Best Of
Re: How are people with liver mets doing?
Thank you everyone for mentioning me. I had my scan yesterday and once again I am stable. My tumors in my liver were visible, but unchanged. I have been getting scans every three months for years—I am surprised I don't glow!
Re: Can we have a forum for "older" people with bc?
No posts to read this morning and no word from Jackie.
Re: My Husband, My Life, My Love, My Family, My Cancer
Threetree - joining our sisters here in pocket duty for you. I’m so sorry about your progression. I love Mara’s recommendation about staying focused on today. I know that’s hard to do but I hope you can find some peace of mind every day. Hugs 🤗
Re: ILC LFET SIDE 46 MM , RIGHT SIDE 5MM IDC
Thank you so much . I will start radiation next week .
Re: I’m on hospice - anyone else?
kbl-Beautiful picture, everyone has a beautiful smile. Warms my heart.
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
Hello all the lovely ladies here tonight. Threetree, please know I'm sending out prayers (if accepted) and hope that you will find peace of mind when you meet with health care folks. I just know they will beat this back, especially since your systemic treatment has been working so well. Distraction sure does help. When I put my hands into the soil to garden, it feels like a promise of tomorrow. When I watch a great story, nothing interrupts my brain. Of course I might just have a one track mind, but hey can't argue with what works. We are all here in your corner holding you close in our thoughts.
Mara, the butcher told me about the different types of salmon and the cost factor. He said that the less pricey salmon usually has some fine bones in the tail area, but just as tasty as the expensive brand. I cheat and use canned sweet potatoes, but canned small red potatoes sounds like a good substitute to me. Since I can remember we've eaten Shepherd's Pie. Some make it with fish, potatoes and carrots. We make ours with ground burger (seasoned to your liking, I use onion powder and pepper), fried till no pink shows, mashed potatoes and cream style corn. . Layer the drained, cooked, ground beef, then spread creamed corn over top and then lastly, spread the mashed potatoes. We put butter and parsley on top of the potatoes. Bake in oven 375 degrees for 45-50 minutes.
Cookie, thanks for forgiving me. Cure-ious posts such important updates about clinical trials and I can't keep each thread straight anymore.
Here's a story that I hope leaves all with a laugh. I had my MRI today and the nurse was assisting me in laying down. Just as she lifted my legs to put a pillow under them, well I gave the longest and loudest "toot", probably on record. I was so embarrassed and apologized profusely. She pretended she didn't hear it, but I think she left the area quickly to get some lysol spray. LOL… I blamed the cafeteria for the situation, as I ate a slightly greasy burger. I don't usually eat greasy burgers, but oh it looked good and tasted good. And besides I only ate half, gave the other half to DH. Hmm, wonder if the exam room would have exploded from gas if I had eaten the whole thing?
Re: How are people with liver mets doing?
@intolight - Thank you so much for the encouraging information. I know that you and others on here have managed to make it for years and years with these liver mets, but from what I've been reading you are the (wonderful and inspirational) exceptions to the rule. This didn't come as any real surprise, as the oncologist has been talking about it for about 4 months now, and several radiologists have suggested that these were metastatic lesions now, since last fall. The oncologist keeps telling me though, that the lesions are slow growing, that there's nothing urgent at this point, and that we have time, so I guess those are positives that I should ponder a bit more. I'll just have to see what kind of a game plan he comes up with. He said that ideally he would like to initially keep up with the Verzenio and Faslodex, since they are working everywhere but my liver, and then independently treat the liver mets with something like Y-90 or other form of ablation; only moving on to other drugs whenever these other options fail. I don't know about the possibility of any mutations yet. I'm assuming that what came through on MyChart this afternoon was just the basic confirmation that it is cancer. I have yet to see anything come through with more information, and yet I can't help but think that more is going to be tested and put out there. The oncologist mentioned all sorts of information that the biopsy could give them, but all I've seen so far is just confirmation that it's indeed cancer. If there are any mutations, that will add a twist of course and add to all the treatment plan discussions, I'm sure.
Again, I really, really appreciate your words of encouragement, and I am so very happy for you that you have done so remarkably well with all of this. I often look to your story as one of hope and example. I also wish you all the best tomorrow with your scans. Crossing my fingers and hoping that Orserdu is coming through in a big way for you. Please let us know when you know more re results, etc. Hugs too!
Re: My Husband, My Life, My Love, My Family, My Cancer
@threetree So sorry to hear about liver progression. Echoing the suggestions of one day, one step and one minute at a time.It sounds so easy but we all know it can be quite difficult at times. Glad to hear you were able to distract yourself for a bit today. In your overflowing pocket of support for tomorrow. I hope you're able to get more information to calm your mind a little.Sending you hugs, love and positive vibes❤️
@irishlove No worries at all, it's hard to keep all this info straight for sure! Glad you were able to talk it over with your sister. Hopefully she will try to be more in tune with what your daily life is like! Nice that your having some fun decorating, your comments are a crack up…love it!
@mara51506 Sounds like you always manage to get a nice high protein dinner. Hope you had a productive laundry day.
@shanagirl Thinking of you, hope your having some pain free days.
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 - Thanks so much for your comments and being in my pocket. I think your suggestions about how to better handle all of this are spot on - a bit easier said than done, but that is the solution; just taking what comes day by day, minute by minute, and trying to do and focus on routine things in the here and now. I did do that a little bit this morning and just did some routine errands to the dry cleaners and the store. It did help to get out and have the drive and to just focus on regular things. It helped distract quite a bit, plus I always love to look at all the yards and plants and things as I drive around. Had some nice little "small talk" with the lady at the cleaners, drove a little different route to the store, just to see a few different things, and then took a "long way" home just to stay out of the apartment for awhile longer and enjoy the drive. On a whole 'nother note, I have had Havarti cheese and it's really good, especially on things like turkey or chicken sandwiches. Give it a go for sure.
@goldensrbest - I so appreciate your nice thoughts and pocket duty! I think Mara's recommendations are perfect, and I'm going to try to keep all that in mind over the next while - until I wrap my head around this all a bit more. I am going to see the nurse practitioner tomorrow, when I get my Faslodex shots (yuck) - she might be filling in for the oncologist, but I usually see her routinely too, just for general follow-up. I'll see if she has anything of note to add to all of this. I'm still thinking that some more info should be coming from the pathologist too, that might shed a bit more light on things. We shall see.