Best Of
Re: Starting Chemo June 2025? Let's support each other here!
I start TC hopefully next week pending insurance. I will be doing cold capping and hopeful it will work to keep some of my hair.
Re: Can we have a forum for "older" people with bc?
We had gray skies and rain early. I was up too early again today. Right now it’s sunny and humid. I think over the next few days we’ll definitely appreciate the new AC splits.
I had ordered some liquid hand soaps from Pottery Barn and they shipped to the store on Monday. This afternoon I drove over to get them. I had the very first parking spot but boy it wore me out going in & out. I was glad to get home and elevate the foot.
The concert right now is iffy. I’d give my ticket to another gf to go. Enjoy the evening.
cindyny
Re: Positive LVI and Benefit vs Toxicity of Adjunct Treatment
I chosed aggressive treatment, being young at the time, wanted to be around for our kids.I am glad I had a radical masectomy and chemo for a year, twice a month.
Saw our kids finished school, university, marry, 30 years survivor.
I am retired from a cancer center, my choice made me live years.
dreaming
Re: Can't get in to surgeon for 6 months.
Yes I did get into Stanford & met with surgeon. Just had second appointment today and was told that after reviewing images of MRI mastectomy would be preferred due to the fact that lumpectomy would have to remove over 60% of breast and there would be defects. Just trying to process everything after learning that the complication rate for older women(I'm 71) is pretty high with reconstruction. Trying to get used to the idea of no reconstruction.
Re: Can't get in to surgeon for 6 months.
I am a Kaiser patient (I went 13 years at stage IV before any progression!) but did get second opinions at Stanford. They concurred with Kaiser’s recommendations, which was comforting. UCSF would be a great choice as well (though Stanford is so fancy!) . I will also add that since I had recon at the same time as the bmx, coordinating the surgeons did add to the wait time, but due to the nature of bc, relatively slow growing, there wasn’t much concern about it effecting my health negatively. Take care
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl I feel for you. What a horrible experience. Sounds like you have a great guy though, who sticks with you no matter what.
@goldensrbest Hope that you are recovering well. Will be interesting to see what the plastic surgeon recommends.
@eleanora Hope they figure out solutions to your diverticulitis and tooth issues. Both sound quite painful. Glad the medicine is working.
@mara51506 Best wishes as you work on getting your bath tub fixed. What a hassle.
It's very hot here. I worked a double shift yesterday and my legs were really hurting. I was allowed to get 2 more weeks on the anti-inflammatory drug that helps with my arthritis, but that's all. I am going to try not to take it. I'll see a new internist in August-hopefully she will put me back on celebrex or something. In the meantime, my cancer center offers 6 free massage treatments and 6 accupuncture treatments. I am going to try those-maybe they will work. The PT is strengthening my outer hip but not helping with the pain. Maybe it's muscular and not arthritis pain-hard to say. I took a cold bath when I got home-the cold water did seem to help the inflammation.
Re: My Husband, My Life, My Love, My Family, My Cancer
So sorry to hear about the interruption of your plans. Glad you have the new date to look forward to.
onward and upward with what looks like a good recovery plan. You strength and determination inspire me.
Please keep describing the wonderful time with your grandchildren. Your post lightened my mood considerably. I always describe my grandchildren as "human sunshine". Sounds like you are doing an awesome job creating good memories for them.
Had two hurdles to jump last week. Having a minor twinge in a front lower tooth that had a crown but had not been root canaled. Saw my regular dentist and x-rays, exam and hot/cold testing revealed no sign of decay or infection. Because I have been on Xgeva for 3 years, I have a referral to an endodontist for a second opinion.
Also had greater intestinal pain and GI issues than usual (these occur on and off with Kisqali), and finally wound up in the emergency room on Friday where blood work and a CTscan diagnosed diverticulitis. I have augmentin and a pain reliever until 6/20, with a follow-up with the gastroenterologist on 6/30. Medication definitely working - was even able to tolerate a cup of coffee this morning 😊 A little concerned that MO has told me not to start Kisqali again (I'm in my "off" week) until I finish the augmentin and have clearance from the gastro MD. She's concerned about lowering my immune system. Unfortunately, I can still have the damn faslodex shots 😫
Kind thoughts and virtual hugs to all
Eleanora
eleanora
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Oh no , so sorry your plans were ruined. Sounds like you really had a belly battle going on. I hope you’re able to reschedule soon and get to enjoy a nice dinner with your family. Hugs 🤗
@goldensrbest Sounds like a good plan. Gives your body time to heal in the meantime. Hope you’re getting your energy back.
@mara51506 In your pocket for Herceptin today. Ugh yes the humidity is creeping in here and temps are rising. Take it easy and hope your trip is smooth today.
@intolight I hear your joy through your pist and it warms my heart. Please keep on boasting, this is what we live for, enjoy!
@irishlove Hope your feeling well.
Thinking of Mel/ Gabby and waving hi to everyone.
cookie54
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
KBL I love the rainbow. Susan is in my heart. I’m going to light a candle for her today to remind myself to think about her.
Tanya
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@rlschaller - Made it through yesterday. My cavities ended up being 1 upper left and 2 upper right teeth. My dentist was able to do all 3 in about 40 minutes and yes, it was painless. Only downer was that it took the Novocaine almost 4 hours to wear off, not 2 as my dentist had said!!
So glad to hear that your radiation burns have healed well and that your skin Mets are stable for now.
