Best Of
Re: Triple Negative Stage IV
@cookie54 I read in another thread your eye issue has resolved itself, but you are going for more tests. Just wanted to send you a great big hug, and lots of light to surround your way forward. ❤️🤗 I know it’s hard when one more thing needs to be looked at, ugh. It’s just the way of it, wishing you trust and patience, and kindness for yourself along the way. We are in your pockets for support.
@scgal08 i know the comments box disappeared for you on this thread.. but thought I’d give it a bump and see if it reappears for you lol.
Navelbine seems to be working, have had 2 of 3 infusions on cycle 1 - yeah team. The Mets are all shrinking a bit, the skin seems to be drying around and on the nodules, which I believe is the healing process . Will see what MOs say, as I see both of them this week, Northwell on Wednesday and then MSK on Friday.
I will miss the Aug 6 zoom though as I will be at infusion, I will be there in spirit. Love to all -Rhonda
Re: Mucinous Carcinoma of the breast
sonia…so there is no confusion….in the body of my post, I explain my primary was 90% ER positive and the recurrence is 100% ER positive. The primary was 50% PR positive. Recurrence, PR negative.
i also had PT for cording following my lumpectomy. I also had a procedure that released my frozen shoulder caused by another, unrelated issue.
Moving forward, I will not be addressing anything else regarding mucinous breast cancer. The reason being, is, as I mentioned before, there are so many gaps with respect to understanding its treatment. As Obsolete suggests, Mucinous should be looked at, as, on a spectrum. And then, there is data. Dealing with a rare subtype, often times, the only way to understand treatments is through meta analysis because there are too few diagnoses to establish statistical significance through randomized studies.
i have discussed at length with my team, my concern regarding the PR negativity, the micropapillary features, and the change from pure mucinous to IDC with Mucinous features. Have I read about the potential negative consequences of being PR negative? Of course. That said, most of the data specifically addresses the traditional types of breast cancer. There is, here and there, very small studies regarding PR negativity and Mucinous breast cancers. Most data is not statistically significant. Recently, I zeroed in on Korean study of mucinous breast cancer recurrences. If I remember correctly, I was scratching my head because two of the four were Luminal A. While the other two, were Luminal B. Again, the data is so sparse, it would be difficult to draw any conclusions….
i will repeat what I have said from the beginning of my journey, for many of us, breast cancer is a very treatable disease. Yesterday, I met with my local medical oncologist. She said, “You had a very small tumor. You had surgery to remove it. You will do well, just like before.”
Hope springs eternal.
carpe diem.
Re: I’m on hospice - anyone else?
Thank you all. I’m sorry I can’t answer each individually. My energy is pretty much nonexistent. You have made me feel like I’ve made a difference. I love you all.
Kris
kbl
Re: I’m on hospice - anyone else?
Thank you for the beautiful picture of family, Kris. I will keep it in my heart.
Re: I’m on hospice - anyone else?
I echo all of the sentiments so beautifully expressed above and I'm holding you in my heart as you take the next
steps in the journey you have so generously shared.
💕
eleanora
Re: I’m on hospice - anyone else?
@kbl Love and peace to you Kris. I read far more than I post, but I hold you all close to my heart. ❤️
vixielyn
Re: I’m on hospice - anyone else?
beautiful photo. You have created a wonderful memory for him. May the rest of your journey be peaceful. ❤️
eleanora
Re: I’m on hospice - anyone else?
Dear Kris @kbl you have always been such a strong source of support for all of us here. your creativity in starting new threads and generously sharing helpful information has meant so much to this community. I’m deeply thankful for you ❤️ even now, in this moment, you continue to share your experience with such honesty and grace. you are an extraordinary person. I admire your strength, your courage, and your generous heart. I will carry you in my thoughts and in my heart ❤️
Thank you for sharing the beautiful photo of your lovely family. your grandson is adorable and I do remember how much joy he brought you, both your grandson and your daughter have your warm beautiful smile.
I wish I could change the world for you.
With love and deep respect.
Julia
(my apologies I haven't been in contact sooner I wasn’t aware of everything that’s been happening been away from the forum for a while dealing with we know ie this C/ monster in my liver and a lot of se.)
Re: My Husband, My Life, My Love, My Family, My Cancer
My friend's funeral was yesterday. Nice funeral. Celebration of life. Different ones told stories, memories, etc. We laughed. We cried.
I am thinking more about my own funeral. I am stable for now, but we know that can change anytime. I have sat down at my computer and drafted my obit. I have made some notes about the planned service, but I have not formally gone and pre-arranged my services, casket, etc. I just want things done for my family- a sister and a brother only- and I want things done the way I want them done. I have always been a planner for other things in my life, why not this too.
Re: How long have you been Stage IV?
My thoughts are with you @ssales13
Hoping your doctors put your new treatment plan together soon.
I am waiting for results from my scans last week, anxiety and stress waiting for information and reports are constantly on my mind.
Hugs, LAF
lafish