Best Of
Re: How has normal, day-to-day life changed for you after diagnosis? Share your “different normal.”
@reader425 and @maggie15
Thanks for responding to me. I’ll look on Amazon for the triangular forms. I too prefer the stretchy sports bras for the compression.
Thanks again!
Re: This sucks - Osteonecrosis of the jaw
Well, it looks like after 6 years of XGEVA, it has finally become a problem for me as well. Last week my dentist referred me on to a periodontist who surprisingly had an appointment open up the same day I called. He said that he is extremely certain it is ONJ but that it has been caught early while the bone hasn't come through the skin and is still covered by my gums. The symptoms where puss in my gums and when he went to digging around and taking some X-rays. My dentist had already put me on a week of antibiotics and the periodontist will continue me on with the antibiotics and also added a mouth wash that I have to use twice a day. I am supposed to see him again in January. He said he will get with my MO and let him know what is going on. I have been getting my XGEVA shots every three months for about a year or so after getting them every month previously. I am trying to figure out what to expect with this latest situation. I am assuming that my MO will likely take me off XGEVA but I have no idea what they will do for the ONJ beyond that. Anyone have any ideas of what I should expect?
cowgal
Re: Can we have a forum for "older" people with bc?
I thought 28 degrees was cold, Sandy! Hard to imagine 1 degree. I dribbled water in the kitchen sink last night, and we have running water this morning.
Our outdoor decorating was accomplished yesterday. I hung the lighted wreath and plugged it in. I haven't connected it to a timer yet.
We skipped the concert at the Methodist church yesterday. Our friend Linda wasn't feeling well. She had a cough and sinus congestion and a low temperature. I had sinus congestion and a lack of enthusiasm for going out. LOL. Dh and I were both happy to stay home.
Today I'm meeting a friend for lunch. She lost her husband recently and is having a hard time with grief. He had bad health but she was not ready for him to go. She's a retired nurse and was committed to caring for him.
The sun is shining but I will have to dress in warm clothes.
Re: Can we have a forum for "older" people with bc?
Good morning. I went to an Eirinn Abu concert, yesterday. It was beautiful. I am waiting for the floor people at my Florida house. The NC house got to 13 degrees. I am glad to be in Florida. I am still not feeling 100%, but think I am on the mend. Hope everyone has a good day.
petite1
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight I'm so sorry to hear of progression. My heart breaks a little more for everytime I read about our sisters here battling all the time. Wrapping you in a giant tight hug.💔
@goldensrbest Glad hear polyps seem to be benign, fingers crossed. Ugh sorry to hear another joint replacement may be in your future, it just stinks!
@mara51506 Do you sleep with a humidifier in your room? That may help with your cough. Glad MR went well but jeez another wait for dr, so annoying!
@micmel Oh thank God you found an angel to help you! Enough already! Hope you get pain relief soon and still praying for strength for Gabby and your family.
@irishlove I too love the idea of the candle lighting tradition from afar. What a beautiful tradition and memory for your family. Feel better soon. I hear ya on the cooking, many days we just need a break!!
@sf-cakes I can't believe 3 years have passed without your sweet hubby. I love your attitude in honoring your love and relationship which gives you a reason to live on.
@candy-678 Hey there, good to see ya! Glad things are status quo…me too.
@wren44 Feel better soon, as so the winter woes begin….
@eleanora I LOVE your idea for the holidays! As I have about 4 lists going for food even though I am ordering some of it. There is just sooo much that goes into hosting a large group! I miss my old energy and ambition I used to have. I don't know about anyone else but I feel so scatterbrained sometimes when multitasking. Feels like eternal chemo brain although my family says I remember everything. As everyone here I miss and mourn the old Andrea.
Always praying for all, hope I didn't miss anyone. I was off a day or two and missed lots.💕
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
@wren44 I am so sorry you are dealing with a sore throat, hoping inflammation recedes for less pain, easier swallowing.
I did not wind up posting yesterday, wound up sleeping a bit on couch then watch IT Welcome to Derry, excellent show. Same people made recent theater movies which were good.
I am at the coughing phase which is bloody annoying if I may be blunt. Still productive with cough so will take expectorant, drink lots of water. Practicing controlled coughing, holding breath and just doing a cough or two, not sure it works, sitting up seems better to avoid the coughs. Worst come to worst, sleep upright on couch. I am focusing on rinsing nose, garlic which I will enjoy
Last piece of puzzle re brain is the consult appointment as the neurosurgeon is travelling soon so I will see what is suggested by him, timelines etc. We will see. Been leaving the phone on so people could call through if need be. Nothing else this week (hopefully) except Herceptin. Going to get in habit of phoning to check appointments as mine were nothing like the print out. Got Paratransit booked, least is an afternoon appointment. Hard to follow with these other appointments at other hospital. My goodness.
Thinking about getting kitchen sink done first, higher priority, then laundry. Got boxes and bags to deal with from Amazon for recycle Thursday.
Meals are a toss up, got beans and beef in the fridge, Might chop up beef, beans and cheese. Add some rice if need be. Also need to pay the extra for extra lean ground beef, am finding the grease a bother to mop up and I do not usually save the grease so mopping up grease on the burgers itself is a PIA. Next shop, shell out the extra for extra lean ground beef, less grease if any to deal with and can stretch further with black beans or lentils even.
I hope everyone has a good day, in pockets for all of us as well. I hope all illness heals up quickly and in pockets for those of us looking after loved ones and sending support to the loved ones as well.
,
Re: My Husband, My Life, My Love, My Family, My Cancer
PET scan results show Interval progression of disease with increased number of metastatic liver lesions and osseous metastatic lesions. So it looks like progression. I know nothing else. For now I will wait on an onc message.
intolight
Re: My Husband, My Life, My Love, My Family, My Cancer
DH’s colonoscopy revealed 11 polyps. GI Doc felt pretty sure that they were all benign but they are being sent to pathology. Praying that he is right. Obviously will need to be followed more closely, with more frequent colonoscopies. No more cologuard for him.
Got the results for my MRIs. Lumbar MRI showed torn labrum in left hip and severe arthritis in hip. Probably need a 5th joint replacement….will hold off as long as possible. Kidney MRI shows unresolved cyst. Probably need to see a nephrologist as I only have 1 kidney and need to preserve its function.
Here for pocket duty - sounds like lots of crud is going around. Healing thoughts going out to all……
goldensrbest
Re: How long have you been Stage IV?
@eddiej
A dog is wonderful—especially when it’s seen as a source of good omen—and I believe it can make a big difference in improving one’s psychological well-being.
My daughter has two cats, but cats are different from dogs; they’re more independent and don’t give that warm feeling of sitting in your lap or clinging to you the way dogs do.
I’ve always wanted to have a dog. The last dog I had was in my childhood, and it died tragically, which has left me sad to this day.
I believe that having a pet gives you the feeling that you’re caring for someone, and it helps ease the loneliness that comes with illness.
