Best Of
Re: Post unilateral mastectomy - recovery
Hi. It was a few weeks before I could lift anything. Unfortunately, I got sepsis the weekend I got out of hospital so ended up back in ICU. I didn’t want any further surgery after this so didn’t take reconstruction. Psychologically I’ve found it difficult to deal with but I’m getting there. Nobody talks about this aspect of it all.
It’s difficult to make choices but we have to do what we feel is best, whatever that is. I wish you luck and good healing.
Re: Post unilateral mastectomy - recovery
Hi I had bi-lateral so it may be a bit different. Left breast was required, but I chose to do both due to a number of factors.
I wasn't to lift my arms past elbow height for the first week. As for weight restrictions, I believe 5lbs at first, working up 15lbs later in recovery. Once I saw the surgeon at 8 weeks he cleared me to slowly return to regular activity but to listen to my body and not push myself. I was given directed exercises to do during the first 6 weeks. Do them, they help.
You will probably have to deal with surgical drains for the first while - I had 3. I can't remember how long I had the drains - probably about 2 weeks but felt like forever.
As foggydew said, no one prepares you for the the psychological impact. I think I ugly cried at each stage of the post surgical progression. Be gentle with yourself and know it's okay to grieve the loss how your body looked. I still have days.
Some tips: I bought a wedge shaped pillow which allowed me sleep inclined for the first while because I couldn't use my arms to push myself up with. - Things you use regularly, leave on the counter if you can kettle, cups, snacks so you don't have to reach. - For vacuuming I have an upright and would hold in place and walk myself forward and back rather than extending my arm. Honestly, let others help with the chores, you can slowly take them back as you feel up to it. - I invested in physio sessions with a therapist who specialized in post mastectomy recovery and I am now going for myofascial release treatments which I highly recommend.
I had a few minor complications but all in all the recovery really wasn't that bad for me.
I had no option for immediate reconstruction. It's now been over a year now and I plan to talk to a plastic surgeon but remain largely undecided.
Choose whatever feels right for you.
Re: Post unilateral mastectomy - recovery
Hi, it looks like no one responded to your post, which is unfortunate because I have the same question. What was your experience? I’m having a very hard time deciding what surgical choices to make, and so looking for info on experiences.
Re: November 2025 Chemo thread - let's support one another!
Hi, I am reluctant to join a group that I never wanted to be apart of, but grateful to find others walking in these same uneasy steps. I found a lump in my right breast mid-August. It had only been 10 months since my previous normal mammogram. Subsequent testing and biopsy showed invasive pleomorphic lobular carcinoma. (ER+, PR+, HER2- neg). I had been taking HRT since my hysterectomy in 2011 & discontinued it as soon as I received my biopsy results. I chose to have a double mastectomy with tissue expanders for reconstruction which was done on 9/22/25 with the hope of not needing further treatment. Surgical pathology was as expected, except that 1 of 4 lymph nodes from my right axilla was also positive. My Oncotype DX score was 27. With these findings, 6 rounds of chemotherapy was recommended to then be followed with an aromatase inhibitor. I started TC chemotherapy on 10/19/25. The day after chemotherapy I received a Fulphila injection. Side effects have been mild with the exception of a few days. I have pretty bad hot flashes- due to stopping my estrogen hormones. (My sweet hubby ordered a neck fans for me which has been a huge necessity & I highly recommend for any other “hot” ladies.). I experiences intense body aches/flu-like symptoms 2 days after my Fulphila injection which were severe for about 24 hours & then subsided. Later that week I had sudden onset of chest pain which radiated to my back & down my spine. It gradually worsened & became very severe and I was sent to the ER for evaluation. They were able to rule out a pulmonary embolism and treated the pain. It was suggested the meds to stimulate my bone marrow or the chemo may have been the cause, but we really don’t know. The pain meds helped and by the next day i only noticed minimal twinges of pain & then it stopped completely. I praise God that I have felt really good the past 4 days but remain cautious to brag because each day seems like an unknown. Sorry for the long post. I’d love to hear from anyone with similar symptoms or suggestions.
Re: Revision/Corrective Reconstruction Surgery - What's Your Experience?
I call this a cautionary tale:
I had a breast lift and reduction in the beginning of September. Since my cancer treatment in 2007 (radiation), I have become increasingly unhappy that my irradiated breast had shrunk and that I was now somewhat lopsided. A friend shared that there is a federal law (started in PA, actually) that allows breast cancer survivors to have FREE breast surgery at any time.
Apparently radiation is the gift that keeps on giving. Radiation is known to damage blood vessels; I did not heal well on the irradiated breast, and was in a fair amount of pain. Suffice it to say that part of my breast was necrotic. I was initially treated at the Wound Care Center at Bryn Mawr Hospital, and was using medical manuka honey and silver-infused pads to stimulate blood flow, and was told I would likely begin daily hyperbaric treatments—which I eventually didn’t do.
I had the wound debrided under anesthesia in the hospital in mid-October. Doctor cleared all dead tissue. I wasn’t in terrible pain but had a consistent ache. When I finally worked up my nerve to change the dressing, it looked like a shark took a big bite of me. I was a little—a lot—shocked. I couldn’t look at it, and had home care nurses in daily to change the dressings.
It was recommended to use a wound vac, and it was hooked up towards the end of October, with the expectation that I would likely need to keep it for a month. Wound vacs are seen as game changers in the treatment of hard to heal wounds. I had a long tube running from a hermetically sealed sponge in the wound going into a pack with a container which needed to be cleaned and emptied every two days by a home health nurse. Not great, but no pain anymore. At this point, I let work know that I would not be able to work until around Thanksgiving.
The wound vac did not work for me: I developed every bacteria known to humankind, and was on a constant cycle of antibiotics, some of which caused me to vomit daily. I wasn’t sleeping, completely lost my appetite, had no energy, so I finally decided to tell my surgeon that enough was enough. I needed my life back. He agreed, and scheduled me for surgery in three days, on November 17. He removed all the unhealthy tissue and closed me up, putting in two drains, which thankfully were removed on before Thanksgiving .
So, here I am: I started this whole thing because my breasts were uneven, and now they are even more so! I basically have a breast and a quarter. But I am happy with the size of the left one (I’m calling it my leftover!). I lost a lot of weight over these weeks, which I am not really complaining about, but look forward to feeling myself again—and able to hold my grandson!
Re: Long term success stories of stage 1 triple positive with THP chemo regimen
I had my first infusion of TCHP eleven days ago and I got every single side effect full throttle. I told docs I wasn’t sure I’d be able to continue with chemo. They suggested just THP for the next infusion for less symptoms. So fingers crossed.
And the research on dropping the carboplatin or cytoxan seemed solid.
I am a less is better gal.
I also am looking for experiences of others with just THP.
I’m scared to do it again.
Re: Starting radiation in December 2025? Gather here for support!
i start a 3 to 6 week therapy. Nervous about it, mainly because of the damage to other organ's from three radiation.
