enhertu for > 12 months? I am interested in any/everyone’s experience…
aaldupre
ANGIOSARCOMA RECURRENCE AFTER 20 MONTHS...
2017- Original diagnosis lump right breast, lumpectomy, radiation.
2021 - husband diagnosed with Alzheimer's due to Agent Orange.
Dec 2023 - Angiosarcoma diagnosis due to radiation.
2024 - Chemo, no radiation, double radical mastectomy with flap on right side. First recommendation mastectomy on right breast only. Got 2nd opinion and Moffitt Cancer Center recommended the double.
Aug 2024 - my husband passed away in a memory care facility. He never knew I had cancer. 😪
Dec 2025 - noticed a thickening of skin next to my left breast. Had a follow up appt with Moffit surgeon 2 weeks later. 2 punch biopsies confirmed angiosarcoma recurrence. Referred to Sarcoma Clinic Dr Brohl. He recommended 3 months chemo, radiation starting in 2 months will be 5 days per week for 5-1/2 weeks (scares the crap out of me) and more surgery about May.
Jan 2026 - started chemo 3 weeks ago. Paclitaxel
Angiosarcoma is very rare. Ironically, it can be caused by radiation. spread through the skin, blood stream & lymph system and doesn't show up on scans. They do scans every 6 months to see if it has metastasized.
I'm 77 years old. I'll be 78 in June 2026. Not sure I can do this anymore. I moved in with my daughter & son-ini-law after I had to place my husband in memory care to get treatment in 2024. I'm sad and scared but not surprised. Moffitt Cancer Center was very clear that this cancer has a 50% recurrence within 5 yrs and for breast angiosarcoma it's more like 70% recurrence.
Death rates for radiation-associated breast angiosarcoma (RAS) are high due to its aggressive nature, with reported 5-year overall survival rates varying significantly but generally poor, from around 20% to 40%. 😭
I welcome all thoughts and prayers as I fight this! I'll take 20 months at a time if Moffitt can give them to me. 🙏💗
sdianel
