Best Of
Re: how about drinking?
Only phone support from sister and friends in WI…."grief counseling" on hiatus out here (per hospice) as if people schedule death. I hate them.
New here, palb2
this is my first post here so forgive me if I’ve put this in the wrong forum. I am 44 years old, and my mom was diagnosed with stage 3b ILC 5 years ago. Because it was lobular they did the genetic testing and she had a palb2 mutation. She is doing great now which really was pretty miraculous. Anyway, I waited a year or two after she was diagnosed and got tested and also have the mutation. I have very dense breasts, and have fibrosystic changes, whatever than means, as well as needle biopsies years before she was diagnosed. All normal but I guess they were concerned. Anyway, fast forward, I’ve been getting the advanced screening with MRi’s for 2 years and thankfully all has been normal but I started thinking that I wanna eliminate some of this anxiety and fear. I’ve met with my breast surgeon. I meet with a cosmetic surgeon tomorrow for a consultation. I haven’t really fully decided what I’m going to do, but my mom and brother and extended family all really want me to do it, I don’t know how accurate it is but my last tyrer cuzick score was 67.1. I’m wondering if I’m being too drastic with considering to go ahead with the bilateral risk reducing mastectomy and reconstruction. I don’t wanna do something crazy and unnecessary. I’d just love some opinions. Thank you in advance. Also, I’m a single mom to a 13 year old son, who’s dad is not the best so he needs me, but I’m also afraid of not recognizing my body and having emotional issues as well as a hard recovery.
Re: Found a large lump near my nipple
I am in a similar boat. Felt a lump, noticed a dimple. Had a mammogram and ultrasound. Was told at the ultrasound (NEVER got results or next steps so quickly) that I need to have an ultrasound guided needle biopsy. The findings are BI-RADS 5 - Highly suggestive of malignancy. So now I am trying to get an early appointment (had to find some form of discounted program as no insurance till October). But the waiting is so stressful.
Re: 💗 August 2026 Surgery Thread — You're Not Alone. Come Share, Ask, Update & Support One Another 💗
Not August, but September 1st…having a bilateral mastectomy, sentinel node biopsy, and the first part of reconstruction (tissue expanders). The current plan is DIEP flap in a few months.
I was diagnosed 6/3/26 with Right DCIS. My options were lumpectomy/radiation/5 years tamoxifen vs bilateral mastectomy. The mastectomy is the right decision for me. I am more nervous about the 2nd surgery (the DIEP!) than the mastectomy.
I am still learning and figuring things out here. Looking forward to connecting.
Re: Can we have a forum for "older" people with bc?
I’m beat! I took a 2.5 mile walk this morning, sweating through my clothes. When I got home I had to get out of my clothes they were so damp. But that’s not what has me beat.
Tiny beetles - we have them again. You’d never guess the food source!! It’s a large neck heating pad, full of rice I’d assume. I bagged it quick and took it to the outside trash.
Then I emptied the linen closet, 6 shelves full, and so many tiny beetles! Sesame size and smaller, alive & dead. I’ve got probably 6 or more loads of laundry to go.
It never ends. Wiped everything down with Clorox wipes. I’ll check again before putting items back in there. And that’s my Sunday!!
cindyny
Re: 🌟 July 2026 Radiation Roll Call — Come On In For Support and Info🌟
fhh225 - I had a lumpectomy with sentinel node involvement and will be halfway through my 20 sessions on Monday. I’m not in a prone position, but I am claustrophobic. The “arms” ( not sure how else to describe them) come close, but I haven’t been bothered by it. My treatments are very quick; from the time I leave my husband and daughter in the hallway to coming back out is only about 10 minutes. I’ve been fortunate to not have to wait long at all once I’m in the dressing/waiting room. I think most RO have their preferred treatments for skin. I use Miaderm soap to shower and then Miaderm cream 3 times a day plus castor oil at night. I’ve applied it religiously every day. So far my only skin reaction is a slight rash on my chest. I don’t know if it will worsen with more treatments. I have had issues with fatigue since right after my surgery and met with the PT and nutritionist that my RO recommended so have a plan going forward. Hopefully this will help with the fatigue.. Will you be taking any medications when the radiation is finished?
I’ll be praying for few SE and good results for your treatment.
Re: 🌟 July 2026 Radiation Roll Call — Come On In For Support and Info🌟
fhh225,
Thanks for posting. I had my last treatment on Monday! 🙏 Just the fact that I don’t have to get up and go anywhere is such a relief. Finally getting some more ambition and motivation to get some things done around the house. I’m going to PT once a week for the fatigue and I do think it’s helping. Also the rash is slowly getting better so that helps. My RO wants me to continue with the creams for 2 more weeks. I’m supposed to take the Letrozole for 5 years and the Kisqali for 3. The Kisqali is so expensive!
So glad you’re counting down! Here’s hoping that your skin reaction won’t get worse.
My kids and I are actually doing a 5K breast cancer fund raiser on Saturday. My son is bringing his wife and almost 2-year old daughter and my daughter is bringing her 1-years old daughter. Her husband and their 7-year old daughter were going to come, too, but she has her first cheerleading for a football game at the same time. The weather here has been so hot and humid and is supposed to continue through Saturday along with rain. I’ve never done anything like this and we definitely won’t be running. Wish us luck!
Take care and let me know how you’re doing.

