Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Best wishes for your scans tomorrow. Your neck issues sound so painful. I hope that you get the "good" PT next time.
Stay warm everyone!
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove I am impressed with what you get done outside as well. Most I get outside is in back in my container to store stuff til recycle or garbage day.
Everything did get done today and I am happy about that.
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove - In your pocket for sure, for your endoscopy. Also very glad to hear that the UTI is finally gone, and that you are back on track with the cancer meds - so important. I woke up to 30 degrees also, and am enjoying it, because it's been coming with sunshine these last few days, and it makes for great walks; sun and frost together is a real treat in the morning. You are talking about @mara51506 and all of what she does re her housework, well I'm equally impressed with all you do for the "outside", tending to all the wildlife and plants; bringing various ones inside, due to the weather, etc. I couldn't do all that either. Hope you have a wonderful day.
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove Thank you for saying that, my apartment is small so it is not hard, just have to follow an order, make bed first, floor, box, bathroom. and kitchen. Still soak dishes and make sure they are done as well. Also got some recycling out back to take out tonight as well. Next week, got garbage to take out as well.
I do have laundry as well, what else is new I suppose and I am not upset about that fact, still love it myself. Love washing first, adding some lysol laundry disinfectant and then the softener cycle.
Not sure on food today, I have some beans pulled out, black beans and will probably air fry them, eggs could be on the agenda and definitely yogurt and jello. May try a softer boil, 7 mins on 140 in the shell, get a runny yolk out of them
I do hope everyone has a good day and I am in pockets for everyone.
Re: My Husband, My Life, My Love, My Family, My Cancer
@cookie54 - That's really interesting about the cramps you get at night. That's when I notice most of this, so maybe it won't turn out to be anything more than this. Very helpful, thank you so much.
@shanagirl - Oh Shana, are you ever going to get a break with this neck thing? I can't believe how unpleasant (understatement) this has all sounded, and how amazingly you have risen to the challenge. It does sound like you've made some good progress, and this latest issue with the PT and all is hopefully just an unfortunate bump in the road, and things will smooth out again soon. I am "only" 73, and I too always figured I'd make it into my eighties, and I'd still like to, but like you noted, it's hard to see that these drugs can/might carry me that far. Family history and my relatively good health, before the cancer diagnosis all suggested I'd very likely get into my eighties, but ...
I think of you often and really appreciate your comments and support. I'm sending you lots of good wishes and a hug, as you continue to work on your neck problem, and for your scan day tomorrow. I know those very well, and how long and anxiety producing they can be. In your pocket, and here's to a good scan report!
Re: how about drinking?
It's been a long time since I have been here. Just been busy with my grandchildren and my mom. Two of the kids are in sports and one in dance, I try to go to all of the games and have to drive the one to dance sometimes. These are the last ones still in school, so I know soon they will be grown and busy with their lives. I got myself into 2 bible studies, when they are done, I think I need a break from that. One of them afterwards we go out and have lunch and a drink. I try to order a different drink each time just to try them. I don't always know drinks, so I order what I seen someone do on the television. 🙄
NM we are going through a lot with my mom right now, I have 2 sisters that share the load, I know it must be hard doing it all on your own. We split up the work, one does all the doctor appointments, another does her banking and pays her bills. We are trying to get her to stop driving, she couldn't find her way home one evening and we were just lucky we found her. At first she said it was because it was dark, but later she told me she gets lost in the daytime too. We all told her to make a list of what she needs and we will either take her or get it when we are at the store. She won't use a cell phone, she gets confused with it, but we did get a GPS put on her car just in case she does go out with it. So far she is still ok living alone. She keeps herself and her home clean and she eats fairly healthy. I live next door to her and check on her a couple of times a day, she likes it when we come and play cards with her.
I hope you all are keeping warm, today we are cold here in Florida.
Re: Can we have a forum for "older" people with bc?
Well, when it rains it pours. Went to bed around 3 last night, bummed out by the Bears' loss. Next thing I knew it was 11am, with Bob shaking me awake and asking "what plumber should I call?" Uh-oh, "Which toilet is it now?" I replied. "Not a toilet—the kitchen ceiling is leaking. In four spots." The guy (former HK's neighbor) who comes in twice a week to mop the floors discovered it. To add insult to injury, I kept missing phone calls because the iOS 26 upgrade made "do not disturb" the default so everything went to voicemail.
