Best Of
Re: I’m on hospice - anyone else?
Had my hospice doc today. I love him. He’s so compassionate. He comes usually once a month right now. He has upped the amount of meds I’m taking instead of adding different ones right now. Hopefully that helps a little with eating, but we shall see. He did do a little test and said I may have some ascites. I could go on a diuretic, but we’re going to hold off for now because we’re not 100% sure.
I bought a compact blender and am going to make smoothies. Had one today, and it’s definitely easier to have liquid.
He did tell me at the end, there is a way to stop my stomach from working and I shouldn’t feel this anymore. That made me happy. Who wants to feel this at the end? He said after that, I would survive about seven days. I’m not there yet.
kbl
Re: I’m on hospice - anyone else?
KBL,
I am sorry that you’re going through this. Eating has also become my greatest challenge, and since yesterday I’ve been throwing up even liquids. Waiting for some popsicles to be delivered but the hospice nurse came by so we discussed some strategies for hydration and light eating. Nausea is the worst feeling in the world for me. Hope the days ahead are easier for you.
Birads 5 with calcification
I’ve been hesitant to post because I didn’t want reality to set it but here I am. I’m a 33 year mother of 3, youngest is 6. Just like most of the ppl in the group, It all started with me noticing a lump. I took action almost immediately. I made an appointment to see my primary doctor which took me 2 weeks to get in. I cried and cried and cried some more the whole 2 weeks. I literally feel into a depression. Thought I would have a stroke. I began to have fatigue, upper back pain, constant burping, and a change in my bowl moment. Finally, my appointment comes. She did a breast exam and said she was sure it was fibrocystic breast. Told me I had nothing to worry about, ordered a mammogram and ultrasound for 2 weeks later (more waiting). I got my imaging done and my dr called me the same day and delivered the bad news. Mammogram results are Birads 5 and calcification. Given my age, family history, and what she felt during the exam, even she had to admit it was shocker. Now i have to go through all the biopsy and more test. I have so much fear that my cancer is in an advanced stage because of the fatigue, back pain, burping, and constipation. It’s hard to distinguish if these symptoms are associated with the cancer or the anxiety. None of it started until I found the lump and began to become hysterical. Another thing that makes me fear it’s an advanced stage is due to the fact that I had a breast reduction 12 years ago. My ducts are cut so there is no leakage. Because to my reduction, nothing about my breast are normal leading me to worry if I could’ve missed the signs for years.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@kbl Hi Kris. Thanks, I was feeling extremely fatigued. Im not sure why but I'm just leaving the house to get my bloodwork done. My email is rochwada@gmail.com. I would appreciate very much. I wasn't there to hear your update but I hope you're feeling a bit better. Youre in my prayers. Love and hugs 🫂 🤗
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@tanya_djamila Thank you, Tanya. It’s getting harder to eat, so a little notch down. Doctor coming Tuesday. Different than digestion shutting down due to dying, I still want to eat. The cancer is squeezing in and making itself comfortable. Need to eat tiny bits at a time.
So glad you’ve had time with your mom and grandson and will get time with your sisters.
kbl
Re: My Husband, My Life, My Love, My Family, My Cancer
Good Morning @threetree, Yes I do totally relate to what you are going though. You’ve dealt with so much physically & emotionally also. I’ve heard how much Shingles takes a toll and yet you’ve also had to deal with the shock and depression brought on you with the liver met issue. So try not to be hard on yourself girl. Day to day Mets is an exhaustingly emotional thing to go thru each day, Jus remember we are all hear for each other, and also you and I kind of came in to all this around th same time, so I have a special place in my heart for you. Stage IV is a rough road to travel. Most of us thought we HAD breast cancer in the past only to discover that it was always there hiding to come out again. As Stage IV. 💕
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Oh no! I tremble at dental problems and hope yours can get resolved soon and with minimal discomfort. I need to have two crowns replaced. They are very old and are crumbling (sounds like my whole body!) Ugh! It is up to me to decide when and I keep procrastinating but know I need to do it soon. I trust this dentist as he has not suggested any work for the past three years. He is great about showing me the films, etc. as I had a dentist in the past who would do unneeded work. He since lost his license… These are probably two of his crowns!
@irishlove Thankfully you caught your med mix-up before it got serious. There are too many meds for us all!
I am going in for labs and an oncology visit this afternoon. It is supposed to get past 90° here today—too warm for Colorado!
Re: Stage IV MBC Fitness
I walked 2 miles today. I plan to go to Enhance Fitness tomorrow and just not do the hand weights since I’m still bandaged up from my carpal tunnel surgery. And I’m not supposed to lift more than 2 pounds. Good to get moving again.
aj
Re: My Husband, My Life, My Love, My Family, My Cancer
Hi ladies. I hope you all are keeping cool and safe from these horrible storms. So many areas flooding and heatwave conditions. It hit 98 here today. Just a heads up, I forgot I was on antibiotic and worked cleaning sidewalk and birdfeeders. I really got sick in my stomach, light headed, etc. Between chemo type drugs, MS and antibiotic, well let's just say it's the jack pot of turning into a night owl for now.
Short story on the antiobiotic. I tested for UTI and no surprise it was positive. With MD permission, I keep Cephalexen in stock due to numerous UTI's, most due to MS. So I popped my antibiotic and one day later, really sick and diarhhea. Happened again today. I read the label thinking I was accidentally taking too much. Oh gosh it was Amoxicillin, which I can't take. To make matters worse, it was DH's and he had a severe rash reaction. How it got in my cabinet, don't know. I broke my last pair of reading glasses, so I thought I had the right drug. Lesson learned. Get the DD or DGD to read the label. I meticulously line up my meds on plastic tiered levels. Always keep it in same spot. This thru me for a loop since I am not on the med very often, so it wasn't lined up. Military precision is a must around here. LOL..
Hospital called Friday to reschedule MR of spine. They claimed they never rec'd approval from my insurer (Humana). Hmmm, anyway now I have to wait another month and had to reschedule the Surgeon's visit, also. "It's always something" Gilda Radner.