Best Of

@nini69 So sorry to hear about the loss of your husband.. Like @livinglifenow says keep us posted. We understand and are here to talk. @eddiej Juliana, I’m glad you got to take a trip to Florida for the week.Im praying your scans are all good! @livinglifenow Pam, thanks for thinking of me! I just got home and I’m waiting for results to pop up on MyChart. Will let you all know!

@warriorboomer I think @EddieJ is correct with their being able to handle dietary restrictions. Usually food is served buffet style. Possibly your husband can also being meals to the room for ocean side dining. Ask them. Ask about this, too: Cruise ships use to have raised thresholds at doorways (water retaining systems) that can make wheelchairs slightly more complicated to use. Maybe modern ships no longer use them, but if not be prepared for bridging the thresholds.

If you've already paid and it's non-refundable, go for it and have fun. Don't worry! Bon voyage!

Hi everyone. I read your notes and am glad you are out there!

I remain on Truqap with fulvrstrant and xgeva shots monthly. My tumor markers continue to rise but my petscans have been stable thus far. I find the tumor marker numbers a bit frightening. Cancer is still in there percolating in my bones but I am still here. I find Truqap tolerable on the 3/4 dose. One of my biggest challenges is that I lost my husband of 35 years unexpectedly in surgery almost three years ago now. He was only 63. Doing this without him to help me and support me is really hard and honestly other than the people on this board no one else has any idea what we are going through. I miss him terribly.
I get injections every 28 days and petscans every six months. I am due for another scan in two weeks. 🤞🏻 the results are good and I can stay on Truqap. Thank you for being out there.

Thanks for the tips, @onlywhenitrains ! Yeah I spent the first post infusion days trying to eat food that was very healthy and nutritious but could not stand the smell or textures. It felt wrong to just eat bread and cheese although this was the only thing I could stomach at that point. Next time I’m definitely taking it easy and will listen to my body more, any food is way better than no food at all! Surprisingly I craved my son’s sour candy but ok i didn’t go that far 😅

This week I was feeling a lot better but I got the dreaded call from the hospital, my neutrophils dropped to 0.3 😫 I’m now on antibiotics and wait to see if I’ll be well enough to get my second infusion on Wednesday. Doctor said it’ll be a lower dose, I was relieved cause less side effects. I only hope it doesn’t affect its efficacy!

Wishing everyone a lovely weekend!

Hi all! @ssales13 Praying your results are stable or better!! 🙏🙏
Just back from a week in FL, needed a break from the cold and snow.
I suspect I have increased pleural effusion on my left side due to discomfort when taking a deep breath. Waiting for a chest X-ray to take a first look. My next scan/blood is scheduled for early April but now we may move those up. I’m nervous but working hard to not panic. Other than this discomfort, I feel great. Falling on that every time I start freaking. A few tears leak out but then I move on. I’ve been do strength training, playing pickleball once a week and walking all the time. Keep calm, keep moving!
I’m keeping tabs on you lovely gals! I’ll be in touch. xoxo juliana