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@eeddiej. I was like that when I had my pleural effusion. Pulse ox would read 99 but I was out of breath walking around the house. I was told not to do anything strenuous until mine resolved. Olease be careful. So frustrating. You don't feel bad until you try to do anything. Mine has been gone for 3.5 years.

The one thing I forgot to mention he pescribed a low dose of prednisone for 9 days to see if my symptoms improve. He did wonder if I have mild inflammation, enough to be chronic but not enough to show on a scan. Kinda like my cancer. It showed on my Guardant360 but nothing can be seen on scans. Also looking at exercise induced asthma.

@chicagoan @brutersmom Thats how I feel - just how Chicagoan described it. I was in a friend’s pool a couple of weeks ago and set off to swim to the other end and get a raft. After 3-4 strokes I realized I couldn’t breath and had to turn around immediately and get to a spot I could stand. I almost didn’t make it and my friend was about to come pull me in. That scared the bejesus out of me! I do not look sick so get away with a lot of denial. That episode was a clear indication that I am truly ill and a lot worse than I like to acknowledge. It scared my friend too. That was right before my last thora. But now I think I need another one… @brutersmom good luck with the cardiologist!

I’m still going to exercise classes 3-4 days a week and doing some walking. My weight was too high so I started Weight Watchers. I’ve lost 13 pounds so far. My blood pressure and resting heart rate have gone down. I’d like to swim more but can’t get motivated

That pretty much describes how I feel. Hills stairs vacuuming etc. I only have minor damage. My symptoms don't match the damage. Next stop cardiologist.

@nanalisab @threetree

I am aware of the harmful effects of Phesgo on the heart, but I also see more people writing that they have no symptoms than those who do. I actually asked my doctors about doing some cardio training, and they told me to let my body recover from chemotherapy (wich i stopped last week) for a while before starting; I even bought a small home trampoline. I live in the Mediterranean and it is currently 40 degrees here. We also have the sea, but I don't like going because I feel ugly until my hair recovers.

However, I definitely plan to start some training in the autumn, plus long walks. I also have two small children, so resting is impossible with them anyway. But yes, I became very lazy during chemotherapy.

As for my diet, I am on a plant-based diet, without any fats and sugars, using minimal olive oil and raw honey, and I also drink cold-pressed juices. Sometimes I think everything helps, and sometimes that it's all in vain.

@brutersmom If the hill is really steep-like a sand dune, I gasp for air and can only move very slowly. With normal hills, my breath gets short and I can feel my heart racing.

Chicagoan mine was in the right lung. Drs can't find a cause for my shortness of breath. They say there is not enough damage to match the symptoms. Are you able to descri.e how you feel when you walk hills?

Hey friends-glad to see our thread reactivated. I got back on my bike for the first time in a couple of years today and rode 6-7 miles. It was hard but felt good. I'm still nervous riding around cars but thought it better to try in rural Wisconsin that Chicago. I've mainly been doing walking, yoga and weights. Nothing spectacular but I've realized that doing a little is much better than doing nothing. I'm a lot easier on myself now after 10 years with this beast. My exercise is for me and me alone, to feel better and keep my body as functional as possible.

I had severe pleural effusion when I was diagnosed-it's what finally brought me in to a doctor. It cleared up after 6 months of Ibrance/Letrozole and a Pleurex catheter but my left lung is permanently damaged. I notice it especially when walking uphill.

Tough old Crow-where are you planning to hike this fall?