Came downstairs, called the plumber, who came over and gave us the bad news. Per the recommendation of the restoration service they use, they had to open up a 4x3' section of the ceiling, by the fridge, right where our 2017 toilet-tank-bolt leak took out the kitchen ceiling, Wasn't a weather-related burst pipe, but rather a century-old one in the wall behind the 2d floor bath: there had been an air pocket in it but when the air got moving and the sudde gush of water cracked the pipe. Not just that, but the 15-yr-old wax ring on the upstairs toilet is shot. The new oak floor in the kitchen is already buckling in one of the spots where the water fell between the pots, so that part'll have to be sanded & re-stained. Will be without access to my kitchen and a bathroom with a working shower. (there's one in the basement bathroom, but it's in a room where the cats mustn't get in—boxes piled floor to ceiling. Cold dirty concrete floor—and Bob refuses to wear slippers. Not enough time to order some carpet runners to the foot of the basement stairs (that half of the flight has only one banister and it's painted wood—so Bob is afraid to go down there). But for the cats we'd just take a hotel. So tonight we will have to move the cat feeding station, Keurig & K-cups into the dining room and use the bathroom sink for drinking water and washing dishes; and clean ourselves with adult-washcloth wipes and dry shampoo. (Or I could we suck it up and drive to our respective gyms). Also have to transfer all our meds and personal care items from the upstairs to the 1st floor bathroom.
Had considered canceling our trip (and Bob first offered to stay home), but we'd just be in the way of the workmen. We need this vacation. If Bob doesn't go there's no point in my going down there alone to celebrate my birthday. They know to steer clear of the cats, who will just have to free-feed kibble and drink water. We'll give them the code to the key box and hope for the best. Maybe our helper friend can tiptoe around the workers and see to their food, water & litter boxes while we're away. No boarding services for cats (and if they were, they'd only be super-traumatized and come home with fleas).
Meanwhile, it's brutally cold here and will only get worse tomorrow and again over the weekend—Fri. a.m. the wind chill is predicted to be -40. Snow chances Wed. and maybe Thursday. Because my flight is a one-stop (KC), I will miss Thurs. afternoon's panels. Will have to warn the plumbers & restoration crew to drip the faucets till we get home Monday night. The restoration crew will install a new vanity, and repaint (at least the 2d fl bath and the kitchen ceiling) with satin/semigloss/eggshell.
Seriously considering re-doing the 1st fl. bath to give us a working tub & shower. We hadn't wanted to break through the tile (or, more economically, the dining room wall), but since we're going to have to tear down so much of the drywall anyway it might be worth it to do so while I'm in Greece at the end of April.
chisandy
Re: Brain Mets Sisters
I have had my second brain surgery in 9 years. My first surgery was for a 10cm tumour and that was fine, it was all good until until this past year. I had a leaky cyst with blood flow and neuro wanted to get the cancer junk out of there.
I will say I was the whiniest person this time because I was allowed to walk the hallways the first time but was stuck in bed or having to be taken to the washroom but I got out of the room. Was not a fall risk back in the day. Plus side was that I brought movies and they had a pretty good wireless signal.
Re: Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease
I am not sure what my radiation oncologist will decide for my radiation treatment. I went to MAYO Clinic in Minnesota where they have a billion dollar proton radiation option. However, after the surgeon assessed me he said that because I am thin that he may choose traditional X-ray radiation. My husband is having a fit and wants me to gain 20 lbs so I may get the Proton treatment. I have to have a conversation with surgeon of course to see if that is an option. I am just flabergasted with how much treatment I am getting for this little old breast cancer mass and 3 cancerous lymph nodes that have been removed ! I would hope all the cancer is gone but I do not want one single cancer cell lingering. I am a registered nurse but I was not familiar with any cancer treaments until now. I do not know how anyone can hold down a job, pay their bills and make it to all their appointments and manage not feeling well? I am relying on the MAN UPSTAIRS to bless me. My husband is unable to work due to back and hip injuries from pouring concrete his whole life. He is scheduled for back surgery in the next few weeks while I go through my 6 chemo treaments, radiation, 2 IV chemo drugs that last for another 4 months and then hormone therapy pills for TEN YEARS !
cparnau
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
Dear @moderators
I finally got my PET-SCAN approval last week. So today was my appointment. Im extremely exhausted so if I pop in, it will be briefly. If not, see you next week.
Love and hugs 🫂 🤗 ❤️ 💖
