Best Of
Re: Is it my fault?
I was 34 when I was diagnosed with Stage 1 triple negative breast cancer. That was nearly 33 years ago. I had given birth less than a year before and I felt so incredibly young and helpless.
I did have a local recurrence after 19 years, but that was 14 years ago. I’ve lived a full life in the meantime and I wish the same for you.
You didn’t do anything to cause your cancer. It’s one of those “shit happens” things. You will feel better once up you’ve got a treatment plan in place.
Re: Illinois ladies facing bc
Posting here in memory of our dear Jackie (illinoislady), who took over this thread from ritajean who started it. She left us, quickly & peacefully, on August 3. I can't duplicate her endless trove of wonderful quotes; but I know so many of us on these forums live in Illinois, whether in Chicagoland or downstate (as she did, in Centralia). Reaching out to harley07 and chicagoan to pick up the baton. At one point we even tried to have an in-person get-together (helmed by the irrepressible camillegal from Lombard, who left us a couple of years ago).
chisandy
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@skcintn - Hello, I don't do the Zoom group (but think about maybe trying it), and I have mets to my sternum. I found out because I had a fracture while I was in the shower. I just got that all over feeling that something was terribly wrong, so I got out and continued to feel strange, so at some point went to the ER and they did scans that showed the mets and fracture. I had already had mets to spine and ribs.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@skcintn - you found the correct thread to continue chatting with the Zoom groups.. You might also want to post something on the bone mets thread about you question regarding your sturnum (https://community.breastcancer.org/en/discussion/789492/bone-mets-thread#latest).
Hope to see you on Wednesday.
Going2BeatThis
Re: Really scared
thanks for all the tips , much appreciated. I’m still scared as it sounds bad. Not sure I can do it.
luvzee
Re: STEAM ROOM FOR ANGER
Wow! 9 years is awesome. Thanks for the empathy. This latest cruel remark is added to a long line of indifference and bad behavior on his part since my initial diagnosis. He does nothing to make this easier for me and goes out of his way to make things more difficult. I had considered a topper, but the strands of hair are so fine (in addition to being sparse) that it would never blend.
Have been trying hard to go out into the world and participate in activities, but the days when my courage fails me are becoming more common. Sorry for the negative post. I do have a therapist and access to prescription meds if I want/need them, but I prefer to face the reality of my situation. As with everyone else, some days are just more difficult than others.
Take care,
Eleanora
eleanora
Re: Abemaciclib Verzenio for Stage IV
I wonder what’s going on with the people who responded to this in 2018? Any news?
BC since 2004, MBC in 2015 and recurrence in liver in 2020. I’ve been on Verzenio and Faslodex since then for 57 months. Liver tumor shrunk, and no progression anywhere!
I ask my doctor if this is unusual and if I should be frightened about a recurrence and she never answers directly, except to quote the MONARCH trial results.
Anyone out there, or does the author of this thread have any more info? Do you think I’m on my way to CR? Side effects are almost non existent. Fatigue is about it, but I’m also 74.
Re: Verzenio
Hello All! I have been taking Verzenio for a year, but I had to stop for a bit, after being hospitalized. This is my experience:
The side effects waste no time showing up. Diarrhea is the worst, and on July 4, 2025, I had to go to the ER. I drove to the vet to pick up my dog's meds, and I was extremely unstable on my feet, light headed. The day before, I had gone to the grocery store and was very confused as to why I was there. On the 4th, I was unable to complete my yard work. I was unable to catch my breath. The ER determined that I had low BP, low potassium, UTI, and dehydrated. I was treated and sent home with antibiotics and more potassium. I fished the antibiotics and continued taking potassium. July 16th, I had an appointment with oncology. I remember checking in and sitting down in the waiting area. I then woke up on Friday the 18th. I was still in the ER, waiting for a room. I don't remember what happened. I only know what others told me. I did have to be sedated and I had a sitter, even though I was asleep. Life was great for a the past couple of weeks, while I was not taking the Verzenio. I started taking it again today, and I got diarrhea as soon as I ate, or drank even water. I saw the oncologist Aug 6th, and asked about switching to a different medication. I was told that it was too costly.
That's my story
Michele
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
Hi. My name is Sarah. It's my cat Gretchen in my profile picture. I was on the MBC Wednesday Zoom at 4 p.m. ET. Aug. 6. I hope I am posting to the right place. I noticed on that call lots of women introduced themselves to me mentioned mets in their sternum. Does that feel like anything? Ever since my lung collapse last August (2024), I seem to be more focused on that part of my body.
Anyway, if you find this message and you have sternum mets, did you feel or notice anything?
Thanks so much for reading.
Sincerely,
Sarah C.
De novo MBC (lung)
One year since diagnosis
Meds: Zoladex, Falsodex, Abemaciclib
skcintn