Best Of
Re: How long have you been Stage IV?
@ssales13 Stacey, so good to hear from you. It sure feels great to do some cleaning and get rid of stuff that we no longer need, doesn’t it? A Goodwill store just opened a mile from us, so I donate items frequently.
I had to laugh at your comment regarding winter not yet started and wishing for spring! I am trying to embrace the snow we received on Monday that is still on the ground. It sure is pretty, but makes for a soggy dog every time we take him out!! 🐕🦺
Have a wonderful week!
Hugs, Pam 💗
Re: Newly diagnosed with bone mets
I was just diagnosed with bone Mets in spine, ribs, and sacrum from my BC that has been at bay for 8 years. Gone I thought. Agonizing pain, pet scan showed bone only. Was given diluded for pain (Thank you God) and tamoxifen to kill cancer in spine. I am hoping it helps with the pain as I can barely get off of sofa. Does anyone have any experience with this. Thank you all❤️
xsuzx
Re: How long have you been Stage IV?
had pET Scan and they found my BC metastasis to my lower spine, ribs and sacrum. Dilaudid for pain and tamoxifen for cancer. No organs affected Any one have this? And when does tamoxifen start to help either pain? Thanks everyone.
xsuzx
Re: How long have you been Stage IV?
. No biopsy….and they didn’t say if I was HR+ I was just so grateful he didn’t say it was all over my body. He did a special genetic blood test and I will see him right before Christmas. I have to figure this site out again so I am posting in the right place. Thank you Pam❤️
xsuzx
Re: Making that Final Surgery Decision
I chose to go BMX a little over a year ago. My cancer was missed in my routine mammogram literally months before. I probably should have found it earlier myself, but life got "lifey" and I got complacent with years of normal mammograms. My follow up mammogram showed a large mass, but for reasons no one seems to be able to explain, I waited over 2 weeks for an ultrasound which resulted in an immediate biopsy. By the time I saw the surgeon, a lumpectomy was not an option. I had 48 hours to decide whether to remove the just the cancerous breast or both. I will be honest, my faith in the diagnostics was sitting pretty much at nil and the prospect of having to rely on the same facility in the future didn't sit well either. I know that removing the second breast did not remove the threat of recurrent cancer, but I mentally couldn't face the thought of potentially having to do a repeat surgery sometime down the road. Luckily there were clean margins and no spread to the lymph nodes. The pathology showed no cancer in the right breast but there were changes. Was it the right decision medically - probably not, but it was right decision for me.
missymoo
Re: Newly diagnosed and scared
I’ve talked to the nurse navigator a couple of times when I was upset about everything taking so long. I felt like she was just pacifying me. I ended up calling a different cancer center after calling my PCP. I was able to schedule an appointment with the oncologist instead of waiting until after my surgery to start on that path. I think this will be much better now. I couldn’t take the constant waiting for answers anymore.
cosun10
Re: Can we have a forum for "older" people with bc?
Cindy I love the photos and especially thr giant Xmas trees. Loved the one with the deer.
Marti glad your talk with your 7 yr old went well. I didn’t have chemo just radiation and am on meds for just over 4 more years.
mom still waiting for my CT and mammogram. Lordy. Apparently my MO has gone elsewhere and I have a new one. Hopefully these tests happen before I meet him in February.
We are having mild weather for December. Sunshine and light showers today.
I’ve tackled my powder room. Got the old cabinet out and off to the dump Monday. Here’s how it sits now ( cat proof) until the new one arrives.
Re: Can we have a forum for "older" people with bc?
Check with your nurse navigator. Some warm tops have raglan sleeves with a zipper on one or both sides. I came across a few of them at secondhand stores afterwards. Would have been nice since i was getting infusions for so long>
Tippy's "armpits" (inside part of his legs) have finally been cleared of matts. He is much happier.
Anytime, it is wonderful when we are linked up to a supportive spiritual community. But especially in times of trouble.
Beautiful pictures harley and cindy. Carole, how is dh doing with his mouth cyst? Hopefully he can wear his partial by now.
We have a Health Care Mission in the area, hopefully they are gearing up for an influx of new patients. When I used to go there, I really appreciated how they had respect for me. It is not like I spent most of my life being wild and crazy. Much of it was a bad marriage and poor career counseling, with cultural prejudice tossed in for good measure.
mcbaker
Re: Can we have a forum for "older" people with bc?
hi friends!
I am trying to learn your names, I will get them soon!
Cindy, I am longing for that warm sand and water! Looks lovely! Enjoy!
Betrayal, well, sounds like the ol’ ticker is decent. Kinda hoping sleep apnea for you? Only because my doc told me that if I had it and got cpap, 90% of patients reported less daytime sleepiness, fewer morning headaches, better sleep. Sounded good to me - then I didn’t have sleep apnea. So?
Carole, can I just say I love the smell of the Deep South in the winter. Really earthy and moist (Minnesota winters are very dry), kinda sultry. Come on up here sometime and enjoy our fierce frosty winter.
anyways, had the convo with our daughter this morning. It went way better than I expected. She was most upset about hair loss. I ordered some fake bangs to go under my scarves. I’m gonna see if they look ok under hats.
My grown up boys are next. My oldest is a rock star (
) on tour, completing tour I think Monday, and flying Istanbul to LA after. I don’t want him freaking out on a long flight, so I’m telling both boys on a FaceTime probably mid week. This will be a hard one because my younger son’s mother in law died after a long leukemia fight last month. His wife is understandably still reeling.
Honestly, I’m ready to get this show on the road. Any tips for clothing when I go with a port (date still TBA)? It’s winter. But they also have warm blankets.
Today I am grateful for my daughter knowing. And my wonderful synagogue. And for you.