Best Of
Re: De Novo Stage IV
I’m sad to hear about kbl. She was someone who helped me see light through the dark days when I was first diagnosed. My thoughts are with her family and friends.
Thank you to the rest of you who continue to post and give me hope.
harrow
Re: De Novo Stage IV
I remember Heidi! 9 years for me so far and still active.
Thinking of Kris and how she would love the beautiful weather I have right now 🙂
illimae
Re: Triple Negative BC & Older Women
I'll chime in as real newbie-- recently diagnosed TN 56-year-old the last of July. I had a CT brain scan and a neck to knee PET scan just today- to come up with a complete diagnoses and staging.. Now I have the weekend wait... having fun yet??? **sigh**
You bet it bothers me that "older women" seem to be the stepchild of the studies since the numbers of us appear to be smaller.. While my heart TRULY bleeds for these younger women, and right now I worry about my own grown daughter, it would be nice to have more studies for those of us who DO develop this later in life. I feel sick for such young women to be hit with TN, so don't get me wrong. This is uncharted waters for so many of us as it is. Surely older women should be considered since we DO indeed develop TN. Hello!? Here I am, and so are you posting in this thread.
My mother had early onset BC yet I have no idea of what kind. She had a radical mastectomy on her right breast after finding a very palpable lump.. Mine was easily found also.. like it popped up overnight. I digress. There's no other family history on Mom's side of the family, nor my Dad's who are all now deceased. Even my baby brother died of the chronic form of leukemia Mom had. I'm very familiar with cancer as it's hit my birth family with a vengeance. My Dad died of pancreatic cancer also 3 weeks after diagnoses.
In Mom's case she survived the breast cancer treated (at around 38 years old, I think).. About 30 years later died from complications of chemo to treat what I think was a late diagnoses for acute myloid leukemia. She lived 3 weeks from diagnoses.
All I know right now about my own diagnoses is a poorly differentiated invasive ductal carcinoma from 4 tissue samples acquired from a needle biopsy. I also had an MRI which only confirmed this diagnoses with no other findings.. And of course it's TN.
Discovering that own my own thru my path report was a huge kick in the gut. I was ready to fight breast cancer.. I'd never heard of this form though. And yes, It WAS confirmed by my new oncologist.
Everything has happened so fast.. but not fast enough after reading about the invasive nature and distant reoccurring rate of TN.
I plan to get tested for BRCA mutations as I have a 37 year old daughter and 3 beautiful granddaughters, one who is approaching her teens.
Even my oncologist was surprised I was over 50. It could be taken as a compliment, however in reality I think it had more to do with the fact that most of her patients are much younger. She does the most breast cancer cases in the state. What she can't handle, such as cases where her TN patients have mets she sends to Baylor. She feels the true experts for this particular cancer is best treated at Baylor, as the so-called-mother of TNBC doctor is there with her research team.
Filtering all this information in such short time has been a real kick in the behind, but I'm hoping and praying for clean scans and and a low stage to start.. as I'm ready to do what I can to beat the crap out of this nasty beast.
Sorry this turned into a novel.. my first post.
I'm so glad I found you! Peace of mind seems a thing of the past.. though I desperately wish it for all of us, at ANY age! Take care... 
adgirl5
Need help anyone else had anything else come back on their pet scan
Hi I am 37 years old I have recently been diagnosed with IDC triple negative and went for a pet scan the scan come back and said that the area hasn't spread anywhere else but the scan did pic up something in my colon area they weren't concerned at all really but now I have to wait yet again before I even see oncology to have a colonoscopy done. I really thought after my pet scan I would get on with doing something proactive like getting treatment now I feel right back where I started extremely scared and frustrated just waiting to be told I have cancer in my colon as well. Has anyone else experienced this? And did you have a better outcome than what you thought I'm going crazy again I had excepted my breast cancer and was determined to get on with the fight this has set me right back and I feel deflated and I haven't even started any treatment yet the constant wait for scans then results is driving me mad because what am I waiting for the long I wait with no treatment the worse it's getting I am really frustrated any advice would be very much appreciated
Re: De Novo Stage IV
So sad. My condolences to her family and her friends here.
threetree, I recognize your pic! Hugs to you.
denny123, I'm still around, too. I'm 18 years out this month and still NED
Re: Can we have a forum for "older" people with bc?
Cindy - thanks for taking us to Ireland with you! We didn't have nearly as good weather when we were there. So true about the English's treatment of the Irish - but then I don't think they treated any of their "minions" very well.
By the way Chris, thanks for the referral about New Amsterdam. Certainly true in Virginia too.
Sandy, don't beat yourself up about the "wish you had known." I think you have to go through it to know what to do. We were very fortunate that we have USAA insurance and if anything, we got upgrades with some of the replacement items. But still we had to leave the rental before everything was done and had clothes spread out everywhere because our closet wasn't finished.
Petite - love what you showed us of your cabin. How big is it? How isolated? Looks like lots of forest.
Betrayal - I know Jackie's shoes were big, but thanks for trying to fill them. Sounds like we all appreciate it.
It's been hot here but not nearly as many "over 110 degree days" as last summer. We also are having sporadic rain like the Chicago area is.. The east valley always gets more than we do but the next town over where I play golf got over 1/2 inch this week and we only got enough of a drizzle to make the dogs not want to walk. Almost like the weather was respecting the town boundaries. I've continued to play golf regularly but always early, only 9 and with an ice towel. Ken and the dogs walk over a mile in the morning but other walks are obviously not much.
Belle is still here. No discussion about her return home so who knows…. She's generally a good little girl although is more of a barker than Mutz ever was.
Happy belated birthday, Betrayal. Our 59th anniversary was the 14th. Talk about romance - we bought each other new lamps for our respective offices.
Haave a good week, everyone.
Marge
1946taco
Re: BCO In Memoriam thread, Part 2
KBL Kris was so helpful, knowledgeable and genuine with her advice. Big loss for our community.
Tanya
Re: BCO In Memoriam thread, Part 2
I always meant to meet up with her in Mt. Vernon but never got the chance. She was posting through 7/31, never recently mentioned difficulties with her kidney cancer or treatments, and mentioned doing all sorts of mundane routine activities like feeding & tending to feral cats as well as her pooch "Li'l Red;" so I suspect it was something sudden and (I hope) painless and/or peaceful related to her cardiovascular issues. She was the glue that held several BCO threads together; and we should continue posting there to honor her.
chisandy
Re: My Husband, My Life, My Love, My Family, My Cancer
💔 at loss of kbl. Condolences to her family and friends, including those here. Damn cancer🤬
Re: I’m on hospice - anyone else?
Even though I don’t come on BCO that often KBL was the first person sought out. I’m saddened by her passing, thinking about her grandson and how much she loved him. What a remarkable woman.