Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@mkestrel I do very simple leg stretches and they really help. Even when I feel too tired, now I ask myself, do I want to wake up with cramps? If I stretch, I don't.
@threetree I live alone so I can scream. If I was in an apartment building, I would restrain myself but at times it has been so scary and painful. It's a Catch22-stretching in bed does not help-I have to get up and walk but I'm afraid to get up when both legs are cramping.
Re: Share your story of Genetic Testing
Hello everyone,
I have been diagnosed with Stage 2 BC recently. Got my genetic report yesterday.
I have got a finding of BRCA2 Variant of uncertain significance c.9307A>G and MSH6 VUS c.943T>A
Anyone with similar mutation?
yuviii
Re: Listing our BRCA mutations - maybe we can find matches
I have a BRCA2 VUS but different to yours. Apparently there are thousands of variations. You may find a match though.
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 sorry to hear about your progression and needing a biopsy. I just went through the same thing and hope everything goes smoothly for you and figure out a plan.
@intolight and @threetree thanks for sharing your ways of dealing with the aches. I have a blow up hot tub and I think maybe it's time to get set up. I ended up taking ibuprofen because I can't stand it and my regular pain medicine wasn't helping at all. Trying to walk it off at the park now.
I hope everyone has a good weekend
mkestrel
Re: My Husband, My Life, My Love, My Family, My Cancer
@mkestrel I have the extreme leg and joint pain on Taxol too. Mine started after my first treatment so I know the cause. It hits me day three after the infusion and lasts for three days. I take a pain pill when it gets bad and it helps. I also use a heating pad which seems to help. I was told I could also use ice but it is not my preferred treatment. I have noticed it is not as bad this time so perhaps it will lessen with time for you.
Re: Ribociclib benefit vs risk
Hi @yuviii! We’re glad you reached out, and we hope others with a similar diagnosis and treatment plan will see your post and share their experiences with letrozole + ribociclib.
In the meantime, you might find this helpful from our main site :
Treatments for HER2-negative breast cancer
Hoping others will chime in soon with their personal experiences 💛
The Mods
Re: 💛March 2026 Chemo Check-In: You don't have to do this alone!💛
So, Cycle 1 Day 11 update - I have energy again and the brain fog has thinned. Still foggy. Just not as bad. Trying to pace myself, so that hopefully tomorrow is a good day too but it is so nice to feel so much more like myself.
avened
Re: Long term "high oncotype test" survivors
Hi
I keep coming to this thread when I'm feeling anxious, its a real comfort. This is my first post.
Dx March 25 with grade 3 ER and PR + HER-, micromets in 1/4 nodes, LVI present. Lumpectomy done.
While recovering i found another lump, thinking it was scar tissue - unfortunately not.
Another tumour, same pathology, no LVI this time. Single Mx done
Oncotype 45. Dose dense Chemo done 4 x Ec and 4 x Paclitaxol. Radiotherapy completed. Started on Letrozole December 25 and due to begin Zoledronic acid Infusions and probably Ribociclib.
Very achey, but I will put up with whatever i can to reduce the risk of it coming back!
Hope youre all doing well x
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
Hey all!
Thank you so much for your wishes, I had my second infusion yesterday, it’s a once every three weeks treatment. I never had chemo before and this is part chemo, so I didn’t know what to expect. I’d say it’s overall tolerable although I did feel like roadkill for a couple of days during the first week. But it’s also no walk in the park, my neutrophils went down to 0.3 and by the end of the third week I had lost half my hair 😭. I was also delayed to get the second infusion by one week due to suspected infection which thankfully was just a false alarm. There’s weekly blood tests and other uncomfortable things but I’ve heard that it gets better over time and I do notice a difference in my breathing, hopefully the next scan will show regression 🤞
I hope you are all doing well and are enjoying or working towards your treatment goals!!
elena_p
Re: 💛March 2026 Chemo Check-In: You don't have to do this alone!💛
Hello everyone!
@amerli how did your infusion go?
@avened you are welcome! Intermittent leave is beneficial..check though about the PTO time with your HR people - I had to use mine but I wasn’t intermittent- it was when I had the surgery it was for a full 4 weeks …intermittent may be totally different check with your HR people.
I made it through this past weekend ,with the aches and pains, still not my peppy self lol.. we shall see how I feel after the second infusion
.
Unfortunately now I am getting the mouth sores!! Ughhh … 😩I’m rinsing with baking soda and salt water it’s helping , someone told me that there’s a toothpaste the dentist can prescribe? I will call tomorrow and ask. I know I can get the magic mouthwash from oncology but curious about the toothpaste.
I picked up my wig yesterday - her name is Heidi lol! And received my scarves, caps from Headcovers - they are nice. I think I’m prepared - at least I’m telling myself I am.
Hang in there everyone! Your posts are very helpful! Hydrate and get lots of rest ( that’s what I tell myself )😂