Best Of
Re: Starting Radiation in August 2025 support thread
Not sure if I'll start in August or Sept. My last taxol is this week (barring any setbacks). My RO is the same person who treated me 14 years ago. She's considering DIBH and prone techniques to spare my heart, which has some existing damage from my first go at treatment (she says A/C did it 🤷♀️). I did well overall with rads last time, but this course of chemo has been brutal - so who knows.
kks_11
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@threetree Hi ! Thank you so much for sharing your experience with me. That sounds really painful. I appreciate the clarification about the intense pain. (Although I’m very sorry you went through that!!) it’s hard for me to know when something is a symptom or when is just my body being weird. For the past few weeks Ive had the sensation of something “stuck” in my upper chest. Sometimes it’s prominent and sometimes it’s not. It’s like there’s a piece of bread that I haven’t quite swallowed. And it came on really strong right after last week’s round of injections. It’s probably just stress related because it doesn’t sound like what you are describing.
I went to the zoom for the first time last Wednesday. It was refreshing, reassuring, and very helpful. I felt way less alone.
I hope you are having a good day today. Thanks so much for responding!
skcintn
Re: Is it my fault?
I was 34 when I was diagnosed with Stage 1 triple negative breast cancer. That was nearly 33 years ago. I had given birth less than a year before and I felt so incredibly young and helpless.
I did have a local recurrence after 19 years, but that was 14 years ago. I’ve lived a full life in the meantime and I wish the same for you.
You didn’t do anything to cause your cancer. It’s one of those “shit happens” things. You will feel better once up you’ve got a treatment plan in place.
Re: Illinois ladies facing bc
Posting here in memory of our dear Jackie (illinoislady), who took over this thread from ritajean who started it. She left us, quickly & peacefully, on August 3. I can't duplicate her endless trove of wonderful quotes; but I know so many of us on these forums live in Illinois, whether in Chicagoland or downstate (as she did, in Centralia). Reaching out to harley07 and chicagoan to pick up the baton. At one point we even tried to have an in-person get-together (helmed by the irrepressible camillegal from Lombard, who left us a couple of years ago).
chisandy
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@skcintn - Hello, I don't do the Zoom group (but think about maybe trying it), and I have mets to my sternum. I found out because I had a fracture while I was in the shower. I just got that all over feeling that something was terribly wrong, so I got out and continued to feel strange, so at some point went to the ER and they did scans that showed the mets and fracture. I had already had mets to spine and ribs.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@skcintn - you found the correct thread to continue chatting with the Zoom groups.. You might also want to post something on the bone mets thread about you question regarding your sturnum (https://community.breastcancer.org/en/discussion/789492/bone-mets-thread#latest).
Hope to see you on Wednesday.
Going2BeatThis
Re: Really scared
thanks for all the tips , much appreciated. I’m still scared as it sounds bad. Not sure I can do it.
luvzee
Re: STEAM ROOM FOR ANGER
Wow! 9 years is awesome. Thanks for the empathy. This latest cruel remark is added to a long line of indifference and bad behavior on his part since my initial diagnosis. He does nothing to make this easier for me and goes out of his way to make things more difficult. I had considered a topper, but the strands of hair are so fine (in addition to being sparse) that it would never blend.
Have been trying hard to go out into the world and participate in activities, but the days when my courage fails me are becoming more common. Sorry for the negative post. I do have a therapist and access to prescription meds if I want/need them, but I prefer to face the reality of my situation. As with everyone else, some days are just more difficult than others.
Take care,
Eleanora
eleanora
Re: Abemaciclib Verzenio for Stage IV
I wonder what’s going on with the people who responded to this in 2018? Any news?
BC since 2004, MBC in 2015 and recurrence in liver in 2020. I’ve been on Verzenio and Faslodex since then for 57 months. Liver tumor shrunk, and no progression anywhere!
I ask my doctor if this is unusual and if I should be frightened about a recurrence and she never answers directly, except to quote the MONARCH trial results.
Anyone out there, or does the author of this thread have any more info? Do you think I’m on my way to CR? Side effects are almost non existent. Fatigue is about it, but I’m also 74.